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Inconclusive PSMA scan

User
Posted 29 Mar 2023 at 15:50

Time for an update. Five months post SRT and five weeks post Bicalutamide. Latest PSA came back <0.01. This  looks promising but I'm not counting my chickens just yet. Onco reckons most of the Bical will be out of my system now but libido still seems pretty flat. Bowel and bladder function issues are still improving but neither is quite back to where it was pre SRT. Gynecomastia is still persistent and probably a little worse since stopping Tamoxifen. Right leg lymphoedema remains about the same but Onco thinks it should improve in time. No lymph nodes were specifically targeted so they have a chance of recovering from the effects of scatter radiation. That sounds more promising than the gloomy prognosis form the lymphoedema nurse. I think I can rest easy for another three months.

User
Posted 29 Mar 2023 at 16:02

My understanding of the F18 PSMA PET scan is that is very good at NOT finding cancer - it's accuracy is 90-100% and is far better than the other scans (bone, MRI, CT). So the probability of having any PCa is very low from the scan.  We can hope,

Steve

Blog: prostatecancer.vivatek.co.uk

User
Posted 29 Mar 2023 at 16:06
Glad you seem to be recovering - I had very few side effects from my RT - just the usual urinary ones and they cleared up with a fortnight. Newer LINACs and more precise kit I suppose ( I went to Singleton, in Swansea). It's taken 8 months post HT for my hormones to come back and probably nearer 12 to say I'm now in the normal range and libido is "OK". ED still a problem but sortable. I try and keep my blog up to date. All the best

Steve

Blog: prostatecancer.vivatek.co.uk

User
Posted 29 Mar 2023 at 16:48

This all sounds really good Chris.....best wishes for continued improvement 

User
Posted 29 Mar 2023 at 18:45
Great news Chris, really pleased to hear and long may it continue x
User
Posted 29 Mar 2023 at 19:19

Thanks Steve. My waterworks had already been given hammering from the RP so they weren't really fighting fit from the off. At least things are still going in the right direction.

User
Posted 28 Jun 2023 at 21:27

Well, it’s now 8 months since I finished SRT to the prostate bed and 4 months since I finished Bicalutamide. I’ve just had my latest PSA result which remains at less than 0.01. That’s a big relief because the plan to target the prostate bed was an educated guess. The F18 and MRI scans failed to show up any indications. The post RP histology showed up a positive margin so it was always pretty likely there were remnants in the prostate bed. However one of the lymph nodes removed also showed up positive, so there was also a possibility there could be mets further afield. Thankfully not it would seem.

As for side effects, the gynecomastia is no longer tender but I have a lingering hard lump under each nipple. My bowels are still rather loose which can be a nuisance at times. Somethings to mention to the Onco at the next appointment. I feel like I’ve finally come to the end of a very long chapter in my prostrate story or am I speaking too soon? Here’s hoping for a long sabbatical before any chapter 2.

User
Posted 28 Jun 2023 at 21:47

Wow Chris, that is fantastic news. I am thrilled for you. πŸΎπŸŽ‰

User
Posted 29 Jun 2023 at 00:54

Fantastic news Chris. All the best

Jim

User
Posted 29 Jun 2023 at 02:11

Chris, great news,long may it continue.

Thanks Chris.

User
Posted 29 Jun 2023 at 19:48

Well done, Chris Bromsgrove,

You've certainly been through the mill, but hopefully, you've come out the other side.

Take good care of yourself.

JedSee.

User
Posted 29 Jun 2023 at 20:18
πŸŽ‰πŸŽ‰πŸŽ‰
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Jul 2023 at 08:41
Great news Chris and long may it continue x
User
Posted 01 Jul 2023 at 09:40

Really pleased for you Chris, that’s great news!

Derek

Edited by member 01 Jul 2023 at 09:47  | Reason: Not specified

User
Posted 01 Jul 2023 at 21:14

Less than 0.01 is a dream result. Great news!

 
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