I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

Totally new to all of this

User
Posted 12 Dec 2021 at 23:09

HI Mike,

Thank you for the reply, my main concern is that I will lose my ED functionality and that I feel I am too young for that. I am told I have bilateral cancer and that although it is 3+4=7 on the Gleason scale, I am scared about the impact of Surgery.

Edited by member 12 Dec 2021 at 23:09  | Reason: Not specified

User
Posted 12 Dec 2021 at 23:20

Hi Zumerest,

Firstly, thank you for sharing your experience. It is really helpful as I am looking to seek additional information regarding Brachytherapy this week before my proposed operation on Thursday.

I have also been made aware of MR-Linac, and am wanting to see if this is something that I could be viable for.

I am left with the option of deciding on whether to defer the operation planned for this Thursday and look into Brachytherapy or to carry on as planned and have the operation. 

I agree a difficult decision to make.

User
Posted 13 Dec 2021 at 03:05

Quote:
David Weston;26256

I am left with the option of deciding on whether to defer the operation planned for this Thursday and look into Brachytherapy or to carry on as planned and have the operation. 

I agree a difficult decision to make.

If you need more time to investigate and come to a firm decision on a treatment, you could ring your hospital today and cancel your operation, although this could lead to quite a wait if you eventually decide that you want to go ahead with surgery.  This then gives the surgical team the opportunity, albeit at short notice, to pre op somebody else to take the slot you were allocated on Thursday.

Barry
User
Posted 13 Dec 2021 at 17:18

Hi David

I sympathise with your dilemma, I went through the same 7 years ago. This time round there are very few options for me, so it's (sort of) easier!

I did a lot of research when I was first diagnosed and opted for Brachytherapy for the following reasons:

- less chance of incontinence

- less chance of erectile problems (although as time goes by this can become a problem with brachy)

- I have a stomach operation when I was 17 and have a large scar. I was told that because of this a prostatectomy was trickier and they may have to revert to open surgery during the Da Vinci procedure

- I worked for myself and recovery from Brachy was quicker

It has to be remembered though that this judgement was made 7 years ago - technology, experience etc has come on a lot even in that time. Certainly now the cancer has returned removing the prostate is much more tricky due to radiation 'damage' from the brachy.

Re. Prostatectomy: Unless they have told you otherwise, with nerve sparing treatment I would have thought that you have an excellent chance of erectile function returning reasonably quickly. Also, because of your age I would also expect incontinence not to be an issue from a month or so after the procedure. Your surgeon should have spoken to you about the prospects re. both ED and incontinence. Did he say how much nerve sparing they think they are able to do (e.g. 50%, 100%)? I would also imagine that if you have strong erections now you it is much more likely erections will come back after surgery if you have nerve sparing. The same can be said for urinary symptoms -  if all is good at the moment things should recover well.

Re. Brachy: It's a perfectly good procedure and success rates etc are about the same as prostatectomy. However, follow up treatment if the cancer returns is trickier to treat and almost certain to cause worse side effects. Brachy in itself is not without it's side effects and I had some urinary problems afterwards and over time my erections have become less strong. 

Just a quick note here - you don't need to have an erection to orgasm. That might not help but it's important folk are aware of that.

It is difficult with both procedures to say what side effects you would have, how long they would last and how severe they would be. Some folk sail through both procedures, some have a rough time but I would imagine with both procedures most folk get back to near normal in time. Certainly with prostatectomy outcomes have improved a lot since I first had to make a decision and it's possible I may have chosen this route should I be making the original decision now. With prostatectomy you also have age on your side.

I think it's just as important to have an experienced person to perform the procedure whichever you choose - and it's worth asking about this.

I know very little about MR-Linac. It's a 'new' procedure and therefore likely that medium to long term side effects are unknown.

Alas, it's only you that can decide which route you go down. As I've said before I think both brachy and prostatectomy are viable options for you.

To be apprehensive before any treatment is normal - esp. when you are not suffering any pain etc ATM. The mind often focuses on the worst case scenario but let's face it that never happens!

Good luck - and let us know what you decide.

 

Originally Posted by: Online Community Member
Hi Zumerest,

Firstly, thank you for sharing your experience. It is really helpful as I am looking to seek additional information regarding Brachytherapy this week before my proposed operation on Thursday.

I have also been made aware of MR-Linac, and am wanting to see if this is something that I could be viable for.

I am left with the option of deciding on whether to defer the operation planned for this Thursday and look into Brachytherapy or to carry on as planned and have the operation. 

I agree a difficult decision to make.

Edited by member 13 Dec 2021 at 17:20  | Reason: Not specified

User
Posted 14 Dec 2021 at 17:48

Good luck with your decision David. Its a very tough one. I chose RARP with a high volume surgeon in the end. I was terrified of ED and incontinence too but in the end all was fine and was dry from day 1 and erections almost back to normal with no help. If your surgeon is high volume he should be able to give you a reasonable steer on whether he thinks you will have issues with ED and continence. Mine was reasonably optimistic and I chose to believe him. But each case is different and you must go with what feels right for you . You will be very relieved when youve made the decision.  

User
Posted 15 Dec 2021 at 09:01

Good morning all,

Thank you so much everyone for all your supportive comments and feedback, I have finally decided to have Robotic Surgery and will be undergoing the procedure tomorrow. I have to be hopeful that some nerves can be spared and I know I am in very good hands with the surgeon and supportive nursing team. Doesn't stop me from feeling a little scared and anxious about the whole process though. I will keep you posted on the outcome when I am able to post.

User
Posted 15 Dec 2021 at 09:08

Its normal to be scared. We will be thinking of you tomorrow. Good luck

User
Posted 15 Dec 2021 at 10:36

Good luck David, hope all goes really well. My husbands RALP is next Tuesday so we know the anxious feeling. Keep us posted, best wishes 

User
Posted 15 Dec 2021 at 10:54

That's great news David - it's always better when you have made up your mind. My surgery is next Monday!

Will be thinking of you tomorrow.

 

Originally Posted by: Online Community Member

Good morning all,

Thank you so much everyone for all your supportive comments and feedback, I have finally decided to have Robotic Surgery and will be undergoing the procedure tomorrow. I have to be hopeful that some nerves can be spared and I know I am in very good hands with the surgeon and supportive nursing team. Doesn't stop me from feeling a little scared and anxious about the whole process though. I will keep you posted on the outcome when I am able to post.

User
Posted 15 Dec 2021 at 18:19

Good luck- I will have mine early new year..

Dave

User
Posted 15 Dec 2021 at 19:56

Good luck, David. 

Had mine a few weeks back. You'll be fine. 

Peter

 
Forum Jump  
<12
©2025 Prostate Cancer UK