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Cryotherapy Treatment - UK

User
Posted 07 Jul 2021 at 15:05

Yes PSA still low although on upward trend. Part of my thinking is that physically I am in better condition to deal with treatment now rather than as I get older with goodness knows what other medical issues.  I am avoiding more radical options for inverse reasons - I am generally fit an the thought of longer term impact on life quality now sis not attractive.

 

Also I am lucky enough that HIFU is open to me on the NHS which might not always be the case.

Edited by member 07 Jul 2021 at 15:06  | Reason: Not specified

User
Posted 07 Jul 2021 at 15:38

Hi Chris I replied on your other thread. It may be better if you copy Rogeka's reply there and keep all the posts on your own thread.

Dave

User
Posted 06 Oct 2023 at 16:19

Hi Guys,

i'm gleason 7 ,3+4 with  80% grade 3 lesions and 20% grade 4 lesions on the  front (anterior right of my prostate ,

i have been offered cryotherapy ...

does anybody who has had this done recenty  have a quick chat with me ?

User
Posted 06 Oct 2023 at 21:40

I had the similar HIFU treatment which worked brilliantly. The surgeon just felt that had a slight advantage in my case over Cryotherapy. Hope someone can share an experience of this treatment with you.  He was one of the leading people in the UK for HIFU so maybe that shaded his recommendation but there did not seem to be much in it.

User
Posted 06 Oct 2023 at 21:58

Hi Chrisreb ,

thanks for your reply,

my original referral was for  Hifu  ,but Hifu isn't and option for me ,

i was very interested in nanoknike ,  but the hospital i'm at doesn't do nanoknife, 

so it's either go for cryo or  start again

 

Edited by member 06 Oct 2023 at 22:13  | Reason: Not specified

User
Posted 08 Dec 2023 at 11:04

I would like to try cryotherapy but am told by my specialist that it would not be effective for my type of cancer which is almost identical to yours. Did your specialist have a similar conversation with you? She has advised that I speak to the focal therapy team about it and come back with an informed decision around the risk.

Now it feels like I'm back at square one. 

User
Posted 08 Dec 2023 at 14:47
Whilst two cases may appear similar, there can be differences which may make treatment with one form of Focal Therapy better than another or indeed not a good option overall. For example with HIFU, for which there is most experience in the UK and that is not vast only going back about 15 or so years, as well as it not being able to focus on some parts of the Prostate, calcification can be a problem making it less viable for example and cryotherapy will also not be suitable for everyone.

Your profile does not show details of your prognosis but if you are a candidate for Focal Therapy your cancer is thought to be contained within your prostate and the need for an urgent decision seems unlikely. I would suggest if this is the case you ask your expert for her reasoning assuming she is well versed on Focal Therapy. Otherwise get the opinion of somebody who is an expert on Focal Therapy as not involved Consultants are often prejudiced against it. It may well mean some delay but you would want to feel happy that you have thoroughly explored Focal Therapy before making your treatment decision.

Barry
User
Posted 08 Dec 2023 at 18:07

Hi Champion 65 ,

i was trying to avoid surgery /RT offered by my local hospital ,

 i was referred to be assess for HIFU , which is a no....no for me , but  i was told crytherapy was an option for me ,

sorry i can't be more helpful ..

i would go back and keep asking questions ,

best of luck with your journey

 

User
Posted 08 Dec 2023 at 18:27

It would be useful to know more about your type of cancer. What info do you have about your diagnosis? Is it the commonest form, adenocarcinoma, or a more rare type such as small cell or mucinous? What Gleason score have you been given - I think you have already posted that it is a G7 but is that a (3+4) or a (4+3)? How many positive cores were there in your biopsy results?

Sometimes, focal therapy isn't suitable because the tumours are not next to each other, or because the tumour is too close to the urethra or bowel wall. But I agree with Barry and your urologist; speak to the focal therapy team so that you know one way or the other.

It also has to be said that focal therapy isn't always a permanent solution - they are aiming just to treat the one or two main areas of cancer and so there is a significant chance of recurrence / need to repeat the focal treatment or have RP / RT in the future

Edited by member 08 Dec 2023 at 18:39  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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