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Confused by diagnosis process

User
Posted 15 Dec 2023 at 17:27
While I was out seeing customers today my wife took a call from the urology department at the hospital where I had a TP biopsy two weeks ago this was following an MRI scan that reported PIRADS 4. (A bit surprised they called my home number as so far they’ve always connected me on my mobile) Anyway they said that following my biopsy they want me to attend the clinic next Friday to discuss treatment options. My wife passed the message on to me, and so in between appointments, I called the urology department to ask them what the results of my biopsy were, there was definitely an awkward pause and then he told me that he couldn’t give me the results as he wasn't medically qualified to do so, I said is "it because you're not allowed to give the results over the phone?" and he said yes there is that but also he wasn’t qualified, I politely asked if there was someone available that was qualified to give me the results, again bit of awkward silence, then I was told no all the doctors were at another 

hospital today and then there’s a doctors strike next week that’s why the appointment is next Friday.

I did say that having waited two weeks already it was really unfair to have to wait another week to find out what the results of the biopsy are, he agreed, apologised, and said there was nothing he could do.

I really don’t want to sound ungrateful because everyone I’ve come into contact with so far for my scans and biopsy etc have been wonderful, but another week waiting is not going to be easy, and has obviously has added 

considerably to the worry.

 

User
Posted 15 Dec 2023 at 18:17

The wait for the biopsy result is undoubtedly excruciating. I believe it is common practice to present the results at a face to face meeting. Three weeks wait is about normal but it does seem like for ever. Fingers crossed.

User
Posted 15 Dec 2023 at 18:19

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

So strictly speaking PIRADS4 means it probably isn't cancer. Though obviously with being a mere 2% below 50:50 you need to get the biopsy.

Hi Phil,

Unfortunately, our site states:  Pi rads 4:  It is likely that you have prostate cancer that needs to be treated.

https://prostatecanceruk.org/prostate-information-and-support/prostate-tests/mri-scan#:~:text=PIRADS%20or%20Likert%20score%204,that%20needs%20to%20be%20treated.

 

I think you missed the mathematical point Dave was making - with PI-RADS4 there is a 48% chance of clinically significant cancer which means it is more likely not to be (52%)

Hi Lyn,

No, I haven't missed or questioned the mathematical probabilities of clinically significant cancer indicated by PI-Rads 4, I'm merely disputing the interpretation of them.  The difference between Dave's "means it probably isn't cancer" and Prostate Cancer UK's, "It is likely that you have prostate cancer that needs to be treated."  Are significantly different. 

Adrian

Edited by member 15 Dec 2023 at 18:23  | Reason: Not specified

User
Posted 15 Dec 2023 at 18:24

It is annoying that you have to wait.

Any biopsy report is going to be a bit of a problem for someone who is not medically qualified to relay over the, phone without the potential for misleading the patient. Everyone on here can tell you that a GP receptionist has no idea what a less than sign is, or that 'normal' for someone without a prostate is not the same as 'normal' for someone with.

Dave

User
Posted 22 Dec 2023 at 19:48

Had the consultation today regarding my biopsy and it’s confirmed that I do have prostate cancer. (Merry Christmas!) It was a shock even though I was kind of expecting it.

The consultant and nurse practitioner were great and handled the whole thing very well, I realise that I’m very lucky that I’ve been told in my case they are extremely confident I can be cured. I’ve opted for surgery which should take place in approx. 16 weeks time. I know I’m just at the start of what will be a long process, but tonight I am relieved that at last I finally know what I have to deal with. We left the consultation feeling positive and it was great to be told that they honestly thought we had made the right decision. I’m going to stay positive and for now concentrate on enjoying Christmas with our Grandkids.

Happy Christmas to everyone on the forum. And a big thank you for your help and advice so far ….

User
Posted 22 Dec 2023 at 20:16

Hello mate,

I'm sorry that you've joined the Club but I wish you the very best on your journey.

Adrian

 

User
Posted 22 Dec 2023 at 21:10

Thank you Adrian - really appreciate your support, hope you have a good Christmas mate! 
phil

 
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