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The million dollar question

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User

Posted 16 Aug 2025 at 11:28

Phil,

Youre doing amazing, sorry you're feeling the effects of the treatment more but staying stable is music to my ears and I'm so pleased for you. I know my husband Allan will be too, wherever he is, and I'm rooting for you always.

Keep on keeping on

Love Melissa x

Mrs MAS

User

Posted 18 Aug 2025 at 10:58

Great news Phil that the cancer is stable at the moment. It’s all we can hope for in our situation.

Really hope that you feel a bit better soon and the UTI is sorted out. I am presuming it is 10 cycles ? So 2 more to go…!

Keep strong , thinking of you 👍

Phil

User

Posted 19 Aug 2025 at 09:14

Yes

10 cycles phil,then its a case of monitor me wait for progression officially end the trial and discuss what my next option is.

User

Posted 28 Aug 2025 at 16:42

Hi All

Had kidney Stent exchange this morning under general at my local hospital all went well as it could,not peeing to bad and booked back in for 9 months time as discussed with urologist.

Lower back pain has eased and coping for now,9th infusion booked in for Tuesday coming in london,going by train for the first time to see how it goes,hope me and my wife's anxiety can handle it lol.

Will update next week

Stay strong 💪 all......Phil.

User

Posted 31 Aug 2025 at 16:58

Phil you're my hero I hope I can cope with all the hassle you're coping with, went to my sister's in Bolton for a visit, thanks goodness the daughter drove cause without the driving I needed two days of rest after

User

Posted 03 Sep 2025 at 13:43

Hi all....update time

Travelled to my appointment for my 9th infusion in sutton Monday by train for the first time and was surprised how smooth it went.

Then we were both hit by the bonbshell💣 the sponsors have said that the cancer has progressed and the treatment/trial is being stopped.

Then Monday night in the hotel lower back pain was off the scales,so back to sutton the following morning for emergency mri and prescribed codeine and liquid morphine,slight progression was confirmed by consultant,radio-therapy has been organised at local hospital (meeting tomorrow) and pet-scan arranged for 22nd sept to see if I'm eligible for another trial 🤞.

Missed train home but told ticket man at avanti our circumstances who god bless him wavered the £125 for new tickets,was popping morphine on train back home.

Life's a b****

Will update as always.....stay strong 💪 all.

User

Posted 03 Sep 2025 at 13:52

Hi Phil

I'm very sorry to hear about your disease progression and that the trial has stopped. I also free so sorry that you are in pain, mate. I wish there was something I could do.

Your strength and resilience is inspirational to us all. I know that you'll keep on fighting.

User

Posted 03 Sep 2025 at 14:02

Hi Phil.

So sorry to hear they’ve stopped your trial. I can’t imagine how you both feel right now.

Hopefully you can get some radiotherapy to help with the pain. And possibly there’s another trial coming along.

Thoughts are with you 👍.

Phil

User

Posted 03 Sep 2025 at 14:29

Devastated to hear this Phil. No one is braver than you right now. You’re in my thoughts

User

Posted 03 Sep 2025 at 16:03

Flipping hell Phil (that's a variation of what I want to say)

So the 9th one didn't happen?

I am so sorry they have stopped the trial for you. I was going to say I know how you feel - I don't, but I have a fair idea how your wife feels and I am gutted for you both!

The good bit is the progression is slight and hopefully the planned radiotherapy will hopefully bat it down a bit for you and its in your local hospital.

Hope there is another suitable trial you can go on.

Also the Avanti man - how nice - you know the most simple acts of kindness, often from strangers, reminds me there's still lots of good in the world.

Sending all my love to you both.

Melissa x

Mrs MAS

User

Posted 03 Sep 2025 at 17:01

Hi Mrs Mas

Yes,I shed a tear with the man from avanti (he say yes lol) wavered the charge,if I could have jumped over the counter I would have hugged him.

Think the one trial will depend on the results of the pet-scan,strangely the more i light up the better.

Yes its hitting the wife hard......and Phil it looks like we're both ready for the knackers yard... 💪 but not yet ah pal.

User

Posted 04 Sep 2025 at 13:41

So glad the man from Avanti showed you this much deserved kindness. Stay brave! Wishing you all the best Phil.

User

Posted 05 Sep 2025 at 00:07

Hope you qualify for a new trial soon. Fingers crossed the RT sorts your pain.

User

Posted 06 Sep 2025 at 12:33

So sorry to hear the trial has been stopped, devastated for you both. Hopefully they still have some witches brew left to help you soon, you must have been really bad to soften the Avanti mans heart, Take care Gentle hugs to you both

User

Posted 08 Sep 2025 at 15:18

Hi everyone

Just on train back from Glasgow,managed to do my 20min static cycle in the velodrome with my son,was a good day got to see loads of famous faces,chris hoy,steve Redgrave,Nicola sturgeon,andy murry,Mark Cavendish,Louise michim to name a few.listened to the chemical brothers on stage,I raised 1700 pound in the end thanks to everyone 👍 total raised on the day was just over 2 mill and climbing.which went to four cancer charities prostate being one of thrm.

On a personal note had my radiotherapy to lower back and its really helped,just gotta get over the pikes and constipation all the pain killers have given me.

Thanks again all pet scan in 2 weeks

Regards Phil

User

Posted 08 Sep 2025 at 15:48

Wonderful Phil, well done. I bet the atmosphere was electric.

Hope yr painkillers are superb and the radiotherapy does it's thing!

Best Wishes as always x

Mrs MAS

User

Posted 08 Sep 2025 at 15:49

Phil. You did amazing and so pleased you had a great day too. To be part of that is so special.

Good that the radiotherapy has worked on the lower back too. Hopefully the painkillers will wash out of your system soon.

Well done,

Phil

User

Posted 08 Sep 2025 at 15:58

Phil, well done, must have taken an awful lot of determination to ride the bike for twenty minutes, give you and your family for making the weekend happen.

total respect

User

Posted 08 Sep 2025 at 16:06

Respect Phil. An inspiration you are 🙏

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