I'm interested in conversations about and I want to talk about

Know exactly what you want?

Show search

Notification

Error

Leaking daily

Email this conversation Print this conversation

User

Posted 11 Nov 2023 at 22:09

very helpful thanks

User

Posted 11 Nov 2023 at 22:17

so how long was it for you before you had reasonable control? and was it mostly down to pelvic floor exercises?

thanks richard

User

Posted 12 Nov 2023 at 08:39

Richard, I did pelvic floor exercises for four months before my surgery and I was 99 percent dry 4 days after catheter removal. When I tell people, my wife chips in with" nothing to do with the skill of the surgeon then ?"

They are a no cost option and many guys who lose their continence some time after being in control say they recover control after restarting the PFEs.

The physio on the FOPS zoom meeting Andy organises also suggests practicing, contracting the pelvic muscles when going from seated to standing, in time it can become almost automatic.

Thanks Chris

Edited by member 12 Nov 2023 at 08:40 | Reason: Not specified

User

Posted 12 Nov 2023 at 21:12

I had my RP 5 years ago and it took a couple of months for me to become dry. During periods of exertion I would leak so would wear a pad Occasionally I can still leak a little, such as if drink too much beer as this can be an irritant and if I don’t wait for a few seconds after I have stopped peeing.

Keep up with the Kegel exercises, they do help. Importantly keep your spirits up as its early days and you are still healing.

Mike

User

Posted 13 Nov 2023 at 21:13

I think I have another water infection again, urine is slightly cloudy and I can still feel where the catheter was inserted like and mild irritating pain. I seem to be dry at night and in the daytime any walking I do I leak, so much so that I dont need to use the toilet during the day, probably just the once. I have provided another urine sample and I get results in a couple of days, the gp has presrcibed me a different antibiotic which I have started taking today. Also when do manage to use the toilet on the stream ending I get the same irritating feeling.

User

Posted 13 Nov 2023 at 21:17

Originally Posted by: Online Community Member

Bobby , I was very lucky, I saw a massive change within the first 4 days post catheter removal. I was 99 percent dry 4 days after catheter removal. As you say lots happening down there.

I did get recurring infections after surgery,they eventually found a surgical clip in my bladder, it's supposed to be a 1 in 500 event, in fairness I haven't seen so many reports of it happening lately.

If the spasms don't go away there are some good anti spasm meds. There are gels designed for urethral use if the eye of the penis is sore.

As you say you need to have a bit more patience.

Hope all goes well take it easy but keep mobile.

Thanks Chris

Chris,

How did they manage to know and find out it was a surgical clip, I'm starting to wonder as I'm on my second possible infection, many thanks.

User

Posted 14 Nov 2023 at 14:45

Bobby, I had actually gone to see my erectile dysfunction guy, he is also a urology consultant/surgeon. I mentioned the infection and a slow flow and he referred me for a cystoscopy. A few days later by chance I saw my RARP surgeon who doubted the need for the cystoscopy but agreed to do it. While in the urethra and bladder they found the scar tissue and a clip floating around in the bladder.That first one was removed with the attachment on the camera.

Thanks Chris

User

Posted 14 Nov 2023 at 21:54

Originally Posted by: Online Community Member

so how long was it for you before you had reasonable control? and was it mostly down to pelvic floor exercises?

thanks richard

Pelvic floor exercises help with recovery of bladder control, assuming that there is no mechanical damage. However, some men are left with permanent incontinence even though they have done all the right things and have been painstaking about doing their PFEs. NHS data indicates that 90% of men are using one pad per day or less by 12 months post-op. It is sometimes just the luck of the draw, unfortunately.

Edited by member 14 Nov 2023 at 21:56 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Nov 2023 at 22:24

Hi all, first day today I have seen a slight improvement on leakage, 2 weeks since the catheter was removed. I'm on my second round of antibiotics and I think they are helping clear an infection.

User

Posted 24 Nov 2023 at 09:40

starting to feel a lot better now with the leaking, 5 weeks post op today, still leaking but reduced by quite an amount, using 2-3 pads a day now.

User

Posted 24 Nov 2023 at 11:26

Bobby70

I just wonder if you are overdoing it with the pelvic floor exercise so soon after surgery - just a thought. Prostatectomy is a very traumatic experience for the remaining sphincter.

'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.' Richard Feynman (1918-1988) Nobel Prize laureate

User

Posted 24 Nov 2023 at 11:58

Originally Posted by: Online Community Member

starting to feel a lot better now with the leaking, 5 weeks post op today, still leaking but reduced by quite an amount, using 2-3 pads a day now.

Hi Bobby,

Thanks for the update. I'm very pleased you're feeling better and making such good progress.

Adrian

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.