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Went for Prostatectomy

User
Posted 29 Mar 2021 at 17:21

Your bladder is a muscle and while you had a catheter it wasn't being exercised.  That could be a reason for flow not to be too big.   

On the other side, I don't know if you feel like it's being constrained but if it doesn't heal properly it is possible to get scar tissue that constricts flow.  It's one reason to take it easy and not strain the wounds.   Scar tissue only develops after a few months normally so it's probably not that now but there is plenty of healing to be done.

I don't recall how mine was straight after TWOC but I do know that flow is now huge.  Removing the prostate is like removing a narrow pipe and fitting a big one to the tank.

Edited by member 29 Mar 2021 at 17:25  | Reason: Not specified

User
Posted 29 Mar 2021 at 21:22

Marty 

As mentioned there is still probably debris slowing things down and possibly still a bit of swelling. So don't worry just yet, watch out for signs of an infection, smelly urine etc.

There are a few of us on here who had issues with migration of surgical clips and strictures or scar tissue problems.A few months post op a cystoscopy found a hem o lock clip floating around in the bladder, later another clip had migrated into the Urethra. It is supposed to be quite rare, but not as rare as we are led to believe.

I got rather obsessed with monitoring my average urine flow. My first indication of an issue was smelly urine.

Thanks Chris

 

 

 

 

User
Posted 30 Mar 2021 at 10:53

Thanks for the advice - love this forum.

Joe H, good to hear from you. Fitness is everything and so is weight AFAIC. Being fit has helped me throughout and I started the Kegel regime as soon as I was sure that prostatectomy was the way forward.

Here we go in answer to your Qs:

1. Gleason (3+4) 7 confined to right lobe of prostate, discovered in all 6 biopsy 1cm cores taken on that side. Longest core sample length 9mm, shortest 3mm indicating disease. Graded T2c N0 M0. The c means ‘from biopsy’ - Decision for surgery option was based on two important factors. First - MRI indicated a contained tumour. Second - I’ve suffered from prostate infections, proven through urine cultures and DREs, for many years. Prostatectomy has dealt with both issues. It’s nearly 2 weeks since op and the relief from the supra pubic pain associated with chronic prostatitis is joyous. The cancer was symptom free. Finally, pathology/histology will tell the full story

2. Nuffield Cambridge Hospital - 18 Mar 21 - My choice through Google - and reputation - linked with the answer in Q5

3. Not long, Biopsy 3rd Feb 21

4. No

5.  My Company Scheme is footing the bill

6.  Yup, I elected for the Surgeon who leads the Cambridge team. Due diligence, through contacts, revealed has Don status amongst DaVinci specialists. Superb . . . 

Finally, all is well apart from urine stream, which is getting better. Will report the pathology results in due course. In the meantime, Kegel exercise and taking things very easy. Not considering a return to work until June at the earliest.

Best to you Joe, and everyone else too

Marty

Edited by member 30 Mar 2021 at 11:06  | Reason: Cocked up my answers! πŸ˜‚

User
Posted 30 Mar 2021 at 11:15

Marty
Thanks for your answer - much appreciated

One more query - sorry to be a pest- how long did you wait from option to have surgery to having it done??

They are telling me it might be 6-8 weeks at University College London

Cheers
Joe

 

User
Posted 30 Mar 2021 at 15:38
You ain’t a pest Joe, were all in this together. I acted quickly because I was fortunate to have the private route available. From Biopsy Result to Da Vinci Robot was just under 5 weeks.
User
Posted 31 Mar 2021 at 10:37

Marty - thanks mate for the information - lets hope we all get through this - glad youre on the mend... me next?

Cheers

Joe

User
Posted 04 Apr 2021 at 08:39

Update. Total bladder control, whoopee. Previous worry about flow has subsided given a healthy stream has returned with gusto. Nocturnal control also spot on. Down to 3 visits per night with urgency reducing and bladder capacity increasing judging by amount of pee passed.

Lucky to have had double nerve sparing op. Thoughts are moving to ED, but not before full pathology report etc will I start down the full penile rehab route.

Hope everyone is well. Bio updated to reflect the fact I’ve just realised I could update it!

Edited by member 04 Apr 2021 at 09:04  | Reason: Bio update

User
Posted 30 Apr 2021 at 12:06

Well, yesterday, 6 weeks on from RRP he rang and gave me the news - there was no bad news:

As follows:

PSA undetectable - <0.04
Final pathology - pT2cpNxM0
No capsular spread - clear margins. Evidence of prostatitis in sample tissue - It was the recurring prostatitis that got me to the urologists for investigation in the first place
PSA surveillance only - in 4 months

Feeling lucky, prostatitis symptoms all gone obviously, bladder capacity growing

SomaErect II pretty good

Hopefully, reaching for the sky again soon

Edited by member 30 Apr 2021 at 12:11  | Reason: Spooling

User
Posted 30 Apr 2021 at 17:30

Great news Marty

Onwards and upwards πŸ˜‰

User
Posted 01 May 2021 at 22:33

Excellent. 

Dave

User
Posted 28 Aug 2021 at 23:11
Back flying

PSA undetectable

Marginal stirrings

User
Posted 31 Aug 2021 at 00:46

All looking good Marty. Just read your flying career in your profile, quite interesting. I stick with gliding. At least nobody's trying to shoot you down. 

