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HoLEP and PCa

User
Posted 21 Nov 2020 at 13:27

Hi Roger and all

To cut a long story short; I had another episode of urinary retention in mid 2019 and decided to 'sign up' for HoLEP. I had a pre-op assessment in August and waited and waited then Covid arrived. I then had a further episode of retention three months ago so a few weeks later I emailed Addenbrookes to check that I was still on the list. I was told that I could still expect a long wait. 

Then, out of the blue, I had a phone call from the waiting list manager to say that 'Mr A' had reviewed my case and could I come in for surgery on the 17th of this month. There followed another assessment and a visit to Newmarket for a Covid test and I had surgery last Tuesday attended to by the top man.

So far all is well, no pain at any stage but still some blood.

I will keep you updated.

David

 

 

 

 

 

User
Posted 21 Nov 2020 at 17:00
Sounds all very good to me David and no pain which is how it was for me.

I'm sure you were warned about avoiding heavy lifting or straining your abdominal muscles for at least 2 weeks and I strongly advise you heed this warning.

I ignored the warning on day nine following my HoLEP and paid the penalty big time when the wound scab came away and I hemorrhaged very heavily which required a weeks stay on the uro ward at Boston.

If not already you'll soon be peeing like an 18 year old, enjoy.

All the best for a trouble free recovery.

Roger
User
Posted 21 Nov 2020 at 17:41

Hi Roger

It's good to talk to you and thanks for the warning. I am taking it very easy although my wife is allowing me to continue with my usual washing up and tea making!

Seriously, I will be careful, it is so easy because of the lack of any pain to think one can get back to normal very quickly.

Take care in these difficult times.

David

P.S. We live twenty minutes from Addenbrookes which is convenient as we are spending too much time there between us.

User
Posted 21 Nov 2020 at 17:48

Hi again

I meant to say for the benefit of anyone reading this conversation that I spoke to 'Mr A' last year in reference to the danger of my prostate confined cancer being spread by the HoLEP procedure and he was confident that the surgery did not have that effect.

David

User
Posted 21 Nov 2020 at 18:04
Washing up and tea making are very therapeutic and should be regarded as pastimes not chores. Do you wear a pinny?

I found the buses that use the guided busway a godsend when attending Addies for consultations. Park car opposite bus stop in St Ives then a comfortable ride to a stop outside Outpatients or Scanning. What could be simpler.

As you are aware, the tissue removed during the procedure will go for histology and you will learn the latest on what your PCa is up to within a week or so. When the wizard of the laser rang me to give the report on my removed tissue he ended with "there's no way of knowing if all of the PCa will have been removed during the procedure but a good percentage will have."

Only time and follow-up MRIs will show but either way I found his words gave me a big psychological boost at the time and something I still hang my hat on when I get my latest PSA results which generally remain stable.

Roger
User
Posted 21 Nov 2020 at 18:09

Now I know what to put on my Christmas list!

David

User
Posted 21 Nov 2020 at 22:55
Just don't forget you're wearing it when you answer the door!
Roger
User
Posted 07 Aug 2021 at 15:47

Hi

I don’t know if anyone is still following this very old thread, but here goes;

Following my H0LEP surgery last November my three-month review in February was cancelled and I finally had my review appointment last Monday.

I had a brief but productive chat with Mr A, the lead HoLEP surgeon at Addenbrookes and left him with a copy of the ‘diary’ which I have kept since the day of the surgery. I hope he will find it useful as my recovery process has sort of followed the text-book pattern with one or two interesting variations which I will not bore you with.

The most important aspect to mention for anyone contemplating this procedure is that, at no time have I suffered any pain. During the healing period urinating was, on occasion, a little uncomfortable but that passed fairly quickly. Blood in my urine also ceased after a while, as expected.

It took nearly six months for my system to settle down. Frequency and night-time urination have not altered dramatically but hopefully, acute urinary retention is unlikely to re-occur. My PSA dropped after surgery from an average of 4.0 (really 8, as I was on Finasteride) to 0.4.

Mr A recommended a course of tablets to help my still over-active bladder which he assures me should offer a marked improvement over the next two – three months.

David  

 

 

User
Posted 07 Aug 2021 at 16:35

Pleased to read your progress is textbook and from all accounts will cotinue to do so.

How is "Mr A"?  I haven't spoken with him for quite a while and keep meaning to drop him a line.

 

Roger
User
Posted 07 Aug 2021 at 16:47

Hi Roger

I am not displeased with the outcome of the surgery but perhaps I expected more improvement in flow and frequency. Still, after the past eighteen months one should be glad to be well and active.

I only saw Mr A briefly on the day of the surgery and we had a ten minute 'chat' on Monday, he said he was pleased with the results of the procedure and I felt he was professional and willing to listen.

David

User
Posted 01 May 2024 at 10:50
I know this is a very old thread but I wanted to give a brief update following HoLEP surgery in November 2020.

Three and a half years down the line and all is well; no urinary retention which is the primary benefit and night time urination is typically once or twice which is more than acceptable.

If I am careful regarding fluid intake I can now go for two to three hours without the need to urinate. This is not perfect but is a whole lot better than prior to and immediately after the surgery. To put that in context I can now go by coach from home (near to Cambridge) all the way to London or the Suffolk coast without even using the on-board facilities!!

PSA remains at around 0.4

David

User
Posted 01 May 2024 at 14:47
Sounds good David. PSA creep may be expected as the years go by as mine has but expected, as my surgeon said to expect it as normal prostate tissue grows to replace that which was removed.

My PSA was below 1 for several months then rose to 1 to 2 for 4 years and has now been sitting at around 2.4 since 2020.

Whether or not all the PCa was removed during the HoLEP we shall never know but if some still remained in situ, it's behaving itself.

Keep well.

Roger
User
Posted 01 May 2024 at 17:04
Hi Roger

Great to hear from you and to know you are doing OK. I have not logged on for a long time but decided to check out 'HoLEP' and saw a newish thread which I added to in the hope of informing others as I have been helped over the years.

Thanks for the mention of 'PSA creep', mine has gone up just a little but I am having my six monthly PSA test tomorrow so it will be interesting to see the result. It makes sense that the prostate tissue will grow back over time, albeit very slowly.

Best wishes

David

User
Posted 03 May 2024 at 11:45
Hi Roger

PSA is stable at 0.43, as last November. I can rest easy for another six months!

By the way, you mentioned the St Ives Guided Bus a while ago, do you still live up in that part of the world?

David

 
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