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what can i expect next

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User
Posted 07 Sep 2021 at 22:32
That’s good to see Gaz - I think just accept that it is okay to feel angry, confused, resentful and a bit abandoned while also feeling lucky and grateful but unlucky and guilty for not being more grateful.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Sep 2021 at 23:09

Couldn't have put it clearer myself, Lyn...any of that gin left? 

Dave

User
Posted 08 Sep 2021 at 00:33
πŸ˜‚πŸ˜‚πŸ˜‚

I can't use alcohol as an excuse - I have been teetotal my whole life! I thought I had communicated the barrage of emotions rather well?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Sep 2021 at 08:48

got my 4th decapeptyl injection on Friday still have occasional hot flush but tiredness gone been told I need these for two years even after the radiotherapy wondering if anyone else has these for a long period also gaz

User
Posted 09 Sep 2021 at 09:51
Post treatment ADT seems to range from 0 to 3 years with the general consensus being 3 years is to long and zero isn't long enough.

It's a question for your ONCO for your particular case.

User
Posted 09 Sep 2021 at 10:52

Yes, I was on Zoladex (similar drug) for two years in total, six months before RT and 18 months after. The side effects were not dreadful and with a clear end date I was fine. I would not be so keen on being on it for life as happens to those with advanced cancer.

Dave

User
Posted 09 Sep 2021 at 20:25
I was due to be on HT for two years (6 months before RT, 18 months after), but my oncologist was happy to agree to me finishing after 18 months when I suggested this to him. He said that trial data shows negligible difference in long-term outcomes between men who are on HT for 18 compared to 24 months.

Best wishes,

Chris

User
Posted 09 Sep 2021 at 20:29

Thanks Chris much appreciated πŸ‘

User
Posted 11 Sep 2021 at 10:51

Just had 4th decapeptyl injection onco says 4 more next year then just 6 monthly PSA test hopefully back to some normality god willing πŸ€” hoping everyone is also doing ok gaz

User
Posted 19 Sep 2021 at 08:59

Anyone experienced water infections with hormone therapy seem to be having regular problems 

User
Posted 19 Sep 2021 at 12:43
More likely that you are not emptying your bladder properly- is your prostate enlarged?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Sep 2021 at 13:24

Thanks Lynn got onco appointment this week feeling fine just seem to have had a couple off UTI since finished radio therapy 

User
Posted 19 Sep 2021 at 15:59
Radiation cystitis? - have you tried cutting out all caffeine? Drinking cranberry juice (proper stuff, not the cheaper 'made from concentrate')?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Sep 2021 at 17:03

On cranberry juice at moment don't drink coffee feeling better today thanks Lynn

User
Posted 25 Sep 2021 at 21:18

water infection unrelated to treatment all sorted now you sometimes relate your problems to PC  you don't realize other things may cause them. All sorted now with antibiotics  onwards and upwards good luck to anyone else battling this desease πŸ‘

User
Posted 03 Oct 2021 at 22:40

Things are slowly improving got rid off the water infections still some stiffness but onco says expected on finished 37 lots off radio therapy in April last PSA test 0.01 so I suppose a lot to be thank full for good luck to anyone else battling this horrible desease πŸ‘ gaz will be 60 on Saturday didn't think I would make it when told about the gleeson 9 last October πŸ™„

User
Posted 03 Oct 2021 at 23:36

Great news πŸ‘πŸ½ 
Hope you have extra special celebrations on Saturday for your 60th. Have a great birthday, I’m sure they’ll be many many more 

User
Posted 04 Oct 2021 at 19:54

Thanks Elaine for the birthday wishes hope you are ok too and good luck to everyone else on the forum gaz πŸ‘

User
Posted 15 Oct 2021 at 21:09

Latest PSA still 0.01 hope it stays low when hormone therapy stops next year  hopefully a less stressed Christmas this year really bad time last year good luck to all with their treatment gaz πŸ‘

User
Posted 15 Oct 2021 at 21:38

Great news Gaz πŸ‘πŸ½ Hope you had a wonderful birthday πŸ₯³ 

 
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