Edited by member 05 Dec 2022 at 17:41  | Reason: Not specified

Dave

User
Posted 09 Jul 2023 at 21:22

Hi Marty, you may recall, we have communicated via the Veterans site on fb and you recommended this site and many thanks for that. I've read your bio and your story. Respect mate....respect πŸ‘ 

I'm now 4 days home from RP. Reality has certainly kicked in. Hating the catheter and wee bags routine.  TWOC due next Wednesday 12th. My main immediate concern is the incontinence bit. How the hell can someone who fills the night bag each night NOT swamp the bed after the catheter and bags are taken away! How did you cope?

Anyway, take care and once again thanks. πŸ‘βš“οΈπŸ‘

 

User
Posted 09 Jul 2023 at 21:48
It is important to have adequate fluid but some people reduce the need to pass urine to such an extent at night by stopping intake of fluid by a certain time which will vary depending on time you go to bed/sleep.
Barry
User
Posted 09 Jul 2023 at 22:53
With the catheter I filled the night bag with a good 2 litres almost every night but when it was removed I only have an occasional dribble when lying down, easily coped with a pad or a pair of the lightweight incontinence pants.

I wake up wanting to go and I have a urinal jug next to the bed - swing my legs out to sit on the edge of the bed, grab the bottle and drop the penis into it and then stand up - this starts the flow without thinking about it (being half asleep).

It started at 3 times a night and now is down (after 7 weeks) to twice or sometimes just once.

User
Posted 09 Jul 2023 at 23:10

Sam , I have a permanent suprapubic catheter so I see each morning how much urine I produce. My out put varies from 300 or 400  up to 1500 mls over night. A glass of wine drastically reduces my overnight production.

Before diagnosis and surgery I would never produce 1500 mls overnight. I suspect the catheter has an effect on urine production.

Make sure you have a variety of pads ,but if you have to buy them don't get too many, you may not need many. Get a waterproof bed sheet or get some incontinence bed pads just for your side of the bed, I got bed pads from the hospital. I did alot of hotel nights and had a pad in my pants , a pair of tena4 pants over them. I put an incontinence bed pad in the bed and a towel on top.  A bit over top and I never leaked, but it saved any chance of wetting the hotel bed.

Having said all that I was 99 percent dry 4 days after catheter removal.

Instilagel or hydrocaine will help relieve discomfort in the penis. I always made sure I was well hydrated before my twoc particularly important in the current hot weather.

Hope all goes well.

Thanks Chris 

User
Posted 10 Jul 2023 at 15:30

Hey Sam, you read my Bio, nice one. Old Crabfat here has done some aviation over the years I can tell ya’ . πŸ˜‚

Some great advice here Sam from the other chaps. Everyone is different. My own case has been helped by being fit, relatively straightforward RP and total bladder control which I’m convinced is down to two things. A fantastic surgeon and pelvic floor muscle preparation prior to the op.

Immediately post TWOC, for two weeks or so, I restricted my fluid intake from about 6pm onwards. I still peed a lot at night, but in small amounts. I never strained just relaxed to allow gravity to do its work.  In no way did I want to compromise the wound healing in the bladder/urethra area.. I felt there was always a little amount of urine retention but not enough to make still want to pee. I’ll admit also for the first few nights, I slept on a waterproof mattress cover (wife insisted) and wore thin Tena pants in a light pair of shreddies. Very little leakage if at all, I’ve been lucky. It will all seem quite dramatic at the mo, but again, trust me, your body given time, is a masterpiece of biology and will heal beautifully.

Don’t be too fussed about the ED side of things to start with. I started with SomaErect II pump after about 6 weeks - a great piece of kit. I have no idea if you have a partner to share all this with, but mine has been FANTASTIC in helping me rehab. It’s taken time, but our sex life is pretty good - it’ll never return to the heady younger days of sheer spontaneous abandon, but hey, I quite enjoy the planning that goes into our current “regime of enjoyment!”

Edited by member 10 Jul 2023 at 15:32  | Reason: Not specified

User
Posted 29 Jul 2023 at 13:19

Hi again Marty, thanks for that. Well I'm just over 3 weeks post op now. The TWOC went OK albeit I was a tad nervous having the catheter removed dead on 7 days from surgery. The nurse who removed it was very good however, the flood gates opened and I thought crikes wtf I can't stop this! After I got home though things settled. Flow rate has been good which I'm relieved about after reading your probs. I am practicing stop start when urinating to aid control. Pelvic Floors....sigh what faff but needs must eh. The nurse said do 15 minute sessions 4 times daily which I'm doing. I'm not wetting myself and dry mostly at night but ohhh the involuntary dribbles during the day are doing my head in. My wife Kathy says it's still early days and that I'm too hard on myself. Doing the walks and some very light stretching exercises. The bullet wounds have healed without any issues. Started applying vaselin on the scars. I'm still awaiting results from the consultant with the histology report but a letter came through stating a telephone appointment had been made for 21st August, which I find is quite lengthy (7 weeks after surgery). How long did you have to wait coz that's mental torture in my book! Anyway, as we warriors say....onwards. All the best. Sam

Edited by member 29 Jul 2023 at 13:39  | Reason: Spelling mistakes

User
Posted 29 Jul 2023 at 13:33
Hi Sam, sounds like you are in the same position I was 7 weeks ago - the good news is that I have incontinence under control but have to remember to hold it in when lifting or sneezing otherwise I get a dribble. One pad lasts all day and is usually 99% dry at the end of the day. No nightime leakage at all.

My histology consult was 6 weeks post op so you are on the same schedule.

User
Posted 29 Jul 2023 at 13:49

Hi Steve, thanks for that. The trouble I'm finding is that these dribbles are involuntary and they just creep up unsuspected.  Mainly when I'm either standing or getting up from a seated position. Have you any idea why this is happening coz even if I empty my bladder, a minute or so later....dribbles occur! Very frustrating.  

 
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