Treatment Option HIFU

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User

Posted 01 Mar 2023 at 08:36

Hi Scott,

You DO seem to have been mucked about and I can understand why you’re feeling scunnered! Which Health Board are you under? I’m in Fife and (Hopefully🤞🤞🤞) about to start RT at Western in General in Edinburgh. I too have suffered from mixed messaging at times and unnecessary delays in treatment due to bad Communication. I do find though that the CNSs are really helpful.
I also think that some consultants need to get their head out of their backsides at times and learn how to communicate and empathise with their patients, who are going through the most traumatic experience of their lives.

hope you get some answers….

User

Posted 01 Mar 2023 at 16:18

Thanks Decho, to be honest I'm reluctant to name my Treatment Hospital as I really don't want to alarm another patient who is about to commence his Treatment, as everyone is different and my wife had excellent treatment for her Cancer at this same hospital for most of last year and we couldn't speak highly enough about it.

I do agree with you, some consultants have an arrogant manner and if they meet folk like me who asks questions instead of just accepting 'Consultant know best' it does create an 'atmosphere'.

Scott

User

Posted 01 Mar 2023 at 19:13

I understand Scott😊

I can’t complain about my treatment which has been good, just sometimes I feel like just a number😟. I hope that at some point Fife will get its own oncology and Radiotherapy unit as I think that would improve things. I know that since they found a surgeon to do Da Vinci Ops, those who have surgery have had a much better experience.

I suspect that many PCa’s just accept what they are told and get on with it. Like you, I like to know ‘how’ and ‘why’. I was actually told at one point I was ‘overthInking’ things….not helpful!

User

Posted 16 Apr 2023 at 19:02

Hi Decho

Apologies for delay in replying. NHS Scotland Consultant having refused to refer me for a PET Scan, I discovered a private company co-own scanning facilities with NHS at Newcastle, so Private Consultant referred me there rather than having to travel to London. I had a delay of weeks until I got an appt. but worth it as PSMA PET Scan showed that whilst my cancer is still contained within Prostrate and I can have HIFU Treatment, it also showed a PSMA 'hotspot' on my ribs which may or may not require Treatment, so either 'wait and see' or Rads.

I have appt to discuss this further with my GP and will ask for a change of Urologist as this NHS Consultant is less than helpful as soon as I mentioned HIFU.

Just awaiting date to fly down to Birmingham for my HIFU procedure.

Scott P.

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