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Running post prostatectomy

User
Posted 31 Jan 2024 at 09:17

Originally Posted by: Online Community Member
As posted earlier I had my radical prostatectomy on 01/11/2023. I am 78 and have been a serious runner for 40 years. Before and after my operation I have been doing my pelvic floor exercises six times a day with the aid of the NHS squeezy app. From being flooded after my operation I am now almost dry. After my operation I walked twice per day, slowly at first building up to nine miles per day I did my first run yesterday 30/01/2024 and feel great. I am looking to do a half marathon in May

Your recovery is astonishing. Seventy eight years old, incontinence free, and running nine miles, only 3 months after your prostatectomy! You must be Superman's grandad. Well done. I suppose being fit must aid recovery.

I was quite fit, but 3 months after surgery, the only running  I did was dashing to the toilet and I'd invariably peed myself before I got there.

Edited by member 31 Jan 2024 at 10:38  | Reason: Not specified

User
Posted 31 Jan 2024 at 12:13

I think the pre operation fitness was important but I do think that the pelvic floor exercises were vital during my current recovery. I intend doing these exercises for the rest of my life. As already mentioned I would suggest that anyone going through incontinence post radical prostatectomy to get the NHS Sqeezy app which costs three pounds to aid in keeping to a pelvic floor exercise plan. 

User
Posted 17 Jun 2024 at 15:48

I had an open radical prostatectomy on 5th Feb 2024. I was very upset to lose my London Marathon goof for age place due to recovering from treatment, and wondered if I would ever run effectively again. Four months on I'm back at the top of my age group in parkrun at 24 minutes-ish, and training for 10K again. I have no incontinence (that finished after 50 days) and I'm aiming to run London Marathon 2025 for Prostate Cancer UK. This thread gave me real hope during some dark days of major leakage and finding even walking was tough. Keep your marathon focus, make sure you do those pelvic floor exercises and believe in yourself, it gets better!

User
Posted 20 Jul 2024 at 11:05

Hi All

Amazing stories and support on this thread so had to join in.

So today is the day I try my first run since my RP..  Operation was on the 25th of June so just under 4 weeks…

I’ve been walking at least twice a day and was just about marathon fit before the op.

I was diagnosed 4 days before this years London Marathon and ran it which was rather emotional.. 

at 48 years old this was certainly not “in my plan” but I’m hoping to get fit enough to complete the Great North Run in early September.

 

 

User
Posted 21 Jul 2024 at 09:51

So can report back that I made 5k without any accidents although it felt a bit like one could happen at anytime which continued for a few hours after..

Now more rest before trying again.

User
Posted 21 Jul 2024 at 17:14

That’s great news Chipster. I was training for an ultra when I was diagnosed last year. I stopped running whilst I sorted my head out and never got started again. One of my main targets now is to get running again, so it’s very encouraging reading this thread 👍

User
Posted 15 Sep 2024 at 22:37

This is a useful thread, thank you for all of the inspiration that it provides! I’ve just been diagnosed at 43, running is my main form of exercise and I really want to get back to it if I choose RP. My results are relatively low (Gleason 6) but it seems that RP is the preferred option due to my age. I’m worried about the side effects but hopefully these can be overcome. 

User
Posted 16 Sep 2024 at 20:58

Thanks for this thread!

Please help and advise if you can.

I had my RP mid July and have just started running again, but it’s not easy. After the first few steps there is a strong pressure on the bladder and in the urethra. I need to pee after a few seconds, again after 4 kilometers and again at around 8 KM. After that the pain drops but those first 8 KM are very uncomfortable.

So far, I haven’t run more than 12 KM. 
Has anyone experienced similar? Please share your thoughts.

 

User
Posted 16 Sep 2024 at 21:17

Please see my note below - just sent a few minutes ago. This is the only problem I am having.

I was allowed to train 6 weeks after op. No other issues, on the contrary I am surprised that I am on track to run a half marathon soon - despite the peeing issue.

good luck 

User
Posted 30 Oct 2024 at 15:19

Hi Hoham and other runners,

Hi fellow trail runners- I am 69, 6 weeks after robotic prostatectomy. I've been walking two miles a day and added a tiny bit of jogging during walk after 4 weeks. My morning routine for decades has been up at 5am, big glass of water, large cup of green tea (this encourages my bowel movement before morning run around 8am). Seems strange but I don't need a pad from 5-8am and get very clear nerve signals when it's time to pee and my pelvic muscles are strong because I've been doing the exercises for two years prior to surgery, while on Active Surveillance.

I tried my favorite hilly trail route a few days ago first hiking. It felt great going uphill, had pad on but no leakage going uphill, then some on the flats and downhill, maybe pad halffull. Then I ran it two days later. No pad for uphill 1.5 miles then had to stick pad in, but was super excited to complete 3 mile run (very slow jog) .

I just got tested by local pelvic PT and my pelvic floor muscles are working great in all ways. She says I have to add complexity like other movements and muscles to strengthen while activating the continence muscles. She also said ok to keep running even if I get a little more incontinence later in day.

I'm hoping to hear from you other older runners in this thread.

