Well I never

User

Posted 18 Jul 2016 at 07:51

Congratulations from me too. Know what you mean about the drinking, I've stopped now and my wife often says she wishes I hadn't !

User

Posted 18 Jul 2016 at 16:44

DM,

Many Congratulations on your 40th Wedding Anniversary and thank you for a lovely post it has brought tears to my eyes.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 18 Jul 2016 at 19:57

Hi DM

Wow! 40yrs married, that is a great acievement in this day and age. Congratulations to you both.

If i'd have realised you were drinking on line last night I could of had an excuse to join you, then you would not of been drinking alone! Hope you haven't had too much of a hang over this morning

Lesley xx

User

Posted 21 Jul 2016 at 12:03

Hi all

Just an update, I've got a big birthday coming up this September so was looking forward to a small celebration. Hmmm, an Open Ureterovesical reimplantation on the 6th to prevent kidney failure will put a stop to that! Ah well, I'm not a huge fan of celebrations as I prefer doing something quiet, just as well really.

Off to get bloods done shortly, hospice nurse came round yesterday and recommended steroids for a couple of weeks to give John some energy, he's utterly knocked out by the RT, anyway she called our GP surgery with the list of symptoms and they said, no, they wanted to do a full blood work up. They suspect that he's anaemic (well we know he is but how much is the question) and he's got a lot of itching which could indicate kidney or liver issues. So sensible approach by the GP, managed to get an appointment for the bloods today but the joke is that no appointment is available for the doc to review for three further weeks. Of course I won't leave it at that but it made me laugh as it was the doc that requested that I drag him down there.

Fun and games down in Swindon.

Lots of love

Devonmaid xxx

User

Posted 21 Jul 2016 at 12:20

Ah! Doctor's surgeries and their appointments eh. At my daughter's surgery, you are not allowed to make appointments in advance, you have to ring on the day and if they've run out then you have to ring next day!

As for special birthdays and celebrations, well what about celebrating it a bit earlier if your other half is up to it.

Let's face it though. It's just another year isn't it. Every day is a celebration

*******

We can't control the winds - but we can adjust our sails

User

Posted 21 Jul 2016 at 19:49

How about having a treat a day throughout September? I'm sure everyone here agrees you deserve a bit of pampering!

Re the blood results surely the doctor will be contacting you once they come in (unless of course they are perfectly normal)

User

Posted 21 Jul 2016 at 20:06

What a great idea Rosy, fingers crossed for better times ahead.

The doctor wanted to see John before he authorised steroids, hence the bloods etc My thoughts are that he needs to be seen anyway, whatever the blood results. He's suffering very badly from bladder spasms, which are excruciating. Anyway we do have the contact details foe the urology consultant so that's my fall back position. I'm sure he will be seen by the GP, there are always lots of cancellations on the day. They will obviously contact us if the bloods are deranged anyway. I always find it weird that GP bloods take 7-10 days to come through but hospital ones are done on the same day. Strange.

Love

Devonmaid xxx

User

Posted 21 Jul 2016 at 22:05

Turning your page

We can't control the winds - but we can adjust our sails

User

Posted 21 Jul 2016 at 22:06

Still stuck. Perhaps someone else will have better luck !

We can't control the winds - but we can adjust our sails

User

Posted 21 Jul 2016 at 23:05

The mysteries of the health service, but what would we do without it.

Thanks Chris

User

Posted 22 Jul 2016 at 00:34

Aaaaaaaggggghhh - three weeks to get an appointment is just ridiculous - but at least we know that the NHS would work if someone had a serious illness.

Oh, wait ......

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Jul 2016 at 00:22

Come on damn you, turn the page!!!

User

Posted 23 Jul 2016 at 01:18

Mrs D what are you doing still up at this time of night 🌛 I have a feeling I may be up all night it looks like more puppies could be on the way I wish they would take pity on me and give me a day time delivery, life never quite works out how you want it to does it.

