I'm interested in conversations about and I want to talk about

Know exactly what you want?

Show search

Notification

Error

likely to have PC

Email this conversation Print this conversation

User

Posted 16 Mar 2017 at 15:04

I know it is very difficult and for my husband like you more so. But i am looking out of the window now and the sun is shining, the blossom is coming on the trees and i am still looking forward to the summer. A time beyond the surgery when we can again enjoy time as a family in the fresh air. Here life has to go on, our children who are only 5 & 7 demand it, you too will come through this time and the difficulties of the present will fade.
Julie

User

Posted 16 Mar 2017 at 15:51

Julie, that's just what I am looking forward now: to enjoy summer with my children and grand children, to look at life as I used to, to feel the sunshine and and care my flowers, but this dark cloud doesn't let me do. My family is my life, my focus, my everything.

You have almost made some tears slide on my cheeks.

I went through this scenario when my children were the same age as yours currently. Paco had a kidney cancer. We took long time to become certain that it was CURED, as the urologist said to me. Now again.
I know how you're feeling. Despite the different moments in my life, it's again the same nightmare.
I hope both your family and mine are doing well and have the possibility to enjoy life again.
I can see from what you wrote that hubby is going OK. I'll follow your updates with all y heart.
My best wishes. I really appreciate your post.

Love,

Lola

User

Posted 20 Mar 2017 at 22:08

Hi all,,

On the next Wednesday my husband is having his bone scan, then on the Thursday. CAT. Does somebody know how long the results take to come out?

Are these tests always done or it means there is high suspect of cancer spread to bones and other places in the body.

I'd appreciate some response, I'm scared.

Lola.

User

Posted 20 Mar 2017 at 23:20

Lola, it seems that the system is so different in Spain that we cannot give you any useful information. Paco has already had more scans than my husband has had in 7 years! In the UK, it varies from hospital to hospital - some would give every man a bone scan while others would do it only where there is reason to suspect bone mets.

In your case, you already know that they do not suspect bone spread ... they would not have offered him the operation if they weren't absolutely convinced that it is contained in the prostate gland. It would be good if you could get some help to develop some strategies for being less panicky.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Mar 2017 at 03:22

Thanks, Lyn.
You are so knowledged, supporting and helpful!
I've got awake in the middle of the night. Bad nightmare.

Lola

User

Posted 21 Mar 2017 at 04:21

Hi,

I hope you manage to get some restful sleep and no more bad dreams.

Take care of yourself.

Steve

User

Posted 21 Mar 2017 at 15:03

Hi Lola,
I hope you managed to get some more rest. You said in one of your previous posts that you have had psychiatric support in the past. Have you been back to your doctor recently for some new help given the recent events. If you haven't maybe it is time to go back and discuss it with someone so that you can give your husband the best help you can and also get some help for yourself. For someone with anxiety the waiting and testing and waiting routine is very difficult to manage and even now that Paco has his diagnosis it doesn't stop. It is almost 2pm now and my husband still has not got out of bed because he is too scared that he will do something wrong. The reason for this is that he had his post operative PSA test yesterday and now has to wait for the results which has sent his anxiety spiraling out of control. This is far worse for him than it need be because he is refusing any psychiatric support. A little boost of treatment for you now could make all the difference for you. I know that counselling has helped me get through the last few months.
All the best
Julie

User

Posted 21 Mar 2017 at 15:55

Hi, Julie.
I appreciate your advice and, in deed, you’re right. I’m afraid I am similar to your hub. You’re like my husband: strong, confident etc.
I’ve been on psychiatrist treatment for years and I continue to be, due to my permanent anxiety. Anyway , believe it or not I'm feeling better now despite having Paco’s diagnosis of Pca. Actually we are currently driving to Madrid for his bone and pelvis scan and no anxiety now. Fear, of course, but I can control it.

I know I must be strong enough to help my hub go through this situation and not be an extra burden to him.

In case there came a moment when I can't bear my fear and am unable to help him I immediately would come back to my psychiatrist and ask for help again.

By no means can you persuade hub to ask a psychiatrist for help ? Tell him from me that we sometimes distort reality and suffer more than supposed to. From an anxious lady to an anxious gentleman : )

Thanks again for caring Paco and me. You are extremely supportive. All people here are.
My best wishes for you and hubby. Let's hope everything is going to be OK.

