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Starting olaparib

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User
Posted 26 Oct 2023 at 21:21

It has just slowed the increase. I have a blood test next week so I will update then. To be honest I don't worry too much about my PSA now, l care more about how I feel on a day to day basis which has improved massively since I started olaparib. However I can still feel rough on some days but I put that down to side effects of the drug. 

 

User
Posted 26 Oct 2023 at 21:27

Thanks, Allan has some rough days too.

My worry is that if his psa increases the oncologist is going to stop olaparib and offer palliative chemo.

 

Mrs MAS

User
Posted 27 Oct 2023 at 10:03

Hi baby

I know exactly where your coming from my psa is on the rise with me just finishing 14months on enza but I feel moderately well with scan results not showing any further progression,my onco says that my psa at 13.5 is still 1 percent of when I was diagnosed 18months ago so we must take the positives from it and enjoy life.

Regards phil

User
Posted 27 Nov 2023 at 20:02

He sounds just like my Oncologist 

User
Posted 15 Dec 2023 at 19:28

Hi Babychambu,

I am being investigated  for the  BRACH genes ,to see if I am suitable for OLAPARIB, hence my interest in this matter.

I have just had my 9 cycle of Cabazitaxel , out of ten.  The  limit is ten.  I am trying to find out what is available

once Cabazitazel comes to an end.

 

Thanks

PISSU

User
Posted 15 Dec 2023 at 22:21

My Oncologist shouted at me in the chemotherapy room,when I asked him how long I had to live on average, so you are lucky.

User
Posted 20 Dec 2023 at 21:11

Update - PSA down to 300 from 450 in early December. However on Monday 18 December over about 20 minutes I developed the most incredible back pain. The NHS pulled out all the stops and I had an MRI scan yesterday which revealed metastasis next to my spine so one dose of radiotherapy tomorrow. I can't praise the NHS enough in sorting out things so quickly. However it shows the olaparib is failing so my next conversation with my oncologist won't be great as we are running out of bullets.

User
Posted 21 Dec 2023 at 21:32

Further update: found a compression fracture in L2 which is I suppose is better than MSCC. Treated with one fraction of radiotherapy. No more radiotherapy in the pelvic area now as that is my limit down there.

 
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