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Will I get it back?

User
Posted 28 Nov 2022 at 21:09

Reading this thread has been very valuable and helpful for me. I am 60. Very fit and in excellent shape, 7 months post op with nerve sparing. Two PSA readings since: 0.02 then 0.048.

Initially, I thought my erections were ok and improving but that was only whilst masturbating. And, really, total firmness was only achieved at orgasm. Previously, I had had very strong erections and a healthy sex drive. My libido has gradually decreased since the op. 

In the past month, I have started a relationship with a beautiful and very sexual woman. In that regard, I am in heaven. But in the bed: the first attempt was the road-to-hell. I was utterly distraught. Sildenafil did nothing but I thought that  it had previously worked with masturbation. She was very kind and understanding and incredibly emotionally wise, for which I am very grateful. But I felt stripped of my manhood.  We talked at the time and we made progress in some aspect. She had a good time but I felt extremely challenged and vulnerable. I still thought it could be the end of the relationship.

Two days later, after more talking and sharing of feelings, I have some perspective. I actually have so much to be grateful for. 

Reading Prostate Pete's post brought me to tears. Post op, I have become much more able to access my feelings and I am grateful for that. I am not ashamed to be scared, to cry, to tell people how I feel.

Thank you to all you good men for sharing.

 

Ok. Update. Nearly a month on.  I took a pill and purchased a penis pump (great alliteration) but neither the alliteration, nor the pump, nor the pill, did anything for me. I also spent coin on a cock ring, but that was of little help (!). 

Incredibly, and thankfully, my erections have started to function to some extent without all the paraphernalia.  Hooray! They are not consistent and do not stay the full length (!) but there is a clear improvement. Why? I am not sure.

Sex remains a challenge, psychologically and physically. However, I feel very encouraged that there IS change, improvement and further opportunity to explore sexual avenues that are, as yet, unexplored. My beautiful and understanding partner is key. We talk. We accept. We slow down. We are grateful.

Edited by member 16 Dec 2022 at 21:22  | Reason: update

User
Posted 29 Nov 2022 at 14:37

Tim, your story sounds a lot like mine (which is laid out in more detail, as it unfolds, in my blog at www.recoveringman.net) Like you I thought I had escaped the ED bullet in the first few months, but my erections began to fade around the same time as you mentioned. Also, I found from about 6 months to 2.5 years that it was easier to masturbate to orgasm than in particular to reach orgasm through penetrative sex. You describe very well that experience of only getting properly hard at the point of orgasm. For at least two and a half years I missed that eager firmness I'd had for the previous 50 years.

The good news I want to share is that now at nearly 3 years post surgery, my erections are harder and more reliable and orgasms through intercourse are much more frequent. And orgasms are at least as good as, often better than, before my prostate surgery. 

My wife has been very helpful in encouraging me not to overestimate the impact of my unreliable erections on her. She enjoys making love but she is probably a lot more flexible in the how of making love than I was - we have learned a lot about erectionless sex. You can read her story starting at 
https://www.recoveringman.net/include-partner-in-cancer-treatment-process/

User
Posted 29 Nov 2022 at 14:55

Thank you Mish for your response. I will take some time to look at your most valuable blog. The brief outline of your story gives me hope and strength. And I will certainly check out your partners blog too.

Much appreciated.

Tim

User
Posted 07 Dec 2022 at 09:50

As a new member this is my first post.

So why this conversation, well amongst many other unknown areas this is one i am keen to know more about my recovery and reading the many replies have certainly helped, many thanks Mish58 for starting it off.

i am very early days in since having nerve sparing RARP only 1 month ago, so the road sounds like a long one.

 

User
Posted 07 Dec 2022 at 09:53

Wishing you well Si14! Indeed it is a long process. My urologist kind of told me whatever I hadn't recovered by the 2 year mark was lost forever, but in real life I have continued to recover further during Year 3.

User
Posted 07 Dec 2022 at 10:08

I havnt had my follow up consultation yet where i have several questions for my consultant. But i see there is plenty of mentions around the use of a pump to maintain a healthy penis. Where do i purchase one or do i need to speak to a doctor first 

User
Posted 07 Dec 2022 at 10:59

Each person probably has their own favourite VED. Mine is the vacurect (www.vacurect.com). I've written about it on my blog www.recoveringman.net

User
Posted 07 Dec 2022 at 11:10

Originally Posted by: Online Community Member

I havnt had my follow up consultation yet where i have several questions for my consultant. But i see there is plenty of mentions around the use of a pump to maintain a healthy penis. Where do i purchase one or do i need to speak to a doctor first 

Ask at your post-op appointment whether vacuum pumps are prescribed on the NHS in your Trust and, if so, whether the surgeon prescribes it or whether you need to be referred to an ED clinic or andrology service. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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