Post RP and SRT journey - July 3023 PSA test update - - Page 20Localised cancer

User

Posted 12 Jan 2021 at 21:12

Dave - thanks. That’s just the mind set swap I needed.

Chris 1 😂 - PROSTVAC. Looks promising but has taken a long time to get to state III. That process needs to be faster!

Chris 2 😂 - bang on. Back end of last year was very tough for health and other reasons and my confidence has taken a real knock. I’m climbing out now but it takes effort.

Thanks to you all 👍

User

Posted 12 Jan 2021 at 23:18

Peter

This trial is Rhovac-002. It is a three year trial, with multiple visits to the hospital.

Thanks Chris

User

Posted 13 Jan 2021 at 02:44

Originally Posted by: Online Community Member

Makes sense. Having one machine for each blood test is expensive.

What are your thoughts on my latest numbers?

I think that they are lower than they were a year ago and you have passed the dreaded 2 year mark at which so many men on here have had to start salvage treatment. Perhaps like John, you just have quite a high 'healthy' PSA - and if there is a problem it is very, very small and very, very slow. Don't spoil today stressing about something that might or might not happen in the future.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Jan 2021 at 16:22

Lynn

Thanks. I got in my own head a bit as my confidence is low after being rather ill just before Xmas.

Chris C

Another similar trial then. Not in the CRUK trial list, which PROSTVAC is.They look similar.

Chris J

Thanks. I appreciate the supportive words.

All

Apologies for whingeing. Plenty here far worse off that are far braver. I'll look to their example.

User

Posted 14 Jan 2021 at 19:57

It isn't whingeing PP and you don't need to apologise - this is what forums do best!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Jan 2021 at 20:29

No need to apologise PP, we’re all here for each other. Take care.

Ido4

User

Posted 15 Jan 2021 at 20:42

One big question now is time between tests now.

My nurse suggested four months because I am a wuss but given that I am over 2 1/4 years post SRT, I want to face my fears and increase the test gap to the maximum safe gap. Is six months viable with my numbers?

User

Posted 15 Jan 2021 at 20:46

I dunno; John is still on 3 months and we are 11 years down the line. I don't think he cares much whether it is 3 or 6 months; it is me who needs the constant reassurance!

I think NICE recently changed their guidance to 3 monthly for the first year, 6 monthly for the next 4 years and then annual from 5 years onwards?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 15 Jan 2021 at 21:25

Better get the coin and crystall ball then :)

I'll leave it at 4 months this time then see what happens...

User

Posted 06 May 2021 at 11:58

Decided on reflection and a chat with my brilliant nurse to go to six months as there is no medical reason not to. She was pleased with my choice which is all about moving on and not making PCa the core of my life.

User

Posted 06 May 2021 at 13:19

Good idea Pete, reduces the PSA anxiety to twice a year

User

Posted 06 May 2021 at 13:27

Worked for me !! Until now lol

User

Posted 06 May 2021 at 15:48

That’s a reasonable choice. Hope you’re doing ok.

Ido4

User

Posted 09 May 2021 at 20:16

Pete,

Just waded through all 8 pages of your thread - a very interesting read for me as I'm 2.5 years after RALP with rising psa of 0.5

I'm due an MRI scan in a couple of weeks although my Oncologist doesn't think the MRI will pick anything up - he said a PET scan would be better but psa has to double in between bloods or reach 1.0 to meet the criteria for a PET scan!

I think I will be going down SRT route regardless of the result of my scan, hence reading your thread as it gives an insight as to what might await me.

Anyway really pleased your treatment has gone so well for you, and for everyone else undergoing treatment just want to say good luck to all of you.

Rob

User

Posted 09 May 2021 at 22:33

I think you're making the right decision in going for 6-monthly testing, Pete, if you're a natural worrier like me. I'm able to put PCa completely out of my mind for five and a half months out of every six; it's only in the week of so prior to and after the test that the anxiety level starts to rise!

Best wishes,

Chris

User

Posted 09 Jul 2021 at 18:38

Test this week, results next week. It was worth the mental break as squeaky bum only started a few weeks ago. Sorely thinking of making things even simpler by saying “If it is <0.1, just say that and spare me the decimal details” as I get stressed over minuscule changes.

User

Posted 09 Jul 2021 at 18:53

Pete

I am sure the girls will accommodate your wishes. Hope it is all good.

Thanks Chris

User

Posted 09 Jul 2021 at 19:02

Hi pete

Im Bob ive just had first blood results after prostaectomy came back at 0.023 ug/L i think thats quite good uf anybody can put me right im sure you will get the right results but I'm like you a worrier take care

Bob

User

Posted 09 Jul 2021 at 19:19

Good number, Bob. I’ve learnt the hard way. It’s not the number as such but more how it moves. Trending with an upward velocity isn’t desirable. So I’d take anything below <0.1 as a Champaign moment 🍸🍻

User

Posted 09 Jul 2021 at 19:32

Thanks techguy thats reassuring been really positive feedback on this forun which really helps you take care mate tine for that glass of champagne i suppose or 🍺in my case

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