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My LDR Brachytherapy Story

User
Posted 22 Jun 2023 at 17:06
I haven't had any major problems.

About 12 months post procedure I had a routine bowel cancer screening and blood was found in my sample so I was booked in for a Colonoscopy. The result of this was that they found 'Radiation telangiectasia and pallor of mucosa anterior low rectum due to brachytherapy' it boils down to radiation burns that will heal. There was no bowel cancer.

Around this time I found I had soft stools and generally needed to go to the loo first thing in the morning, but I didn't have to rush to the loo or anything like that. Some time after visiting the loo and cleaning myself with toilet paper I found my bum was irritated. Cleaning my bum again I found there has been some leakage, not enough to mark my underwear but it irritated my skin. I could clean myself with soap and water but a couple of hours later my bum would be irritated again. I would them wash myself again and generally I would be OK until my next movement. I spoke to one of the nurses about this on the routine follow up and she said it was mucus leakage and prescribed Ispaghula Husk granules that you mix with water and take once or twice a day. I can't really say if they did any good as although I took the medication a few times things seemed to have sorted themselves out for the most part now.

I've had no problems with the water works or with 'Percy Filth' (you have to be a certain age to understand that). I used to have to get up at about 4 oc to go for a wee, this was the same before the diagnosis, but very recently I don't need to get up until about 7 oc.

Apologies if I have been too graphic and I hope it is of some benefit to others.

User
Posted 03 Aug 2023 at 12:46

This has been a really helpful post.  I am in a similar situation and was leaning towards Brachy.  The post and replies have helped me opt for this option.

Thank you for sharing.

User
Posted 15 Aug 2023 at 20:27

You are welcome. I am pleased my post was of help. It was difficult decision to make initially on what treatment to choose, as one of the nurses said said at the time, normally it is the hospital that is telling you what treatment you are having. One this occasion it is down to the patient to make a decision that they feel comfortable with.

User
Posted 19 Jun 2024 at 09:06
I have just had my 3 yr PSA test and it is now down to 0.13.

The hospital is pleased with my progress and will drop from the 6 month follow up consultation period and now I will have one annually although I will have a further PSA test in 6 months.

The bowel problems I mentioned a year ago have now cleared up and i am back to normal.

User
Posted 19 Jun 2024 at 11:32

Hi ,

Good to see another Brachytherapy  going so well it will help other members with their choices.

I am coming up to eight years from brachytherapy in September and doing well.

John.

User
Posted 20 Jun 2024 at 17:48
Continuing to sound extremely positive VC, congratulations!
User
Posted 19 Oct 2024 at 20:53
Last of week I found blood in my urine, I had no pain or any discomfort. I contacted my Brachy nurse who said it was probably my prostate bleeding but to go through my GP who she said would check for any UTI's and take bloods for tests. She also said blood in the urine is taken seriously and there is a NHS fast track investigation that consists of a CT scan of my kidneys down and also a flexible cystoscopy to check my urethra and the inside of my bladder.

The bleeding stopped after 4 days and started again Thursday. Just to reassure you it is not major bleeding just a light rose colour.

The test results came back after a couple of days and were all OK. My PSA was 0.114

Yesterday I had the CT Scan and cystoscopy. There were no problems on the CT scan and the cystoscopy confirmed the blood was coming from my Prostate, the bladder was OK. The doctor said that Brachy treatment can weaken the walls of blood vessels in the prostate. If it becomes a problem they can cauterise the vessels.

User
Posted 31 Jan 2025 at 14:59

Hi VC101103

thanks for posting, I’m currently favoring Brachytherapy as a treatment for me and having spoken to the Radiologist this morning am now fairly certain that’s the way I’ll go.

Briefly, I’m 65, diagnosed Nov 23, no problems but keeping an eye on things as father had PC.  1 year AS then after a rise in PSA to 8.9 and a second set of biopsy results the recommendation changed from AS to treatment.  Currently Gleason score 7 (3+4) and 6 of 34 samples taken were positive.

It’s encouraging to see positive posts especially where the poster is a similar age with a similar initial diagnosis.

If I do go ahead, which is dependent on a successful flow test, it should all be completed in about 8 weeks.

Thanks again to you and Johntheprint for posting your stories, good luck and hope the results stay favorable.

John

User
Posted 31 Jan 2025 at 15:11

Hi John,

I am pleased you found my experience helpful.

My flow was initially too low for Brachytherapy as part of the prostate was restricting flow at the bladder neck. However they performed a mini TURP about 6 weeks before the Brachy procedure and I was peeing like a teenager again after that!

 

User
Posted 31 Jan 2025 at 18:29

Hi VC, hopefully the flow test will go okay 🤞I’ll update when I know and yes your post was very helpful.

