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psa readings

User
Posted 23 Aug 2018 at 14:03
well predicted LynEre on 15/08/2018 -

i saw the urologist today to discuss my latest psa and the news was fantastic as follows:-

my psa has reduced from 8.7 to less than 0.2 since my latest treatment started on 15may2018.

my decapeptyl(3MG) injections will now be given every 12 weeks (instead of every 4 weeks) and my psa will be checked every 6 months -

many thanks to those who gave me encouragement(even if in thought only) and as usual i always welcome comments.

User
Posted 23 Aug 2018 at 14:20
really good results, you may even find you can come off the hormones if the psa stabilises.

regards barbara

User
Posted 23 Oct 2018 at 11:02
I have just been informed by my doctor that I should have had decapeptyl injections at the higher dose in september and october -

I had been told by the urology nurse that I was going on 3 monthly after my last injection on 16august.

I am going to get a 3-monthly injection at 1155 today.

my next psa check is due in February 2019.

I am really concerned that by missing the monthly ones in september and october my progress may be impeded.

any comments would be welcome

User
Posted 23 Oct 2018 at 14:51
Sorry can't answer that but hopefully as your psa had gone down it wont cause any problems, good luck with next PSA test.

regards Barbara

User
Posted 24 Apr 2020 at 16:40

any observations/comments would be most welcome

latest news:-

psa is less than 0.1

i am receiving 6 monthly decapeptyl injections 

the next one is due on 21 august 2020

User
Posted 25 Apr 2020 at 03:46
Well that's excellent so unless the injections are causing other problems, I assume you would not wish to change unless advised by your oncologist to do so.
Barry
User
Posted 25 Apr 2020 at 20:24

'Less than' 0.1 means it's below what they can detect which is a good sign.  All the best, Peter

User
Posted 29 Apr 2020 at 15:35

Excellent news Junior.

User
Posted 27 Apr 2021 at 16:39
as usual, any observations/comments would be most welcome

latest news:-

psa is now 0.17(previously <0.1(october2020)) -

as a precaution, i will have my next decapeptyl injection in july(rather than october)
User
Posted 18 Jan 2022 at 21:28

latest result - psa up from 0.16 to 0.27 - next check will be in july 2022 - any comments or observations would be very much appreciated - good health to everyone 

User
Posted 18 Jan 2022 at 21:32

latest result - psa up from 0.16 to 0.27 - next check will be in july 2022 - any comments or observations would be very much appreciated - good health to everyone 

User
Posted 18 Jan 2022 at 23:47
Okay - this means that the hormone treatment isn't working quite as well as before but the rate of rise is still quite slow. There isn't a real concern at the moment - if the PSA gets to 5 or maybe 10 the onco may want to add additional treatment to help the hormone be more efficient - the nurse specialist might suggest to you in July that you have a testosterone test to see how well the hormones are working.

No panicking yet, Hashim - you are still doing amazingly well!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 21 Jan 2022 at 10:27

My husband is in a similar situation with a rising psa over 3 consecutive tests whilst on HT....he has had a bone scan and it has returned with no significant changes which is amazing.  He will have an MRI on the 31st Jan '22.

 

He was diagnosed in June 2020  aged 52 with a  Gleason 9 T4N1.  I'm hopeful that it is just the HT not working so may be switched or layered to keep his psa in check. 

 

Good luck 👍 

User
Posted 21 Jan 2022 at 15:45

alhamdullillah - inshallah things will improve - i’ll follow his progress with may duas

User
Posted 18 Jul 2022 at 17:33

latest result - psa up from 0.27 to 0.57 - next check will be in january2023 - any comments or observations would be very much appreciated - good health to everyone 

Edited by member 18 Jul 2022 at 17:36  | Reason: latest update

User
Posted 11 Jul 2023 at 11:26

11 july 2023 - psa up to 1.10 from 0.57 in july 2022

nothing significant in last year hence no updates

User
Posted 11 Jul 2023 at 12:59

Originally Posted by: Online Community Member

11 july 2023 - psa up to 1.10 from 0.57 in july 2022

nothing significant in last year hence no updates

Is your Oncologyst happy with your PSA?

User
Posted 11 Jul 2023 at 17:35
Hi Junior,

I think you are a wonderful advert for RT / HT - the fact that your RT was 15 years ago and you are only just starting to see the PSA creeping up is amazing, particularly as you were T3 at diagnosis! Officially, you are still in the clear as your PSA is below 2.1 but it must be a little bit worrying - will it rise faster, is the cancer back, how high will the PSA rise before I need to do something?

I guess that you are in a similar situation to my dad now - he is 86 and his PSA is creeping up but he has decided not to have any treatment yet - based on how slowly the PSA is rising, the urologist predicts that prostate cancer won't affect my dad's life until he is in his mid-90s .... Dad's view is that if he lives to his mid-90s, he will deal with the cancer then.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Jul 2023 at 02:25

Lyn, I think you have missed Juniors PSA exceeded 3 in 2017, and he is now on HT.

Having said that I think with a PSA doubling time of 12 months and plenty more treatments to be tried, there are many more years to come. You will probably see your 90th birthday, but I doubt King Charles will be sending you a card for your 100th.

Dave

User
Posted 12 Jul 2023 at 02:38

Originally Posted by: Online Community Member

Lyn, I think you have missed Juniors PSA exceeded 3 in 2017, and he is now on HT.

Having said that I think with a PSA doubling time of 12 months and plenty more treatments to be tried, there are many more years to come. You will probably see your 90th birthday, but I doubt King Charles will be sending you a card for your 100th.

 

I did 😱 Thanks for pointing that out! Nevertheless, my response of Jan 2022 still stands - the HT isn't working as well as it did but there still seems to be no reason to change plan or add other treatments. Keep going Junior!  

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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