Lola

User

Posted 21 Mar 2017 at 15:57

Thanks, great runner! Great man!

User

Posted 21 Mar 2017 at 16:23

Lola,
I am very pleased to hear that you have ongoing support available to you and also that your anxiety has subsided, at least for the time being. I continue to try and get support for my husband, one day he will be ready to accept it.
Julie

User

Posted 25 Mar 2017 at 06:49

Good morning there.

Yesterday my OH had a phone call from the hospital in Madrid. They have given him an appointment for Da Vinci surgery on April 25th.

Still we don't have the post biopsy results : bone and pelvic scan. We are meeting the surgeon next week (coming back to Madrid again). He recommended Da Vinci. I hope he doesn't change his mind about this surgery because of supposed bad results of theese tests. I can't help thinking to myself that something new is going to be shown in his bone and abdomen despite de MP MRI previous to biopsy (4+3 Gleason) said no seminal or nodes alterations.

Just wanted to share it with you.

Have a nice day,

Lola.

User

Posted 25 Mar 2017 at 12:50

Hello Lola. It's probable that although you don't have the results of the scans, those who phoned you do.

They would not have offered an operation if there is spread and remember they already have the previous MRI and biopsy result showing no seminal or node invasion.

Edited by member 25 Mar 2017 at 15:49 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 25 Mar 2017 at 12:57

Your may be right. Your points of view, suggestions and help already bring me some relief :)

I hope once I get used to the new situation I will also be able to help other members with my words.

Thanks a lot.
Lola

User

Posted 27 Mar 2017 at 09:33

Hi all,
I have a new question -always trying to get information from you-. Why has the surgeon offered Da Vinvi before getting the bone and pelvic scan results? I'm afraid once they come out he changes his mind because of bad results.
One's mind cant stop wandering (wondering?). We are seeing the surgeon on wendsday and I am very nervous.

Are the parmetric MRI and biopsy conclusive enough to make a decision?

Wishing you a nice week, worries free and calm.

User

Posted 27 Mar 2017 at 10:33

Lola,

Only the surgeon can answer your question. I can't. Sorry but you do seem keep focusing on the worst possible outcomes rather than hope for the best. I can't believe this is doing any good for you or Paco.

User

Posted 27 Mar 2017 at 10:52

Don't worry about it, I keep my bad thoughts and worries to myself. Actually today is our 41th wedding anniversary and we are celebrating it . He is seeing me watching tennis on tv, enjoying our grandchild Jaime who lives 14Km, from home etc etc.

But I can't help doing so inside me, and well, I tell you, members here, about my concern and it helps a lot. You are my suppor and shoulder to lean on at present time. This way I can keep positive in the presence of him.

Thaks a lot for your suggestion and advice. Anyway I'll care about not doing bad to Paco.

Best wishes,

Lola.

User

Posted 29 Mar 2017 at 16:36

Hi there.

I want and need to share last news: Paco's bone and abdomen scan are clear, therefore date for Da Vinci is confirmed on April 25th.

The consultant has been explicitly and nice. At asking him about Paco's prognosis he said "que sí, mujer, que todo irá bien" (Yes, woman, it's going to be OK)

I'm aware of the possibility of Gleason to be upgraded on post operation histological results, but from MP MRI and other image tests the PCa doesn't seem to be spread. Crossing our fingers.

During the procedure they will take frozen samples into lab so they can decide what is necessary to be removed or spared.

Thanks for your support. Wishing to read good news from all of you.

Now on a trip to Western Spain, close to Portugal to meet our siblings and enjoy the beautiful spring there, in Extremadura, the place we both come from despite living in Galicia.

Best wishes,

Lola

User

Posted 29 Mar 2017 at 17:13

Really pleased to hear your news Lola. I hope that this gives you some peace so that you can enjoy this break with your family.
Julie

User

Posted 29 Mar 2017 at 17:16

Thoughts are with you Lola. Having a plan really helped us and it sounds like you have a great set of doctors and a robust plan.

Enjoy the time with your family

Clare

User

Posted 29 Mar 2017 at 19:32

Brilliant news Lola. Enjoy your holiday.

Hugs

Eleanor

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.