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HT a question for the wives

User
Posted 14 Nov 2023 at 21:50

I have 2 threads going at once. But I thought I’d add onto this one as decho asked me to say how dh gets on a month in. Dh has been on zoladex 4 weeks and a few days. He’s tired in the eves. No hot flushes yet. No reduction in libido yet really, not enough for either of us to notice. But definitely a reduction in the size “down below” much to his annoyance. Though there is enough there to be usable. I’m assuming the libido reduction will come eventually, I think he probably had high levels of testosterone, so it might take longer to reduce. I’d like to say if it stays at this level then we’d both be happy. But if it stays at this level then it won’t help the cancer. Dh is having another drug added at next consultation too. 

User
Posted 15 Nov 2023 at 19:35

Thanks for the update Wiosal, kind of surprised that size has decreased after this period of time...need to get pumping ASAP, that has certainly helped MY size, I’m glad DH doesn’t have hot flushes yet, maybe he’ll be lucky🤞

Ive never had a testosterone test…wish I had at the start so I could see how it’s decreased but I’m going to ask for one when I get my next PSA test in December. I’m just hoping that my PSA has fallen again…or at least stayed put🤞🤞🤞

It’s great for both of you that he still has his libido and long may it continue. If it falls away, don’t give up(unless you want to) because you can still have a lot of fun. I find that I have zero interest in having sex, but when I get started with the right foreplay I can still have intense pleasure, as can my wife, it’s just different.😊

Good luck to both of you.

Derek

User
Posted 15 Nov 2023 at 20:18

Originally Posted by: Online Community Member

Thanks for the update Wiosal, kind of surprised that size has decreased after this period of time...need to get pumping ASAP, that has certainly helped MY size, I’m glad DH doesn’t have hot flushes yet, maybe he’ll be lucky🤞

Ive never had a testosterone test…wish I had at the start so I could see how it’s decreased but I’m going to ask for one when I get my next PSA test in December. I’m just hoping that my PSA has fallen again…or at least stayed put🤞🤞🤞

 

 

Is it worth trying to get a pump if he’s on hormones forever? I can see the point when coming off hormones one day. Not sure how we’d go about that. The brachytherapy reduced it in size, but the HT has definitely reduced it even more already. 

I wonder if they will do a testosterone test on dh. I guess if HT is working there’s no need. 

I am sure libido will drop. It’s just taking longer. Especially when they add the other drug. 

Fingers crossed for your psa. I am on a wives prostate cancer group on Facebook, someone posted that her husband has still got undetectable psa after 9 and a half years on HT. So it can hold it at bay a long time. 

Edited by member 15 Nov 2023 at 20:18  | Reason: Not specified

User
Posted 15 Nov 2023 at 21:31

Originally Posted by: Online Community Member

Each time I got pregnant (3 sons) the first thing he said was “great, no sex for a few months when it arrives” 

I have 2 sons, and used to be as tactless as that.  After the birth of our first child, I can remember asking a doctor when me and the wife would be able to have sex again. He said, "For God sake man! I haven't cut the umbilical cord yet!" 😉

Joking apart, I know how serious and sad, sexlife issues can be because of this disease. I read somewhere recently that sadly relationships, where couples are coping with prostate cancer, are more likely to break up than normal. It's certainly tested our marriage. My wife is 10 years younger than me, and much more desirable. We had an active sex life which was severely impacted by my prostate cancer treatment. She is much better at dealing with it than I am. I still feel emasculated, frustrated, insecure and depressed. Sometimes, these emotions bring out the worst in me. I get very grumpy and moody and isolate myself. She is much more upbeat and optimistic. 

Over the past year we're gradually accepting the lack of rumpy pumpy, but it isn't easy. We go out more and I try my hardest to find other ways to make her feel as special as I used to. I'm trying to fill the sex void with more romance. It appears to be working.

Adrian.

Edited by member 15 Nov 2023 at 22:25  | Reason: Typo

User
Posted 16 Nov 2023 at 09:34

 

Joking apart, I know how serious and sad, sexlife issues can be because of this disease. I read somewhere recently that sadly relationships, where couples are coping with prostate cancer, are more likely to break up than normal. It's certainly tested our marriage. My wife is 10 years younger than me, and much more desirable. We had an active sex life which was severely impacted by my prostate cancer treatment. She is much better at dealing with it than I am. I still feel emasculated, frustrated, insecure and depressed. Sometimes, these emotions bring out the worst in me. I get very grumpy and moody and isolate myself. She is much more upbeat and optimistic. 

