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My husband needs further treatment

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User
Posted 12 Mar 2021 at 16:42

Hi all,

hope you are getting ready for a summer without COVID.

Hubbys PSA continued doubling and has now had bone and CT scans in Jan 2021. After this the oncologist requested a PET scan (Feb 21) as there was a hotspot showing in his shoulder. (But “no lymph node involvement, no nodes, no mets’ following bone and CT scans.)

Telephone appt with oncologist today, hubby is now stage 4, PSA 6.95, but with ‘one site involvement’. He is to start HT now, and RT to the shoulder ‘hot spot’. Chemo was spoken about (6 cycles of Docetaxel) but not recommended by the oncologist. He has also made referral to orthopaedics to consider pinning to stabilise and protect the bone. Has anyone had or been offered this.

Secondly, we are now wondering if we should have said yes to chemo? Would be great to hear your views.

xx

 

 

 

Edited by member 12 Mar 2021 at 18:22  | Reason: Not specified

User
Posted 12 Mar 2021 at 17:47
Lots of hospitals are steering clear of chemo right now because of Covid but I am surprised that they didn't suggest enzalutimide instead? A short course of RT to the shoulder is a sensible plan, usually effective and very little in terms of side effects.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Mar 2021 at 11:03

Hi Flower girl.

I'm afraid I can't offer much advice on this but would have thought radiotherapy to the hotspot would have been a good idea, as Lyn says. Could your husband discuss that maybe? 

All the best, stay strong xx

'Sorrow looks back, worry looks around, but faith looks up'
User
Posted 05 Jun 2022 at 23:12

Hi all,

 

it’s been a while. Hubby diagnosed in 2018, radical prostatectomy in 2019, salvage radiotherapy as PSA still present and rising. Restaging scans in 2021, again rise in psa, HT started in March 2021, solitary metastatic deposit in arm, resection procedure (new shoulder) clear margins reported. 
dealing with HT effects ok.

 

psa now rising again! Small numbers but doubling in 3 months.

 

advice please - what should we be asking the oncologist?

 

Thanks in advance x

User
Posted 06 Jun 2022 at 01:56

You could ask for another PSMA scan as if there is only one tumour in a remote position (again) it may be possible to iradiate or remove it but there is a limit to the amount of tumours that can be treated in this way. The HT doesn't seem to be cutting it. What is PSA now and did they check his Testosterone level? Maybe it's time for Chemo to deal with other tumours forming. It's really up to your Consultant to explain how (s)he sees it and to suggest how to proceed.

Edited by member 06 Jun 2022 at 02:29  | Reason: Not specified

Barry
User
Posted 06 Jun 2022 at 09:17

Thanks Barry, due to ‘see’ consultant in 4 weeks.

 

User
Posted 06 Jun 2022 at 09:17

Many thanks. Will see what his consultant proposes

User
Posted 07 Jun 2022 at 13:15

Since your husband's PSA levels are doubling within three months which is quite rapid. He might be suffering from disease recurrence. I would advise you to have an imaging procedure preferably if possible PSMA PET CT scan (others include a bone scan and CT scan) to localize the exact site of disease recurrence so that your husband's treatment can be personalized accordingly.

 
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