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User
Posted 16 Mar 2022 at 20:48

Thanks I have read some leaflets but will have a look at the Prostate Uk website.

Thanks again Marvin

User
Posted 08 May 2022 at 15:43

Just a quick update. Booked for PSA blood check 26 May 2022 and hopefully down to a negligible level. I have a telephone appointment with the oncologist on 2 June 2022 and if all is well they will book the course of radiotherapy for early July. Spoke to specialist nurse who confirmed plan is for 20 doses of radiotherapy Monday to Friday.  I am still on the hormone therapy with a course of tablets followed by a Prostrap injection on 16 March which lasted for 1 month and one on 13 April 2022 which lasts 3 months. I am managing not too badly with the hormone therapy.

Anyway, hope you are all well and taking care and I will update you once I have spoken to the oncologist.

Regards Marvin 

User
Posted 08 May 2022 at 17:07

Hi Marvin,

Hope it all works out well for you.

You seem in good spirits.  I went down the same route, I had no choice. Lots of info on my blog (address in profile). Not an easy read but every guy is different and will react differently to the treatment. The RT was great...there's even videos of me getting zapped...it really shows how easy and quick it all is. More than two months on and no problems at all.

Best wishes

Steve

 

Steve

Blog: prostatecancer.vivatek.co.uk

User
Posted 08 May 2022 at 18:20

Steve

Thanks for that information very useful and I will definitely look at your blog. I have tried to remain positive because I am where I am and there is l nothing I could do to prevent my diagnosis. Doing as much walking as I can and still attending my karate club as often as I can.  It is good to get a perspective from those who have been through the treatment and nice to hear yours went well. Thanks for responding to my post .

Marvin

User
Posted 06 Jun 2022 at 01:02

Hi All,

Hope everyone is keeping well. Just a quick update as I had a PSA blood test on 26 May 2022 and a telephone appointment with my oncologist on 2 June 2022, when she updated me on my PSA level which was 1.9 which she was pleased with. She is going to keep me on hormone therapy for another 3 months as I have an enlarged prostate and she wants this to be as small as possible prior to radiotherapy. She explained that the smaller the prostate the less chance there is of too many side effects. Anyway, the plan is for a further PSA blood test in 3 months with radiotherapy after that. Having read up on this it is apparently quite common for 6 months of hormone treatment before radiotherapy. 

Any thoughts on the above would be much appreciated . Thanks and take care.

Marvin

User
Posted 06 Jun 2022 at 09:03

Hi Marvin

Thanks for the update. You seem to be in the system and well looked after.

The ADT will stop the cancer growing and even shrink it. And yes, the radiologist would want it to be at its smallest before the radiation treatment begins. So no rush. I hope the side effects you get are not too bad. Andrew Gabriel has his webinar on Surviving hormone therapy at 1400 Tuesday, 7th June,. I would say his presentation is excellent and essential viewing - info there you won't find in the standard brochure! And there's a new series of webinars from Prostate Cancer research UK starting this week. In both cases you can ask questions!

I'll try and find links for you.

Cheers

Steve.

"Surviving Hormone Therapy, by Andrew Gabriel, via Macmillan Cancer Rehab.

If you wish to attend, please email the Cancer Rehab Team at:

cancer.rehabilitation@nhs.net

Note: this event will be remote using Microsoft Teams."

And the new webinar series covering pretty much everything...

https://www.prostate-cancer-research.org.uk/what-to-expect/

 

 

Edited by member 06 Jun 2022 at 12:46  | Reason: Update

Steve

Blog: prostatecancer.vivatek.co.uk

User
Posted 08 Jun 2022 at 23:02

Thanks Steve for all that information and I will explore these webinars you mention. Unfortunately missed the one on Tuesday as busy with family matters. The side effects have not been too bad just the occasional hot flush and nothing much else. Doing a lot of walking to keep as fit as possible and take my mind off things. Anyway thanks again and I will give further updates in due course.

Marvin

 
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