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bicalutamide side effects

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User

Posted 08 Aug 2022 at 10:26

Hi Howard I specifically asked for Decapeptyl after following others. To be honest the hot flushes started in days. The drop of libido is weird and noticeable but not too bad. I’m like 20 months into it and still want some and can manage it with Cialis. Aches and pains start in joints. Memory fog quite an issue. I’ve had zero weight gain nor moobs. In my opinion things get amplified over time even if they are there from the start. Eg my fatigue is worsening each month I feel. Good luck with it ok 👍

User

Posted 08 Aug 2022 at 11:39

Many thanks Chris - your positivity is always good to read! GP practice has just called, and after initially saying they didn't use Decapeptyl they say that they now have it! - so that's a bonus ... as is they say they are going to give me the injection in the bum! ... I'm hoping that the nurse is pretty too! ... sorry, a bit non-PC but being a bit flippant about the whole thing helps me to cope. :-)

Although I'm quite a bit older than you (I've just turned 63) I'm heartened to read that you've still been able to manage it even after 20 months (Well done Sir!) and no moobs either - although I'm imagining that senstive nipples might be a bit of a turn on!? Anyway, not that I've got a girlfriend at the moment (but still working on it - and being honest about my condition) ... not that: 'I've got to use it or lose it! ... errr maybe you could help me?" seems to be working as a chat up line .. yet! :-) Anyway, am taking the 'Use it or lose it!' mantra seriously and have managed to achieve orgasm for just about every day of the 12 days I've now been taking Bical and have arranged a date for Weds night! ..... on the grounds that at 9.15am on Thurs morning might be the herald of RIP to my sex life.

User

Posted 08 Aug 2022 at 11:48

Love your positivity and candour. It’s definitely needed when tackling all this rubbish. Yes you are older I know but a lot of it is state of mind and you obviously want to keep active, so keep doing what you’re doing. I swear pump use has saved my little fella in these 7 years and kept him tip top. Keep positive 👍

User

Posted 12 Aug 2022 at 13:32

Originally Posted by: Online Community Member

Good morning folks. I've been on the Bical 50mg tabs for 12 days now and few serious side-effects really (mind you I have partied fairly often the last 2 weeks and kept a posiitve attitude) - so first injection on Thursday (day 15) then keep taking the Bical for another 14 days.
I've asked for the Decapeptyl (as reportedly there are less side effects) one but so far my GP hasn't confirmed which one I'll get yet (which is worrying and a bit annoying) ..... my question is: How long after the first injection will the side-effects kick in please?

Hi Howard, I'm in much the same boat as you. I have advanced PCa and started a 4 week course of Bicalutamide 150mg on 21 July, followed by an injection of Decapeptyl 3mg IM on 2 August.

Side effects kicked in within 24 hours. I felt REALLY peculiar, dizzy, very weak etc for about 24 hours, but the next day I was much better and to my amazement by Day 3 all side effects from the injection seemed to have washed away and it's been pretty much plain sailing ever since. Just the occasional swimmy head and slight weakness.

Next injection will be a much-increased dose (11.25mg) of Decapeptyl on 30 August, so will have to see how that goes.

Best of luck to you for your injection, hope it all goes smoothly and you get relatively minor side effects.

Do please keep us posted.

Tony

User

Posted 16 Aug 2022 at 15:25

Hi,

I've now had 2 of the 3 monthly injections, next is due end of September 2022.

Just wondering if anyone is suffering joint pain? Mostly in the knees, however, it also

affects my other joints. It also seems to move around, from one wrist to the other. Knee

pain is continuous though!

I'm being prescribed medication (Diclofenic), Anadin Extra, neither of these help the pain at all.

Anyone help?

Regards,

Peter

User

Posted 16 Aug 2022 at 17:17

Joint pain is a common side effect of HT - swimming may help

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 16 Aug 2022 at 17:35

Been on decapeptyl for 14 months odd bit off shoulder pain but generally tolerable 👍

User

Posted 16 Aug 2022 at 18:11

Permanent knee pain. Had osteoarthritis previously but has worsened since on HT. I soldier on and keep painkillers to a minimum if I can

User

Posted 05 Oct 2022 at 13:44

Commenced HT on 21 July with Bicalutamide and have had two Decapteptyl since, first was a 4-week one at the beginning of August, second a 12-week one at the end of that month.

Plenty of symptoms so far, notably regular hot sweats and spells of very debilitating weakness c/w a swimmy head lasting several hours every few days, but cannot say I've had any real joint pain as such.

I do also regularly get a weird, uncomfortable tingling sensation on the back of my hands on waking up in the morning but does not last long and is only very lightly painful.

User

Posted 19 Jul 2023 at 11:38

The last two nights I have had a skin crawling sensation at night, which made it very difficult to sleep and I would guess I have been waking up at least 20 times a night. I have been on Bicalutamide hormone blocker since early March this year and have just completed around 10 days ago, a one month's pelvic radiotherapy treatment at the Preston Park department of the Sussex Cancer Care Centre. I am considering asking my GP for short term sleep assistance.

User

Posted 19 Jul 2023 at 14:47

Hormone therapy can cause itching with no obvious visible issue on the skin. One consultant told me this is because it can cause fat to be deposited in nerve sheaths and the itching is referred pain, but I've never read that anywhere. I had it on both arms a couple of times - usually lasted about a month and then went away.

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