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How long is a normal wait for RP (robotic)

User
Posted 27 Sep 2022 at 01:42
Be aware that in England there is a post code lottery when it comes to waiting times. Nevertheless, cases that are considered urgent will be given priority within local lists.
Barry
User
Posted 28 Sep 2022 at 23:15

Hi,

Seeing some of your wait times is disturbing. I got my diagnosis at the end of July and had already decided to go for the Robot Assisted job. I also selected a hospital that had the kit that was an hours drive away as it was highly recomended. I had a phone call from that hospital the following day with a date of adminssion for the 31 Aug. Literally 4 weeks and my diagnosis was not that bad. The surgeon and all involved were awesome and just cracked on. 4 weeks post op now and am so releived I had it done.

I can understand the frustration. Between confirmation that you have it and then waiting for action your mind is all over the place thinking all sorts of stuff. It is very stressfull and your life is literally on hold. Plus you are thinking how can it grow in that time frame etc; It has a huge impact on your mental health. Although you are told it is a slow growing cancer you are still stressed until it is out. I would be getting on to the complaints with the NHS. Even look at travelling to get in quicker. Ususlly only an over night admission. Another reason I went an hours drive away.

All the best to all who are waiting.

User
Posted 30 Sep 2022 at 16:10

Thanks for your reply , and great to hear your doing well. 

User
Posted 30 Sep 2022 at 16:26

Just a quick update on my radical prostatectomy operation wait time in Wales . Still in the position I was in last week. Only difference being I have now contacted my local PM to intervene .
I have the chance to go cross border to get it done within 2/3 weeks, but the local health board are not making a decision on whether they will pay for it any time soon.


After another conversation with my GP the day before yesterday , I now realise she referred me with suspected prostate cancer on the 1st of April , so we have been waiting 6 months just to get to the back of the queue to have a radical prostatectomy. This I have been told will take another 2 months . So 8 to 9 months in total. It's just heartbreaking!

To say I'm annoyed , frustrated and worried is the understatement of the year . It hasn't just been the physical aspect , it's the constant begging for scan results, worrying over the fact that they kept telling us we had to wait up to 7 weeks for each scan or biopsy , and then another 7 weeks or more for the results then not sending letters out on time to the main hospital. It's put a tremendous strain on my family life and still is.

I told my MP that it is not a fabrication of the truth to say if you live in Wales and have to have scans for Cancer , you could die waiting .

Just a rubbish situation all round really.Sorry to have a moan ! I hope you are all doing well, and I really do wish you the best .

Edited by member 30 Sep 2022 at 16:28  | Reason: Not specified

User
Posted 01 Oct 2022 at 02:43

I hope you get sorted soon. I also hope you fix NHS Wales. Do remember healthcare is devolved, your MPs have made choices about where to allocate funds, everyone in Wales gets free prescriptions, but it seems the price may be a lack of surgeons.

Dave

User
Posted 01 Oct 2022 at 14:16

Yes, I agree that’s why I’ve contacted my MP , who agrees that it it way too long to wait . If it highlights some things that are happening here , it will do sone good , but that still doesn’t help the torture of waiting that we are going through . 

User
Posted 04 Oct 2022 at 10:47

After my Gleason moved from 6 to 7, I agreed to surgery. That was on May 10 this year and two weeks later I was offered a date for surgery the following week. I had the op on June 1.

I don't know if it helped that I indicated that I could be available at 30 minutes notice - I live 10 minutes from the hospital.

I live in Cardiff - Cardiff and Vale University Health Board, so this isn't the case across the whole of the Welsh NHS despite the bad press it gets - mostly thanks to the Welsh Conservatives talking it down on a daily basis.

 
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