Thanks,

Brian CA trail half marathoner

 

User
Posted 09 Nov 2024 at 17:01

Hallo Bryan, it appears that you are on the right track and improving. I don’t have the same issue as yourself. But a brief summary from my experience: I had the RP mid July. My First run was after 6/7 weeks (doc approved). It was a very slow 9 KM trot. I had to disappear into the bushes 12 times. So frustrating. However, this improved quickly. During the 5th run only twice. Thereafter not at all. Mid Oct I ran a half marathon without having to worry about incontince at all. Additionally, this week I have been able to sleep through from 12pm to 6am. I am really gratefull for this improvement. Once a day I perform a set of kegel excercises. On the down side, a bursitis infection has developed in the right hip area. So Running is not possible right now. The root cause is probably doing too much too soon, despite all the precautions I took. I know (!)…. So hopefully soon, I can start from scratch again… If I understood your message correctly, despite the incontinence, you can run without pain etc. so well done! Wish you all the best. Steve

User
Posted 10 Nov 2024 at 15:20

Hi Steve-thanks for your sharing. Congratulations on all the progress you have made. Sorry about the bursitis.

i start week 8 of recovery on Monday. I haven't heard anyone speak of this but if I start my trail run on a medium grade uphill very slow my heart rate immediately goes up to 150 which almost 100% shuts down the bodies pee response. I keep up the heart rate above 150 on the flat and downhill (2 to 3 miles) My legs, running body feels great after the rest from surgery, so it's that runner's high to be back on the trails again. I do wear pad but almost no leaking.

I'm doing better at night. One alarm set for three hours--wake up with strong urge but PV floor muscles are stronger now so I can make it to jon for a big pee with no leaks, then I sleep about 3 more hours and wake witthout alarm. Very minimal pee in pad overnight. Then I wear no pad from 4am until 9 when i sit and meditate and write, then go for walk or run.

The jury is out on my afternoon to evening slow leaking into pads while on kitchen duty. (I wish i had a maid) My wife has it worse than me with nerve pain from breast cancer treatments and can't use her arms. I tried that incontinence clamp for during my kitchen time. At first it worked nicely. Second time it didn't and I had misgivings about clamping down on my private fellow!!! My pelvic PT is giving me more exercises that integrate PF muscle with other muscle groups and movements, and she said to lay down for short rests with legs up on pillows in afternoon, evening. I hope i start to improve. On a leaky day I can go through about 4 pads from 2pm to 9pm, and it's not any great pain but a sucky feeling having the pee seep out.

I want to start training for our local, Santa Rosa, CA Annadel Half marathon next April. It's a very technical hilly rocky course. Last year I only ran the 10K of it because I was recovering from inguinal hernia surgery. I will have to do extra conditioning along with my running to  get legs strong enough to endure the course, but that should be good for my continence too, I hope. 

Best Healing to you,

Brian M from the California trails

User
Posted 10 Nov 2024 at 15:30

Hi---Thanks so much for your inspiring response! I'm at about day 50 and hope my leakiness in afternoons and evenings begins to improve. Not having incontinence during running (feels so great) as I described in another post, just keeping a balance to not overdo it and cause more leakage later in the day.

Brian M- from the California trails

User
Posted 10 Nov 2024 at 21:31
Some impressive reports in this thread, I am wondering if runners (and perhaps particularly trail runners) develop especially strong pelvic floor muscles which stand them in good stead after surgery.

If it is any reassurance my experience (not running but quite a lot of walking/hiking) is similar that my sphincters hold pretty well against exercise in the mornings but leaks become more of an issue as the day goes on. To be fair, that makes sense scientifically.

User
Posted 03 Jan 2025 at 23:25

Chipster - just wondering how the recovery is going - I'm a 61 year old - mad keen marathon runner - looking at RP early spring - is aiming for Chicago (good for age qualifier) over ambitious.

User
Posted 04 Jan 2025 at 00:27

Hi everyone. It’s now 14 months since my operation on 01/11/2023 and as previously reported still dry. I run most days and feel good. I do my pelvic exercises daily. I have some discomfort in my pelvic area but put that down to the exercises. Does anyone else have that pain?

User
Posted 04 Jan 2025 at 10:09

Hi Stantheman

Yes 2.5 years since my op I do get some discomfort in my pelvic area. I, like you, thought it was down to exercise. Perhaps some weakness. Glad you mentioned it because I thought it was just me. Its less frequent now though.

User
Posted 04 Jan 2025 at 11:00
Hi All - just a word of caution.

I was fine with activities such as cycling (v. hilly here in W. Yorkshire) for the first 12 months post-RALP, but now have developed an incisional hernia where the prostate was hoiked out. Waiting for an op in February to repair it.

Interestingly, the consultant said he sees quite a few of these, largely due to rushed internal stitching at the end of the RALP procedure. His view is that it's important to be aware of the risk, and exercise due caution - potentially indefinitely - particularly when lifting or deep stretching.

User
Posted 24 Feb 2025 at 23:25
RALP a few days before Christmas and started running 4 weeks later. I was a bit dizzy and probably pushed it a bit too hard, also had a small amount of leakage on the run.

8 weeks post and everything seems fine on road or trail twice a week, fitness has dropped off a little but still posting decent times and not having any leaking. I have yet to do anything over 10km but there is nothing to suggest that longer runs will be a problem. This being said I did go for a hard cycle a few days ago and saw blood in my urine which was a real shock. I think like many of us we feel as though we can get straight back on it but I'm learning that I need to be better at easing myself back into things. The body is still fixing itself and although we may want to be exactly the same as pre-op we can't immediately.

I'm off snowboarding in a couple of weeks and feel confident that assuming I don' get carried away (I'm not jumping) I will be OK.

 
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