After Hormone Therapy

User

Posted 05 Feb 2021 at 16:47

Hi Phil,

I’m sorry to hear about your PSA rising. I’m keeping my fingers crossed that it’s because of your recent water infection that this has happened and think it’s too much of a coincidence for it not to be the reason. Hopefully the Tamsulosin will get you back on track.

I know it’s easy for me to say don’t worry, but I wanted to let you know I’m thinking about you.

Take care and keep thinking positively.

Ange x

User

Posted 05 Feb 2021 at 16:57

Thank you Ange. Got to be positive 👍.

Hope you and Keith are staying well , and safe of course ....

Phil

User

Posted 23 Mar 2021 at 20:19

Had my 6 months check up last week.

PSA still < 0.02 so all good.

I am now 3 years on from Salvage Radiotherapy and 2 years on from ending Hormone Therapy.

Edited by member 23 Mar 2021 at 20:20 | Reason: Not specified

User

Posted 23 Mar 2021 at 20:35

Pete

That is fantastic news. Long may it continue.

Thanks Chris

User

Posted 24 Mar 2021 at 15:29

Brilliant news Pete. Fingers crossed it stays that low for a long long time.

I’ve got to wait till May to find out if my PSA has levelled off or still rising .... seems like forever....

In hospital on Friday to investigate possible bladder damage from RT. Hoping a bit of medication and it will ease off.

Phil

User

Posted 24 Mar 2021 at 18:11

Best of luck Phil

User

Posted 25 Mar 2021 at 10:33

Great news Pete.

Ido4

User

Posted 29 Mar 2021 at 11:24

How is this thread an "end-of-life issue"? Suggest moderator moves it.

User

Posted 29 Mar 2021 at 13:59

Short update to my Hospital visit last Friday regarding bladder frequency and urgency.

They did the usual tests , flow , residual etc and came to the conclusion it is likely radiation damage to bladder lining. Doesn’t seem to be any narrowing of the urethra. Now waiting for a date for the camera into the bladder to have a look round. In the meantime they gave me Solifenacin 5mg to try plus to increase my fluid intake. I can up to 10mg after a week if it’s not working. If it does work I could be on them for life. Side affects seems minimal so if it works I’m ok with that.

Also still got to wait till mid May to get my latest PSA results. Fingers crossed it’s steadied or even gone down ..... as always nervous but especially so when PSA has gone to 2.75 from 0.08 .

Phil

User

Posted 29 Mar 2021 at 14:43

Originally Posted by: Online Community Member

How is this thread an "end-of-life issue"? Suggest moderator moves it.

This thread has been sitting happily in the end of life folder since Nov 2018, when Pete discovered that he had yet another recurrence and was probably moving towards 'incurable' status. I guess what matters is where the original poster wants it to be?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 30 Mar 2021 at 00:28

I don’t mind where the thread sits - I just can’t get overly excited about such trifling issues.

User

Posted 30 Mar 2021 at 23:52

Sorry to hear you’re still experiencing bladder problems Phil. I hope the Solifenacen works for you.

I’ll be keeping my fingers crossed for a good outcome of the camera investigation and also for a low PSA result in May.

Take care,

Ange x

User

Posted 01 Apr 2021 at 18:14

Thank you Ange. Had a weeks worth of the Solifenacen but doesn’t seem any different so they said double the dose to see if that helps. They are phoning me in a couple of weeks to check up on me ..
Just waiting for a date for the camera .

Not seen anything on this forum regarding bladder damage from RT. I only know it’s quite rare - trust me 🤷🏼‍♂️.

Phil

Edited by member 01 Apr 2021 at 18:15 | Reason: Not specified

User

Posted 01 Apr 2021 at 21:15

Life has a habit of throwing these curveballs when we least expect them. Keith and I just take each day as they come now and try not to think about what damage the chemo and RT may have caused long term, although to be honest it crosses our minds every now and then but we try to stay positive, just like you do.

Keeping everything crossed for you Phil and hope this is a short term problem.

Ange x

User

Posted 02 Apr 2021 at 00:21

Best of luck Phil. Sorry I’ve not been posting but wrapped up in my own travels with this disease at the moment ! I should be grateful for 6 yrs with G9 T4N1 , but at the same time there is never an easy day I guess

User

Posted 02 Apr 2021 at 01:30

Sorry to read about the bladder damage. David seems to have got off fairly lightly,he has dull aches in his left side. He’s had scans and X-rays, but no answers, so he lives with it. He’s been advise it’s not damage from the RT, but who knows. Sometimes it bothers him and he takes pain relief but mostly he manages without. Otherwise he’s doing ok, PSA was 0.3 after last test in February.
David will be 71 this year, he’s fairly active, enjoys the garden we are still growing all our own veg, and living the

“ good life” in out rural valley.

Hope the meds work for you.
All you young G9 lads are very special.
Take Care

Leila

User

Posted 26 Apr 2021 at 12:14

Just a quick update : Doubled the Solifenacin and it seems to be working. So I’m now on Tamsulosin, Solifenacin, Tadalafil and Mirtazapine.....

Hoping to ween of the Mirtazapine soon and in a few months I’ll try to reduce the Solifenacin down. Waiting for an appointment for a camera to see what’s going on in the bladder, results of which may determine future pill popping...

PSA test soon and obviously result will determine if I need more HT or not. Not something I’m looking forward to ...

We are visiting our son in Jersey early May for a week and will get my results over the phone from my consultant/nurse while we are out there...

Take care everybody,

Phil

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