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Radio Therapy or Surgery??

User
Posted 05 Sep 2023 at 20:37

Hi Pretab,

Thanks for your reply.

can I ask what your staging and Gleason score please.

Thanks

Mark

User
Posted 05 Sep 2023 at 20:37

Sorry Pratap

User
Posted 05 Sep 2023 at 22:15

Gleason score 3+4, 4+3. I had prostatectomy 12 years ago. I am afraid at that time information I was given was very limited, in spite of the fact that I had private treatment. The most important thing my very friendly and kind consultant said to me was 'I am delighted to tell you that your cancer is well contained with ample margin. If you decide to choose prostatectomy I will be more than happy to treat you'. So he was happy and I was very happy and lucky! I am amazed how much information patients are given now. A good thing but I guess it can be confusing without detail discussion.

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 06 Sep 2023 at 01:24

One can consider the pros and cons of various treatments but this should be vary much related to the individual patient whose considered views should also be part of decision making. As in this thread, even with all the information available to different Consultants they may advocate a different way of treating an individual patient.

Maybe a patient would like the views of a number of Consultants on his case and be persuaded by a majority view but this is not practical. Perhaps it might help to some extent to read what several Consultants say on the subject of Surgery v Radiation. Only this evening I came across a video on this subject where some interesting points were made and I was going to post as a separate thread but feel it might be useful here. https://www.youtube.com/watch?v=ryR6ieRoVFg

 

Edited by member 06 Sep 2023 at 01:24  | Reason: to highlight link

Barry
User
Posted 06 Sep 2023 at 03:16

Compelling Youtube clip Barry!

Jules

User
Posted 06 Sep 2023 at 10:38

Originally Posted by: Online Community Member
Maybe a patient would like the views of a number of Consultants on his case and be persuaded by a majority view but this is not practical. Perhaps it might help to some extent to read what several Consultants say on the subject of Surgery v Radiation. Only this evening I came across a video on this subject where some interesting points were made and I was going to post as a separate thread but feel it might be useful here.

It should be noted that clinician has been anti-surgery for a long time. That's a newer video than he used to have on the topic. I thought the old one was quite biased and unbalanced, but this one is better. It doesn't address the issue of very young men being diagnosed which I think introduces some additional considerations.

User
Posted 06 Sep 2023 at 12:46

Old Barry

I could not agree more. Men who have just be diagnosed come to this site and others to find the best treatment available - there is no such thing. we should encourage them to think about what is the most appropriate treatment for them. I am very lucky that I had a very successful prostatectomy but make sure that there is no bias in my response. 

I also warn newly diagnosed men that consultants can be quite biased;  this was my personal experience. Also there are private clinics, particularly one in London, kept ringing me up because I had made an enquiry. 

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 06 Sep 2023 at 13:28

Great video, thanks Barry.

even more confused now!! 😫😫

User
Posted 06 Sep 2023 at 16:57

Hi Mark

 

I was diagnosed last week, and after a lengthy conversation with my Urologist I am opting (I think) for surgery. She said there is "quite a lot" of cancer in there, even though it is luckily still contained, so I want it gone. We did discuss RT or Brachy, but I was told that after one lot of treatment via either route, it wouldn't be possible/advisable to repeat if it comes back. At least with surgery, if there is a future issue it can be attacked with RT etc.

I am aware of the side effects that can go with surgery, but at 59 I am willing to tolerate them in order to be rid of this thing (hopefully).

Just waiting for a meeting with the surgeon to discuss, so nothing concrete yet, but I can't see me changing my mind.

Good luck with whatever option you choose. I am sure we will be updating each other via this forum!

Take care. 

Ian.

User
Posted 06 Sep 2023 at 17:00

As a footnote, I'll close with a comment I made off the cuff last week, which made my wife smile (for the first time in a while)

"You've got to be alive to p**s yourself"

User
Posted 06 Sep 2023 at 17:59

I remember my confusion at the onset. The only difference was that, I did not have the benefit of this wonderful site, when I got my diagnosis. I booked a meeting with all the various consultants - my main concern was ED. However, I soon got to understand that each path carried a risk of ED and/or incontinence. I even went left of field and requested a session with the HiFU team @UCLH. I made it to that treatment by the skin of my teeth. I had do another MRI scan and a second biopsy just to check if I was a good candidate for HiFU. The choice in the end boiled down to HIFU or surgery. I even took myself off the surgery list. What made my mind up was the opinion of the HIFU consultant when I asked him what he would do if he were me, he did not mince his words he said, giving my age late 50's he would go with surgery. That was that!