I have fingers crossed that J gets his results sooner than the 3 week wait but then I suppose that will only happen if the results are worrying 🤔

I have a good feeling that I could be the page flip that you are waiting for.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 24 Jul 2016 at 23:08

Any news on the latest deliveries Julie? Thanks for the flip, don't know why it takes so much effort! Xxxxx

User

Posted 26 Jul 2016 at 02:03

It's always the waiting for results that gets the mind working overtime.

Julie, Most of your litters seem to be at night!

Girls,
Still thinking of you all and your other halves.

XxxxxX

User

Posted 11 Aug 2016 at 23:46

Hello all

Just an update. John is improving every day at the moment and finally we have decided that we will go on our holiday to Devon on Saturday, it was touch and go last week but he's much better than he was, so it's all systems go.

We saw our oncologist this week, he said John's bloods are all "normal for him" and there's nothing worrying there, PSA remains stable at less than 3. He has agreed that John should have this operation called ureterovesical reimplantation and that will happen on Sept 6th. This should remove the immediate qnd ongoing risk of kidney failure, obviously it can not reverse what's there not will it change the bladder situation so the SPC stays, but the prevention of kidney failure will be a relief. He said (and I agree) far better to do this as an elective rather than as an emergency when he's not so well. He's still getting a lot of excruciating bladder spasms but he's even getting used to that.

So Devon here we come, weather is looking pretty decent so I will be able to show our granddaughter the sea in my beloved home county and make sand castles etc. John will be keeping out of all that, doesn't go down well with an SPC but a nice relaxing week should prepare him well for the surgery ahead.

I would definitely advise anyone with worries like we had to contact their hospice. Ours sent the nurse out to look at John and she was instrumental in getting him mobile again, just chatting to him and encouraging him in a way that GPs don't have time for, worked miracles

Lots of love

Devonmaid xxx

User

Posted 12 Aug 2016 at 09:27

Enjoy your holiday DM. You both deserve it.

*******

We can't control the winds - but we can adjust our sails

User

Posted 12 Aug 2016 at 10:13

Wonderful news DM

I have got lovely pictures in my mind of you and baby D building sand castles on the beach while John relaxes . Just what I could do with 😉

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 12 Aug 2016 at 13:34

Dear A & J,

That's the best, most cheering post I've seen from you in such a long time.

It uplifts us all, and I couldn't be happier for you both.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

I hope you have a wonderful holiday together and come back refreshed and ready for anything!

Your words about hospice involvement are so important to everyone too.

My local hospice does outpatient appointments and about four years ago I decided to ask for a referral.

My thinking was, at the 7yr stage, and things were getting a bit dodgy, I'd better get my name on their books while I felt OK rather than having to try for it further along the line.

It was a really good move, The benefits of a monthly 20 min appointment were excellent.

The consultant there was the most helpful guy I've met. He could get me results such as MRI within a few days, rather than have me waiting and worrying, and he even diagnosed a serious condition on my very first visit. He had notice me limping badly, and immediately went for a stethoscope. He found I probably had femoral artery blockage and referred me immediately to a vascular consultant.

Incidentally, just the day before, after months of visits to the GP, that GP had referred me for physio.

Thank God my hospice consultant was so good at his job. Femoral artery and Ileac disease were confirmed by the vascular surgeon, and I was put on corrective meds immediately.

So, I do hope that anyone here reading your note about the hospice nurse will re-think the hospice option. It's never too early to have a referral, and it could save your life, as well as making you feel more confident about the days ahead when (or if) more care is needed.

Incidentally I don't go monthly now, as I'm stable again, but at least I know I have my name on their patient list and can get any advice I need by phone.

Wishing you the holiday of a lifetime, http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif you both deserve it!

Warmest wishes,

George

B2PCa

User

Posted 12 Aug 2016 at 13:37

That's great news and enjoy your hols too

Viv X

The only time you should look back is to see how far you have come

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