Question about ED recovery

User

Posted 02 Apr 2021 at 11:00

Thanks very much Mish. It's a shame Urologists and or ED Nurses don't give such information.

Cheers

Bill

User

Posted 02 Apr 2021 at 11:34

Originally Posted by: Online Community Member

Thanks very much Mish. It's a shame Urologists and or ED Nurses don't give such information.

Cheers
Bill

There's actually a lot of wonderful information about, and like you I struggled to find it. I've started a blog at https://www.recoveringman.net/ to share some stories and I invite you and others to visit and add your voices.

Warm regards and best wishes

Mish

User

Posted 08 Feb 2025 at 19:56

Hi everyone,

I have not posted anything for a while, but today I strongly felt I had to share a message of hope with my fellows PCa patients.

The reason I stopped posting in 2023 is that I came to the conclusion that my recovery had plateau. For example, my incontinence was essentially gone but I was unable to have natural erections. I had spare-nerves RP in December 2020 at the age of 54 years old. PSA levels are still below 0.1ng.

I stopped taking Taladafil a couple of years ago as it did not make any difference. For the last 3.5 years I have been using the pump and also penis injections (caverject). Both, pump and caverject work well.

Around 4 weeks ago I woke up in the early morning with a natural erection. This morning, once again I woke up with a natural erection, to my surprise. Twice in 4 weeks; this is completely new.

I decided this morning to take a Tadalafil tablet. This afternoon, my wife and I had sex for the first time in 4 years completely unassisted: no pump, no caverject injection .

I find this really surprising, and rewarding! It means regeneration continues taking place even 4 years after surgery. Therefore, I will continue taking tadalafil for the next 2-3 months, to check whether further improvements are possible.

I hope this message brings hope to those of you who, like me, are thinking that ED cannot improve after 2-3 years post-surgery . It definitely can.

best wishes,

HenryBB

User

Posted 08 Feb 2025 at 20:06

Thank you very much Henry. That brings hope to me, and I suspect to many others.

Cheers mate.👍

Edited by member 08 Feb 2025 at 20:06 | Reason: Not specified

User

Posted 08 Feb 2025 at 21:01

Henry, really pleased for you, great post and gives credence to my advice of "never give up".

Thanks Chris

User

Posted 09 Feb 2025 at 01:02

This is good to hear.

I have heard the suggestion that any recovery beyond 3 years is due to completely new nerves growing, which takes about 3 years to start giving any results. Unfortunately, this is a relatively rare occurence, but does happen. It's good you maintained penile health in the mean time with the pump and injections.

Edited by member 09 Feb 2025 at 01:04 | Reason: Not specified

User

Posted 09 Feb 2025 at 08:55

That’s amazing news Henry, it must have been very special for you and your wife.
i didn’t have surgery but it was a really nice feeling when, after finishing HT, my morning wood returned a few months after. I still take daily Tadalafil.

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