User
Posted 06 Sep 2023 at 19:05

I had a similar conversation with my urologist Gee Baba. I asked her if it was her husband sat in my place, what would she tell him. She was very honest, and said he’s 60, so she’d tell him to get it removed asap. That made my mind up for me 👍

User
Posted 07 Sep 2023 at 11:37
.... and all I can say is "ditto' - my urologist said exactly the same and she performed the surgery admirably. I wonder if urologists and oncologists have different preferred treatments?
User
Posted 07 Sep 2023 at 13:37
There is a built in bias within each group of specialists. My urologist insisted that I should consult an oncologist even though we had already made up our minds. There is a great deal of confidence building up in the RT field which is a good thing but oncologists, particularly the young ones, are trying to build their customer base. It is more difficult to navigate your way through all the treatments available now than it was when I had my prostatectomy.

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 07 Sep 2023 at 14:30

Yes, urologists will usually advocate surgery which is understandable as it is the area they know best and favour where the patient is suitable. But in my case the surgeon told me he would operate if I wanted but his view and that of the MDT was it was unlikely that he could remove all the cancer so recommended I have RT instead. Oncologists are more familiar with RT and apart from taking cases like mine that the surgeons don't want, feel that one of the forms of RT is just as good an option as surgery, particularly as major advances have taken place in RT over the last 10 or so years. There was a prominent member of this forum and great character and researcher user name 'Athalays' (You can see his profile here)- https://community.prostatecanceruk.org/default.aspx?g=profile&u=2673 He expressed great confidence in his Oncologist who claimed whatever a surgeon could do, he could do just as well with RT.
So it's good that specialists have confidence in their area of expertise where there are not contra aspects. Certainly, there was a time when surgery was largely considered the 'Gold Standard'. My second opinion who was a radiation specialist told me this was his view in 2007. However, with great RT refinement in the intervening years, this view is now contestable. Other individual considerations now may be given more weight by patients in coming to a treatment decision.

Edited by member 07 Sep 2023 at 14:36  | Reason: to highlight link

Barry
User
Posted 07 Sep 2023 at 17:46
I am guessing that it will also come down to what is available in your area/hospital?

I can imagine that the RARP Da Vinci is now pretty universal surgery equipment but are the various RT treatments that have evolved over the last few years universally available - or are they only in specialist centres with corresponding queues?

This is usually what happens as new treatments become available but maybe someone knows what the current RT landscape looks like?

User
Posted 08 Sep 2023 at 07:02

It’s a really difficult decision to make and everyone is different depending on their circumstances and medical situation. If I was recently married or in a new relationship with someone 20 years younger then that maybe a major consideration in any decision. As it is I am 30 years married. I was in that position in February and was presented with a whole menu of treatment options. I was encouraged (told!) to see at least the surgeon and oncologist before making any decision. What swayed it for me to surgery  was the oncologist when asked said in my circumstances they would choose surgery.  Good luck. 

User
Posted 08 Sep 2023 at 07:13

The choice for those who were/are G7, T1 or T2 is quite different to the dilemna for those who are G9, T3b.

Jules

User
Posted 08 Sep 2023 at 12:49

Originally Posted by: Online Community Member

The choice for those who were/are G7, T1 or T2 is quite different to the dilemna for those who are G9, T3b.

It is, but my biopsy was G7 and I had the RARP and then the lab upgraded it to G9 T3bN0M0 - so it's a tricky one. Would my surgeon have proceeded with the RARP if they had know the state of the PCa beforehand?
Post RARP PSA was <0.01 so although it means I may still need RT later, initial results are promising. 

User
Posted 08 Sep 2023 at 14:01

Yes Steve, diagnosing the exact stage of the cancer is impossible. Even post op when the histology report was good, we have seen people on this site with recurrence due to unknown distant mets. The medics can only work with the information they have at the time.

I was T3N0M0, G9, PSA 25, with extra prostatic extension. The view of the medics was that surgery would be pointless on me. Five years later PSA is currently<0.1 . I don't consider myself cured, if someone is not interested in statistics I will used the phrase 'cured to all intents and purposes'.

I think someone who has undetectable PSA more than ten years after surgery, probably is cured. For me statistics suggest I will die of prostate cancer 15 years from today. That date moves forward one day a time, until I get to 70 then the statistics shift to suggest I will die of something other than prostate cancer in less than 15 years time. If my PSA rises above 2.1 the statistics change from 15 years to 5 years.

I don't have any problem living with these probabilities, I accepted I was not immortal at the age of 48, after my dad died (in his 80s).

Had I have had surgery it would improve my statistics slightly, but at the costs of the side effects of surgery, in the opinion of the medics the slight benefit was not worth it, I am inclined to agree with them.

Dave

 
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