Not the news I wanted

Sound advice by the stalwarts Lyn Barry Chris Dave and others keep us going we all need the great advice to keep us informed and to keep positivity it's a lonely place with this desease keep it up folks we all need the sound advice going forward thanks to you all 👍 gaz

Thanks Steve. Blog is a great read and some stuff I can already relate to. I do need to be more positive but it’s the doubting what the original Specialist Nurse said! Even though my wife was there and confirmed! She also said it was curable and treatable but was unsure of which option of treatment until the MDT. Then you think as she got it wrong etc. I am sure will feel somewhat better once I know the treatment plan. Ironically 2 of my friends had/have prostrate cancer. One had removal 12 years ago with identical Gleason, loving life and the other as lived with treatment for the last 10 years because it had escaped the capsule and he continues to love life. Thanks for the continued support. 

Andy

Yes the MRI CT and bone scans are good at finding stuff but not too good at telling us that there's nothing there...if that makes sense. In fact bone and CT scans are around 60% whereas the PSMA pet scan is up in the 90's for ruling out the spread of cancerous cells to other parts. There is a logic to the order of scans!

You seem to be doing well.

Bloody hell, mate, GO!

You'll soon come to realise that it's no good worrying about things you can't change or do anything about . Learn to compartmentalise ...put off the worry until the next bit.... I call them Golden Zones! I'm in one right now..... I could worry that my cancer hadn't been cured and has come back, unlikely but you do worry or you could .  I won't actually know until my next test in mid November! So, you must "enjoy" this zone and extract lots of pleasure from it. Be kind and good to yourself !

If you get more news...we're here to help. Meanwhile get those beers in. Show your folks that you're in a Golden Zone and plan to make the most of it! 😂😉

Edited by member 24 Sep 2022 at 16:47  | Reason: Correction

Wanted to change best wishes topic starter to best wishes to SLF, but cant manage it. So put it here instead 😃

Hi Elaine

I now have my treatment plan with a curative intent. I am Gleason 9 - (4+5) PSA 12 - T2c M0 N0. Been told all contained in the capsule. Bone and CT scan clear. Now on HT then 20 sessions of RT at the end of January then HT for 2 years. I could not have RP due to DVT history through a trauma injury. I can’t have brachytherapy due to prostate being small (20cc). No major side effects from the Zoladex as yet but expecting some along the way.  Been pulling some heavy bins and dull ache in buttock now but mind playing tricks it’s the PCa spreading! Every twinge! It’s mad what this disease does to your mind! Thanks for replying Elaine. 

Andy

I was diagnosed T3b n0m0 gleason 9 (4+5) last January. Started HT followed by RT (60 gy in20 fractions)  May / June. First follow up September, psa 0.08, Oncologist stopped zoladex because of side effects. Good! Still feel wrecked with fatigue and aches and pains 4 mo after stopping zolly. Last implant July. How longwill this go on for? Next psa and testosterone test in Jan. It gets a bit depressing. Any good news on duration appreciated!

Peternigel