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PSA up now a bone scan.

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User
Posted 12 Mar 2024 at 16:20

As soon as DH’s husbands psa was 2 over his nadir of 0.01 (he had brachytherapy, psa stayed low 5 years before creeping up) they said they’d see him for scans. At 2.0 they wouldn’t see him. 3 months later at 2.7 he had an MRI nothing showed up. So he had a psma scan. This showed the psa was coming from several lymph nodes, no cancer in the prostate though.  3 months later psa was 4.9 so he is now on lifelong HT. 

I would see if you can have psma scan. That should show if there is anything to worry about. 

User
Posted 12 Mar 2024 at 16:53
I know the rise looks steep but they don't go by how much it rises, they go by how fast it is doubling and your doubling time is quite slow at nearly 12 months. As you had full scans last August which didn't identify any new tumours, there is very little that the hospital can do. The only treatment would be lifelong hormone therapy and they perhaps want to delay that for as long as they can to enable you to maintain quality of life. You could ask the oncologist or nurse specialist at what point they would consider starting you on HT - some hospitals will do this when the PSA gets to 5 or 10 - one member here was told by his onco that she wouldn't start HT until the PSA is 20!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Mar 2024 at 21:47

I think you should be having a PSMA PET scan to find the cancer. Given that hasn't happened, I would be asking for it.

User
Posted 13 Mar 2024 at 15:45
I had a full bone MRI and PSMA scan in July of last year, both were all clear.
User
Posted 15 Mar 2024 at 12:37

Good news, spoke to my cancer nurse to day and she reassured me that the sudden jump she believes is due to the fact that I had recently spent a week in hospital with cholangitis (often referred to as primary biliary cirrhosis) a type of liver disease.
The hospital had taken the PSA test during the time I was in hospital and she is 90% sure that the next test I have in early April will show a lower figure.

User
Posted 15 Mar 2024 at 12:59
Fingers crossed all round for a good result in April!
User
Posted 04 Apr 2024 at 17:49

Result of latest test 3rd April is 5.36 only slightly lower than last test.

Oncology nurse still thinks that next test might show it down again, thinks that all the problems I had during my hospital visit in early March may still be effecting the result.

But to be on the safe side she is going to suggest that I have a PET scan [what ever that is], may be a month before I get an appointment.

User
Posted 31 May 2024 at 12:39

Had a PSA test and a PETscan nearly 3 weeks ago, but have received no results to date, hoping no news is good news!

User
Posted 31 May 2024 at 12:55

Originally Posted by: Online Community Member

 hoping no news is good news!

Fingers crossed mate. I love your avatar. How old is the 'little 'un' now?

User
Posted 31 May 2024 at 13:02

Thanks for reply.

She is 4 years old and a joy, bless her.

User
Posted 31 May 2024 at 14:03

It's a beautiful photograph. They say a picture paints a thousand words. 

Edited by member 01 Jun 2024 at 00:28  | Reason: Typo

User
Posted 05 Jun 2024 at 15:30

Phone call from my Oncology Nurse today to tell me that my latest PSA test is slightly up and that my recent PETscan has shown a very small spot of cancer in my prostate.

Thankfully no sign of cancer anywhere else in my body, await a letter from my specialist as to the way forward, Nurse thinks it will be hormone therapy.

User
Posted 05 Jun 2024 at 16:07

Thanks for the update mate. I'm not a clinician but those results seem pretty good to me. Good luck.

Edited by member 05 Jun 2024 at 18:24  | Reason: Additional text

User
Posted 16 Jul 2024 at 20:42

Visit to Oncology Department today regarding my recent scan.

Good news is that the team have had a meeting and after looking at my recent scans etc suggest the way forward is 2 weeks of Hormone Therapy via tablets then Hormone Therapy via injections.

My PSA is 6.02 when it comes down to its lowest point Hormone injections will stop and restart should it go up again.

Apparently my scan showed no sign of cancer anywhere else in my body and also no signs of any other possible nasties.

So not so bad for someone approaching 84, feel fine in myself most of my discomfort is from a trapped nerve in my back.

User
Posted 16 Jul 2024 at 21:29

Great scan result. Good luck with H/T and I hope your back pain eases.🤞

User
Posted 03 Sep 2024 at 12:30

Because of hormone injection now sweating a lot, go for a short walk and it pours, any suggestions as to what may help?

Thanks.

User
Posted 06 Sep 2024 at 15:28

Had my first Hormone injection on the 30th July, had my latest PSA test last Monday 2nd Sept, result received today now down to 0.82 from 6.2 in August.

Next PSA test in 6 months.

Great news as we go off tomorrow on a weeks holiday.

Edited by member 06 Sep 2024 at 15:37  | Reason: Not specified

User
Posted 06 Sep 2024 at 15:41

Great news Roy. Have a wonderful holiday.👍

User
Posted 06 Sep 2024 at 17:39
Thanks Adrian, we will whatever the weather.
 
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