Adrian.

Thanks for reply Adrian. Yes one of dh’s clay pigeon shooting mates had his prostate out 2 years ago. His wife has left him. He told dh he’s tried viagra etc. but nothing works and he’s now given up trying. That’s sad. Especially as he’s not on HT so the feelings must still be there. 

That’s great your wife is optimistic. I’m not sure I am. I am trying to be. I’d never leave dh though…his health is the most important. I’m more worried about what all the drugs he is going to be taking are going to do to his health in general than I am about sex. He’s fit and healthy at the moment. I am very much of the mind that drugs shouldn’t be taken unless absolutely necessary, which these obviously are due to psa doubling time being 4 months. There are so many other things he’s now at risk of on HT. 

User
Posted 16 Nov 2023 at 11:35

Originally Posted by: Online Community Member

That’s great your wife is optimistic. 

But the situation, does still get on top of her. To get some extra support, to help her deal with  my moody behaviour, she is trying to be referred for counseling with an organisation that operates from a local hospital and deals primarily with the partners of cancer suffers. 

To add to our problems, about 5 years ago, I had an angiogram which showed I had badly calcified arteries. Initially,  this was sucessfully dealt with by medication. I was  shocked because I thought I was fit. Until I was almost 50 years old, I used to run 5 miles everyday and do 5 x 80 press ups daily. 

Unfortunately the heart condition, although not  really  causing me any discomfort, caused problems to my treatment options, when they discovered prostate cancer. The anaesthetist  at pre prostatectomy assessment was concerned that my heart may not cope with the op. My cardiologist thought otherwise, this dispute delayed the op  two months.

 I got through the prostatectomy without a hitch,  but sod's law, two months later (as if to prove the anaesthetist right 🙂) I had a minor heart attack and was rushed to hospital.  I wad there for two weeks, before they drilled out some of the calcification, and fitted two stents. Great I thought I've now had a complete refit.

Sod's law again! Last week, the chest pains returned, and their now looking at more drilling and stenting, or possibly a bypass. I've been warned not to do anything to strenuous, that's why I spend a lot of time on here. 😄

Honestly, at times, I feel that unlucky that if I fell in a barrel of boobs I'd come up sucking my thumb. 😄

However, I'm always aware that there are couples that are a hell of a lot worse off than us. My health issues are relatively minor compared to others. My two lads and two step-children are in their 30's and 40's and I'm retired so there are no work problems. My heart (damaged though it maybe 😉) goes out to you younger couples dealing with prostate cancer, who have younger kids and still have work commitments. I'd struggle to cope with that.

Adrian

 

Edited by member 16 Nov 2023 at 17:33  | Reason: Additional text.

User
Posted 16 Nov 2023 at 18:37

Thanks for reply Adrian. You sound like you have a lot going on. You are only a year older than dh. He is a retired farmer but always seems to have stuff to do. He was working full time 9 years ago when he was first diagnosed and had the brachy. He worked throughout, just took it easy for a week after the procedure, but farming doesn’t stop. Our youngest was only 5 back then. DH has a bad back but other than that no health problems, apart from obviously the prostate cancer, but had no symptoms and no symptoms when first diagnosed either. We walk the dogs twice a day, I work so he often goes on his own, especially as it is dark in the morns. We need to walk at 7am if I’m walking, which we often do. He walks fast most of the time too, I struggle to keep up sometimes.

I have wondered whether DH is going to get moody on HT. but I think the moods he has often been in before HT have been due to too much testosterone. So I think he may actually be less bad tempered. Only time will tell. 

User
Posted 16 Nov 2023 at 19:10

I was only on HT for a month whilst they decided whether  I could or couldn't  have prostate surgery. At that time they seemed to think RT was the more likely outcome and wanted to slow down disease progression.

I'm usually quite a laid back bloke but medical issues have frustrated me and I've definitely become more moody and bad tempered. 

I very sincerely wish you and your family well.

Edited by member 16 Nov 2023 at 19:19  | Reason: Typo

User
Posted 16 Nov 2023 at 19:24

Thanks. I wish you well too. I said earlier you are only a year older than dh because I clicked on your name. But that was probably your age when you first came on this site. I don’t suppose it changes the age for us. 

 
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