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The surgery is over…but..

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User

Posted 21 Jan 2024 at 12:02

Talk about going through the mill, fingers crossed you get some positive news soon... Just being in hospital is bad enough. My thoughts are with you.

User

Posted 21 Jan 2024 at 15:23

I developed peritonitis after my RP. I was at home when it came on, absolute agony like I have never experienced.

Morphine etc took the pain away and the Drs were mystified and couldn't work out what was going on for 24 hrs. While this was going on I was out of it because of pain relief and the start of sepsis, the only thing that saved me was telling the A&E consultant it only hurt (with all the pain relief) when the trolley went over the small joints in the vinyl floor. The consultant had been called out at my insistence because I told the junior doctors I was going to die otherwise.

He took me straight to theatre for a abdominal washout and saved my life. Make sure the Drs know everything!

Edited by member 21 Jan 2024 at 15:26 | Reason: Not specified

User

Posted 23 Jan 2024 at 19:51

At last!! Steve is home….13 nights in hospital, but what amazing care they have given him! Especially attentive aftercare from his surgeon. He has to keep catheter in for another week because of the difficulty joining urethra back to bladder but surgeon has said he will do the removal himself with a cystogram first.

So that’s the first hurdle over…the main difficulty he is finding at the moment is the catheter bypassing, which apparently does happen a lot and they have given him a drug to lessen bladder spasm. Also antibiotics to prevent UTI.

So softly does it for next week or so and then onto the next phase!

Debbie

User

Posted 23 Jan 2024 at 20:04

Great news...

User

Posted 23 Jan 2024 at 20:07

Great news Steve & Debbie.

Definitely softly softly for the next couple of weeks, just do enough that feels comfortable.

Lube on catheter tube as it comes out of penis, I found those elasticated thigh bandages very helpful to support the catheter bag at the top of my leg when walking around. Just tuck it inside the thigh bandage.

All the very best

Jeff.

User

Posted 23 Jan 2024 at 20:14

That is very good news indeed. Fingers crossed all goes more smoothly from now on.

User

Posted 23 Jan 2024 at 20:30

Great news!

User

Posted 23 Jan 2024 at 20:35

Fantastic news, I'm so happy for both of you.😊

User

Posted 23 Jan 2024 at 20:54

Good news so far, pleased to hear the consultant is getting involved in the removal of the catheter. I always made sure I was well hydrated before having the catheter removed.

As regards bypassing , drinking plenty of water should keep fluid going through the catheter and keep debris from building up inside the catheter. Make sure the bag is emptied before it gets more than half full. Make sure the pipes don't get kinked. I never bypass when lying down.As suggested use the lubrication gels in the eye of penis, it can help with bypassing. The bypassing is partly about the catheter balloon position in the bladder.

I tried numerous anti spasm medications ,some take time to work. I found trospium chloride to be the best.

Hope the recovery continues.

Thanks Chris

User

Posted 23 Jan 2024 at 21:04

So pleased for you Debbie and Steve, it must be so nice to be home after Steve’s ordeal. Hopefully he has now turned the corner and he recovers well.

Take care both of you.

Derek

User

Posted 23 Jan 2024 at 21:27

Congratulations Debbie! Upwards and onwards from here on! As someone already alluded to, he should try to take it nice and easy in the next few weeks.

User

Posted 23 Jan 2024 at 21:32

Fantastic news Debbie! Please give him my best wishes 👍

User

Posted 24 Jan 2024 at 01:03

Wow Debbie, Steve has really been through it and I’m sure my you really have too. So pleased he is home, onwards and upwards now 🤞🏼

User

Posted 31 Jan 2024 at 12:28

Latest update…today is 3 week post op, catheter still in (surgeon said up to 4 weeks to ensure join healed) but expecting to get a call today for cystogram and removal date over the next few week. Steve is coping with it knowing it’s not for much longer.

on a very positive note, his surgeon phoned this morning to say he’d just had the prostate histology report and all margins clear, all contained in prostate….wooooooo another big hurdle over!!

I know there’s a few people on here at the moment trying to make the difficult decision which treatment option to go for (we know how difficult that is) but for us, looks like we made the right decision for surgery at this point as it’s the best outcome we could have hoped for.

Debbie

User

Posted 31 Jan 2024 at 13:05

Brilliant news Debbie. I'm so pleased for you both. I'm very close to a year on and posted this yesterday.

https://community.prostatecanceruk.org/posts/t30214-Almost-a-year-on-after-RARP

I hope Steve continues to make a smooth and speedy recovery.

User

Posted 31 Jan 2024 at 13:29

So pleased for you both Debbie, you’ve been through the mill a bit but I’m delighted that the histology report is good and wish Steve a speedy recovery(take it easy though!).

All the best to you both,

Derek

User

Posted 31 Jan 2024 at 13:44

Hi Debbie

I had to have my catheter in for over fives week waiting for the leaky joint! At the time I had a scan week after week to check if the leak had healed, in many ways it was probably the most stressful time following surgery; our bodies are amazing at self-healing. He will be fine.

'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.' Richard Feynman (1918-1988) Nobel Prize laureate

User

Posted 31 Jan 2024 at 14:11

Debbie, good news on the histology. At least the catheter should mean no night time loo visits.

Thanks Chris

User

Posted 31 Jan 2024 at 15:09

Brilliant news Debbie, really pleased for you both. Rob had his catheter in for 4 weeks also but didn’t find it too bad x

User

Posted 01 Feb 2024 at 09:15

Brilliant, fantastic, Congratulations Debbie!, A cause for celebration.

The catheter issue will soon be a history.

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