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Mile stone,

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User
Posted 03 Jul 2021 at 09:17

So PSA is definitely on the rise again, every 4 weekly blood test it’s up, now 4.3, letter from Onco to GP, my copy, says another Bone Scan soon as it seems that the Enzalutamide isn’t now working, so could be more Chemo! Last had 14 years ago! Can’t say I’m looking forward to it, but any treatment is better than a box!!

Chris.

 

ps, Lynn, I’m planning 2023 hols now, 2022 is all booked but can always fit another one in!

Edited by member 03 Jul 2021 at 09:19  | Reason: Not specified

User
Posted 03 Jul 2021 at 10:22

Hi Chris.  Just another pothole to deal with on this long old highway you're on and it looks like the repair team are on the case. as always.

You are like the RTs you used to drive, you just need to be put into "Aldenham" every now and then.

Best wishes to you both

Roger
User
Posted 04 Jul 2021 at 08:33

Good luck with whatever the next treatment you have, looks like you and Tony started your journeys at the same time, Tony went to the Doctors Sept 2005 when we got back from a holiday in thailand due to flow issues. he was diagnosed Dec 05 at age 61 and will be 16 years in Dec since diagnosis.

 

regards Barbara/

User
Posted 22 Jul 2021 at 00:07

Yes Barbara, what treatment has Tony had?

Well folks, it has risen again 4 weeks later to 6.0 as of yesterday, and I had another Bone Scan today, and I actually get to see my Oncologist next month, but that will be after yet another blood test!

Chris.

oh, and keep on with the Enzalutamide, Dexamethasone and Zoladex!

Edited by member 22 Jul 2021 at 00:08  | Reason: Not specified

User
Posted 22 Jul 2021 at 08:06
Hi Chris

Tony started with HT and RT back at the start stayed on the Hormones for 2 yrs back on hormones in 2012 after 3 years off them and then intermittent HT until feb 17 when he went back on HT permanantly, ,Biculamatide added Jul 18 stopped in Oct as did not work, 10 rounds of Docetaxol Oct 18 to May 19,Consolidation RT to para aortic lympth nodes dec 19 for 5 weeks , Abiriterone and prednisalone May 19 to march 21, now on Diethylestilbestrol since march as he could not have more chemo. Tony also has CKD and has recently started dialysis.

good luck with the Scan

regards Barbara

User
Posted 05 Aug 2021 at 14:45
UPDATE

I’ve just had the Clinical Report of my recent Bone Scan, 21.07.21 and it just shows that there is light, glimmer, at the end of the tunnel.

“Compared to previous Scan in February 20, there has been improvements in Bony Metastatic Lesions, with some disappearing and others reduced. No new Lesions”

BUT, the PSA is still going up, it is now 6.0

Chris.

User
Posted 05 Aug 2021 at 16:35
Chris it’s still very positive news and glad for you. I know each case is different but my psa was up to 990 ! I’m generally good fingers crossed 🤞
User
Posted 05 Aug 2021 at 19:36

good news about no more spread etc. hopefully the PSA rise is just a blip.

 

regards Barbara

User
Posted 05 Aug 2021 at 21:29

Chris 

Some good news in there, so keep going. 

Thanks Chris

 

 

User
Posted 06 Aug 2021 at 18:40

That sounds like good news 
Regards Barry

User
Posted 20 Nov 2021 at 13:59

No Barbara, essexbabe, it wasn’t a blip as PSA is now 19.94, 12.55 four weeks ago!

Next bloods, 2nd Dec.

16years since dx on 5th Dec

Next Oncologist chat, Prof, 9th Dec, to find out what, if anything, he decides to next as Oncology Nurse said, a short while ago, that there is not a lot more they can do for me.

 

Chris.

Edited by member 20 Nov 2021 at 14:51  | Reason: Lunch.

User
Posted 21 Nov 2021 at 09:01
So sorry to hear that Chris good luck for your appt on the 9th Dec, lets hope he has something up his sleeve.

Barbara x

User
Posted 21 Nov 2021 at 14:19

Originally Posted by: Online Community Member
So sorry to hear that Chris good luck for your appt on the 9th Dec, lets hope he has something up his sleeve.

Barbara x

I am sure we all share this sentiment

Barry
User
Posted 05 Feb 2022 at 08:39

I actually met my Oncologist yesterday and he said that the latest Bone Scan shows spread, more Lesions, and PSA is over 30, therefore stop taking Enzalutamide as it’s not working, can’t remember what he said about the Dexamethasone which the Hospital prescribes at the same time, but I start Taxotere at the end of the month, indefinitely.

I have asked for the Bone Scan report and CD, now wait for dates to start.

Continuing with Ibandronic Acid for 5days a week and Zoladex every 12 weeks.

Chris.

PSA was 34.63

My last Chemo, Taxotere was in July 07.

Edited by member 07 Feb 2022 at 14:59  | Reason: Figures.

User
Posted 05 Feb 2022 at 09:26

Hi Chris,

  sorry to hear your news and hope the new treatments work for a long while, I have only just realised that you where actually diagnosed Dec 2005 the same as Tony, he was the end of Dec.

 

all the best

Barbara x

User
Posted 05 Feb 2022 at 11:12

H Chris ,

Sorry to hear the latest news , are you still feeling sh*** ,is chemo next,

take care 

Regards Barry

User
Posted 07 Feb 2022 at 15:02
Barry, Any treatment is better than the Box, no I’m not concerned about the Chemo, especially if it keeps me alive for 2 Grandchildren Weddings in August, either end of the Month. And dare I hope to see my 80th next year!

Chris.

User
Posted 12 Feb 2022 at 11:31

Enzalutamide and Dexamethasone both stopped now.

Waiting for Chemo start date.

I’ve just been looking at my Bone Scan Skeleton images which shows widespread Mets from Knees, just, to Skull, with worse areas in Hips/Pelvis, Spine, Sternum, Shoulders, neck, Face and Skull!

Oh well!

I am still here!

Chris.

PS, I’m not looking for sympathy, just to show what’s happening to me.

Edited by member 12 Feb 2022 at 11:33  | Reason: Missed an area.

User
Posted 12 Feb 2022 at 12:54
Chris you're like an RT, you'll go on and on forever and the guys at the Aldenham works will keep your chassis in good trim and fit for many more miles of service.
Roger
User
Posted 12 Feb 2022 at 13:13

Roger, but even their chassis fail eventually?

Chris.

 

PS, last RT was 06, and last Chemo was in 07.

Edited by member 12 Feb 2022 at 13:14  | Reason: Not specified

 
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