Hi I’ve found this thread from searching for any chat around bladder neck reconstruction.
My husband was diagnosed 2015 with locally advanced prostate cancer treated by robotic surgery plus radiotherapy a few months later as some breakout - clinical trial. Incontinence was moderate to begin with but most unfortunately found to have bladder cancer two years later tho fortunately early non-invasive type.
Treated but had some recurrence. Incontinence became total.
No recurrence now for 5 years thankfully.
But as a result of all this and :
- many cystoscopies to monitor /treat
- course of chemo into bladder
- infections++ including urosepsis after a failed flexible cystoscopy ( scary as hell)
- recurring stenosis and multiple bladder neck incisions
- recurring acute retention becoming more frequent
- inability to self catheterise ( not surprisingly you will understand! )
- and the bladder cancer meaning a suprapubic catheter is ruled out
SO - now looking at referral in London to explore feasibility of reconstructive surgery.
And we are wandering if anyone here has been down that road and anything useful to share?
Hope you are doing well sounds like you guys have had your share of the pain of all this too.
Edited by moderator 07 Nov 2024 at 00:50
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