Hi Jayney,
Thanks for asking. Things went pretty much as expected with ENT. He confirmed that a very small number of people have this issue with PDE5 inhibitors. The mechanism by which they can damage hearing is not understood, though there is some speculation about it. It's a rare side effect but unfortunately I have it. He said that it's really now a cost/benefit calculation for me. Taking more of these drugs definitely could cause more permanent hearing loss and tinnitus. It could also be that a low enough dose of the right drug will be tolerable. The problem is, you don't know what the effect will be until you try, and the effects are not reversible. So, it's a bit of a bind. The tinnitus is awful and I don't want any more. On the other hand, since I've stopped taking the drugs I can definitely notice some effects (e.g. fewer, less strong nocturnal erections, etc).
For now, I am staying off them. The andrologist wanted me to start up invicorp again, and I guess I will do that. It might also be that I can get by without anything for a while. I do have some function without any kind of medication. Oddly, from the start the response has been always and only to physical stimulation, with arousal being neither here nor there. So it seems like the nerves connecting to the mental response in the brain are not functioning, while a different set of nerves is still working quite well. Anyway, I'll see how it goes and hope for further recovery. I can't really see injections being a longterm solution for me, and while I know it is an excellent option for some, I'm pretty sure that I will never want an implant, so definitely gutted about the pills. The andrologist still seems quite optimistic about the possibility of recovery, so I'm trying to keep that in mind.