User
Posted 02 Feb 2025 at 21:14
Hi Chicken Feet,

I had LDR Brachytherapy two and a half years ago click on my avatar for details. A development which occurred last September was an acute kidney infection and I was in hospital for five days. I was talking to a retired urologist and he said that I can probably expect more of them.

I was peeing like a horse up until then ( a Shetland pony is a horse is it not 🤔😂 ) when I started feeling very tired and running to the toilet every two mins and not producing any urine. Once the rose coloured pee came out I went straight to A&E.

Apart from that recent incident I found the LDR Brachytherapy procedure and recovery very straight forward.

Rgds

Dave

User
Posted 02 Feb 2025 at 22:43

Thanks Dave, always good to hear from many people with different experiences, your starting point was fairly similar to where I am so a useful comparison for me, many thanks and good luck with your continued recovery, regards, John

User
Posted 09 Feb 2025 at 09:48

Hi all.

I've found this conversation very helpful.  I'm 51, Gleeson 7, 3+4 with a psa of 8.4.

I'm getting brachytherapy done on the 26th of this month and I'm nervous about the future and what I'll be afterwards,  but the candid posts good and bad are great.

I'll let ye know how I get on.

 

Thanks

 

Edited by member 09 Feb 2025 at 09:51  | Reason: Not specified

User
Posted 09 Feb 2025 at 10:30
Hi Bryaner,

Sorry you're here but as you've found, it can be a useful place for great info, advice and perspective!

I was 48 when I had LDR Brachy nearly 2 years ago, also 3+4 and a very similar PSA.

Please don't worry about the procedure, I found it quite noticeably less traumatic than a biopsy and recovery from it very similar/easy.

I was immediately capable of normal life, Alfusozin prescription dealt with the immediate feeling of minor urinary urgency for the first few months (provided you remember to take it) but if anything like me, by 6 months, you won't notice any difference pre and post procedure.

ED has also been a non issue. My consultant has prescribed me the lowest possible dose of Tadalafil every couple of days and whilst I could go without, I take it from time to time as it unsurprisingly rolls back the clock and who wouldn't want to feel like a teenager again 😀

Dry orgasms take a bit of getting used and the initial sensation isn't as pleasurable as normal for maybe a year but I think that is once again down to the initial radiation battering and inflammation of your prostate. It's not at all bad but months further down the line, you'll come to realise everything becomes a lot more normal again sensation wise!

Be prepared for a bit more lethargy than usual, again for the first 6+ months. Nothing that will stop you in your tracks but I found the temptation to sneak off for a mid afternoon 30minute snooze when I could quite appealing!

Finally, hopefully you will be like the majority of men whose PSA just falls in a straight line after the procedure but be aware and prepared for a fairly unexplainable phenomenon called 'PSA Bounce' which is much more common in young men and can actually result in higher short term PSA levels for a year or more - that can be quite mentally draining if you allow it - you can find some more info on it in some of my other posts on here.

That may all sound quite a lot to consider but it's really not - if you have half the experience I have, I'm sure you'll find it a walk in the park.

Good luck!

User
Posted 09 Feb 2025 at 11:06

Paul.

I can't thank you enough for such a detailed and informative reply,  you have restored my faith in humanity. 

Thanks for letting me know about your experience on the procedure and the aftermath,  it really gives me hope for the future. 

The urologist was very keen to to whip it out saying most men your age get it out, but I wasn't keen at all on the post op side effects hence my choice of ldr brachytherapy. 

Fingers crossed I come out on the far side similar to yourself. 

Thanks so much again.

Bryan.

Edited by member 25 Feb 2025 at 20:07  | Reason: Wrong name

User
Posted 09 Feb 2025 at 11:06

Hi Bryaner

very sorry that you find yourself here, hope the treatment goes well and all the very best for the future, regards, John

User
Posted 09 Feb 2025 at 11:13

Thanks so much John.

 

User
Posted 25 Feb 2025 at 07:57

Hi Bryan, good luck for tomorrow, hope it all goes smoothly for you, regards, John

User
Posted 25 Feb 2025 at 08:23

Thank you so much John.

I'm at home today with two sachets of picolax to consume, so it should be an interesting day :)

Thanks again for your kind words, they really mean so much at this time.

I'll keep all of ye updated on how I get on .

Kind regards, 

Bryan

Edited by member 25 Feb 2025 at 08:30  | Reason: Not specified

User
Posted 25 Feb 2025 at 20:37

Hey Bryan,

I never had to do the Picolax thing but hope you've survived!!

All the best for tomorrow, it'll be a breeze, see you on the other side! 

Cheers!

Paul

 
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