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The story so far (2019 onwards)

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User
Posted 25 Mar 2021 at 12:52

Yeah Ido, always try and put it out of my mind, but it's only human nature to think about it the couple of weeks before a test 😔

Good luck to everyone coping with the insidious big C

User
Posted 31 Mar 2021 at 12:49

Good news on the results.  Like you I was feeling a few aches and you naturally think "is it the beat..." but the chances are it is just the body doing wastes its always done...... you are just more aware.

I hear the good weather is coming...... soon...... honest.

User
Posted 30 Jun 2021 at 16:45

Latest blood test 22 Jun - PSA down slightly at 1.53, Testosterone at 0.35 so a result there. Having had some heavy duty aches after my last Decapeptyl jab. Lyn said to make sure the Onco team knew about it. The phone line wasn't the best in the world, but it seems I will now be having a scan in the next few weeks just to check everything's still ok. Thanks Lyn, you're an angel 😎   

Good luck to everyone coping with the insidious big C

User
Posted 04 Dec 2023 at 15:03

Gosh, been a while since I posted on this thread. Now up to 4 1/2 years since diagnosis and still hanging on in there. PSA started to creep up last year so consultant added Bical to the mix in Sep 2022. It's done the trick for now and gradually reduced to 0.95, lowest ever reading.

Also have a new consultant now, she ordered a set of scans this year (CT and Bone) to check for any sign of progression and is happy with the results, nothing new and existing mets still shrinking, she's happy with my bloods but also ordered a bone density scan which shows the being on the borderline for Osteoarthritis from the hormone therapy. Wants to start me on Alendronic acid so I guess that's something else to think about 🤔

Good luck to everyone coping with the insidious big C

User
Posted 05 Dec 2023 at 23:58

Great to see your PSA is at its lowest level Steve. Sorry to see your bone density is borderline but hopefully the alendronic acid will help. Best wishes.

Ido4

 
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