Since my last post, my PSA is now down to 1.05... so the combination of enzolutamide and triptorelin seem to be working well to supress the existing cancer in my groin lymph nodes.
Nov 2023
This year is a year of two halves. As my PSA had come down to 0.3 in April, I agreed to halve my enzolutamide dose to two tablets per day. I felt much better - less fatigue, breathlessness. Unfortunately, my psa started to rise again. So two months ago, I reverted to full dosage (4 a day). The psa has continued to rise and is now 8.91. I'm waiting for a review by my consultant and hope to have an mri to establish where the cancer has migrated to.
Feb 2024
A psma scan in December showed cancer in two lymph nodes under my diaphragm - in addition to the seven in my groin. Consultant recommended I have a BRCA gene test which, if positive, means I can be treated with the same drug as breast cancer patients. Still waiting for the result ( 8 weeks since giving a sample). Meanwhile, my psa has climbed to 80.6 so I'm hoping to go on a clinical trial asap
Nov 2024
I didn't have the BRCA gene and by the time that result was known, my psa was 125. Many lymph nodes lit up on an mri scan.I then had 10 cycles of cabazitaxyl. After 5 cycles my psa was 40 but after 10 it had gone up to 123. An mri scan in October revealed that although my psa was high, most of the cancers in the lymph nodes had disappeared leaving only 3 with cancer! I am now on an additional hormone called stilbestrol and am due for a review at the end of the year. Feeling tired, poor appetite but very relieved.
Edited by member 05 Nov 2024 at 22:41
| Reason: Update