So.....Salvage Radiotherapy

User

Posted 13 Jan 2024 at 10:58

They didn't really give one - they were very much "this is what we are going to do". They were very positive about it. We didn't ask for alternatives because I think it was fairly evident it would have been the hormone treatment which OH wants to avoid as long as possible. It was a bit of a shaker as we had been hoping for no spread and then standard salvage RT.

OH is looking at it as a positive as there is no HT involved yet and it is still a possible "cure" or at least remission which is as good as in our view. I hope yours works out colwick

Yes Lyn the initial shock was tempered by the "but we can do something about it and we know where it is" response. Cyberknife sounds pretty cool anyway. I'm visioning a legolas type figure in miniature running around his pelvis smiting all the goblin like cells.

Edited by member 13 Jan 2024 at 20:22 | Reason: typo

"Time is like a drug. Too much of it kills you." - Terry Pratchett

User

Posted 16 Mar 2024 at 08:47

So Colwick how was your treatment? OH is in the middle of SABR and finding it really easy. Has had 2 sessions and one to go. So far no side effects and the steroids they have given him (presumably for a bit of a boost) means he is doing jobs that have been hanging around for ages as he is feeling so fit!

"Time is like a drug. Too much of it kills you." - Terry Pratchett

User

Posted 16 Mar 2024 at 10:45

Jo, I had two separate courses of SABR first course in August 2022 and another course in may 2023. No side effects from the SABR, both were 5 sessions to two separate lymph nodes. The PSA did shoot up after the first course and a second scan lit up the second lymph node. The last PSA was around 0.42 and the plan is for another PSA in May, if the PSA is 1 or the doubling time Les than three months then I have another PSMA scan.

They did have to rewrite the treatment program part way through treatment and I was on and off the table a few times.

Bicalutamide with the SABR last year was tolerable and apart from some very slight breast tissue everything is back to normal.

This was posted yesterday and describes the treatment for oligometastatic prostate cancer.

My profile lists tests and treatments over the last ten years. Hope all goes well for you two.

https://m.youtube.com/watch?v=ktMYPcO29WU

Thanks Chris

Edited by member 16 Mar 2024 at 10:45 | Reason: Forgot link

User

Posted 16 Sep 2025 at 16:18

Sigh back again - like you OH had two lots of Sabr and now he has a third tiny spot in the pelvis but although suitable for SABR in size they think it is too close to the previous ones and further SABR could damage his bowels although he has had no issues with them at all so far (which is good) so they are putting him on Hormone treatment. He has agreed to go into a trial and he will get ADT which they have said would be their next treatment anyway and he may or may not get darolutamide which is the trial drug. It is thought that this may work more efficiently to delay onset of CRPC if given now rather than later only after onset of CRPC. As usual he is focusing on the fact it is a trial and a bit exciting and I am focusing on the fact they have run out of non-hormone treatments.

"Time is like a drug. Too much of it kills you." - Terry Pratchett

User

Posted 16 Sep 2025 at 18:21

Jocasta, I started on the HT treatment a few months ago, not what I really wanted to do. Some side effects are okay to deal with,some not so easy. I had dropped my dose down to 75 percent but now I have settled into the apalutamide,I have gone back up to the full dose today. Best wishes for the future.

Thanks Chris

Notification

Join the online community now.