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User
Posted 24 Sep 2022 at 14:41

Had my surgery Friday 16th. I was told that I would loose some urine and blood when emptying my bowls. In fact there was an occasional drip of blood throughout the day. Day four I noted this had stopped.

The first few days I felt pretty dreadful, by day six though I had turned a corner. Fortunately I was treated as a day case so had home comforts.

You can only take a day at a time.

Kind Regards

Jim

 

User
Posted 04 Nov 2022 at 00:40

It has been 6 weeks now since my RARP went to see my surgeon yesterday to find out the histology results.  There are no changes to the original diagnosis from the TRUS biopsy, Gleason 7 3+4, T2c N0, M0. Clear margins although he did say it cancer was very close to the edge of the prostate.  I haven't had a PSA test yet as my surgeon said he doesn't like to do them until 4 months after the op I was expecting to have one before my appointment.  I asked about nerve sparring, and he said that during the op he thought the right-side nerves were compromised so removed them and only able to save a few on the left.  I mention the ED to him, and he didn't seem interested I wasn't prescribed anything I assume as he thought I wasn't worth it with how few nerves were left so not sure what this means for my ED going forward.  He told me to only focus on the incontinence, which isn't great at the moment.

User
Posted 04 Nov 2022 at 07:43
Don't let him get away with that at your next appointment Stu, yes the incontinence is more important now but ED is up there too!!
User
Posted 13 Feb 2024 at 17:10

So after over 12 months of telling my consultant that something didn't feel right after my RP and I was still having pain following the surgery he finally agreed to do a Flexi cystoscopy to see if I had a stricture and to see if this was causing my pain and discomfort.  They didn't find a stricture but did find a tumor in my bladder I have since had a TURBT procedure to remove the tumor followed by chemotherapy and have been diagnosed with bladder cancer.  Has anyone else been diagnosed with bladder cancer after there diagnosis of prostate cancer.  Also the bladder cancer is a second primary cancer and not a secondary cancer from the prostate.  Now waiting on CT scan results to see if there is anything else they may have missed I have been waiting 3 weeks now and getting very anxious about the results.

User
Posted 13 Feb 2024 at 18:05

What kind of chemotherapy did you receive (locally in the bladder or was it the protocol MVAC  ?). From the TURBT result is it a muscle invasive cancer or a non muscle-invasive cancer ? The treatment is very different for the two diseases. One of my colleague (also a doctor) has been is the same boat as you: prostate cancer and few weeks later as he could not pee he had a cystoscopy which revealed bladder cancer. For my husband it was quite another story: in two years he had two MRI and 2 ou 3 series of prostate biopsies. No prostate cancer. It was a muscle invasive bladder cancer (the urologist did not think of this type of cancer because my husband never smoked and has very healthy life). The problem  is that bladder cancer is hard to detect (unless large enough) when the bladder is empty on imaging focusing on the prostate

Best wishes

Catherine

Edited by member 13 Feb 2024 at 18:05  | Reason: Not specified

User
Posted 13 Feb 2024 at 18:54

Yes just locally direct into bladder straight after the TURBT diagnosed a non muscle invasive Ta Grade 2.  Prostate Cancer was T2c.  Got my PSA blood test at the end of this month and another flexi scope into bladder in March and again 6 months after that.  Just said no further treatment for the bladder cancer at the moment but just regular check ups.  They asked for a CT scan as I am still having pain and discomfort just checking in case they have missed anything else.

User
Posted 13 Feb 2024 at 22:15

Very good new as it is a G2 tumor and not a G3. Local treatment is likely to eradicate the tumor. Sometimes it's necessary to repeat it but it's quite manageable.

 
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