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User

Posted 14 Jan 2024 at 08:48

27cc

User

Posted 14 Jan 2024 at 09:35

My prostate was 30cc which I was told was small the lesion was 1.8cm which I thought was huge, he said no, but he was the sort of guy who said black if I said white. I thought relative to the size of my prostate that it was disconcertingly large.

User

Posted 14 Jan 2024 at 11:11

Originally Posted by: Online Community Member

Mine sadly was humongous close to 10x the normal size.

Hello mate

It was your post earlier today that inspired this conversation. Yours must have been more like a coconut than a walnut.

Hi Sir,

As a result of your post, I decided to read through my medical notes. It says Prostate size 120ml. The funny thing is the only symptoms were waking up numerous times to wee and sometimes was unable to pass urine (all in the middle of the night, no issues during the day). Strangely, this only occurred at night! I was a typical bloke, who never did any health check and thought I was pretty invincible. I only did the PSA test because my GP (close family friend) died from PC and saw a youtube advert on PSA... My PSA was 21, even at that I did not freak out, as I felt fine. Even when I got the dreaded call that I had cancer with the score of 3+4, the nurse also mentioned if it had been lower 3+3, I would have qualified for AS, I recall begging her to put me on AS! She politely declined.

User

Posted 14 Jan 2024 at 11:27

This thread has left me feeling left out! I don't recall ever being told how big or small my prostate was.

On the other hand, the letter to my GP describes my operation in great detail, who was present, who assisted, size of ports, type of sutures, etc etc.. and my favourite bit.. was that the specimen (no size stated) was placed in an EndoCatch bag, even comments from the pathologist are included in the letter. But sadly no size.

Cheers!

Kev.

Edited by member 14 Jan 2024 at 11:29 | Reason: Typo

User

Posted 14 Jan 2024 at 12:02

Hi Kev.

Did you get a report on your removed prostate. Mine was very detailed I even got a trimmed weight of it, like it was a bit of brisket. It weighed 54 gms. I'd have loved to have kept it embedded it in plastic and used it as a paper weight.

As I said, I got copies of all my medical records when I was considering taking legal action against my Trust. It didn't cost me a penny to get them and only took a couple of weeks. I'm glad I got them. You seem to get so many different results, it's easy to forget them or get them muddled up.

I think it's a good idea to ask for copies of all consultations, procedures and results.

Adrian

User

Posted 14 Jan 2024 at 12:41

Mine was reported as 93-97cc on different scans, on the larger side, but nowhere near a record. It wasn't giving me any BPH side effects, even though it was pressing quite a large dent into the bottom of the bladder which could be seen on my flexible cystoscopy.

We recently had someone with a 600cc prostate in a local support group, which had only just started causing symptoms. That's the largest I've heard of. (They had BPH, but not prostate cancer.) While enlarged prostates do cause increasing symptoms as they get larger, there's an enormous variation in the point at which symptoms start, and sometimes they never occur.

I follow one of the well-known surgeons on Twitter, and he used to post pictures of interesting prostates he's just removed and one notable one was 200cc, which is regarded as a whopper.

Enlarged prostates are very slightly less likely to get prostate cancer.

User

Posted 14 Jan 2024 at 12:51

Hi Adrian,

No I didn't ask for a report or medical records, at the time I was getting plenty of information from consultations with my urologist and his letters to my GP.

My care was okay so I don't really have cause to take legal action, although I see the appeal of reading a report, and spending a day googling all the medical phrases.

Cheers,

Kev.

User

Posted 14 Jan 2024 at 13:21

I found my tumour size on a letter from Oncologist to my GP prior to RT, described as "a rather large 4.3cm tumour ".

User

Posted 14 Jan 2024 at 13:24

Originally Posted by: Online Community Member

I found my tumour size on a letter from Oncologist to my GP prior to RT, described as "a rather large 4.3cm tumour ".

I apologise for questioning it, Mike. It does seem a whopper.

Adrian

Edited by member 14 Jan 2024 at 14:23 | Reason: Not specified

User

Posted 14 Jan 2024 at 14:37

No need to apologise at all , if I could enter it at a Country Show it could be a prize winner .

I am guessing it must have been growing at a slow rate for many years.

User

Posted 15 Jan 2024 at 08:23

Originally Posted by: Online Community Member

No need to apologise at all , if I could enter it at a Country Show it could be a prize winner .

Apparently giant prostatic benign hyperplasis can cause prostates to weigh 500 gms!

Edited by member 15 Jan 2024 at 10:59 | Reason: Spelling

User

Posted 15 Jan 2024 at 18:42

This is an interesting discussion. My histopathology report, 0ver 12 years ago, had very little information compared with the details given nowadays. My report contained my Gleason score and the result of the MRI scan and that was all I had to make a decision after consulting a urologist and a couple of oncologists. I doubt if I had been given more details (size, volume, percentages of biopsies etc) would I have been any more informed and more confident about my choice of treatment? Does too much information cause confusion for newly diagnosed men and their wives/partners. I often see people posting masses of information and asking for help to interpret because they are confused and desperate to make the right decision.

'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.' Richard Feynman (1918-1988) Nobel Prize laureate

User

Posted 15 Jan 2024 at 19:32

In my opinion, our specific disease is different to most, because there are so many different treatment options. How many times on this forum do you see people asking if surgery, RT or AS is the best option.

This uncertainty is often caused by consultants who seem reluctant to tell you what is the best treatment for you. You're left to make the decision. Mine actually gave me an NHS handout book to read to help me decide my preferred treatment choice.

I'd never experienced this, "You decide what you want to do" attitude before.

When faced with this dilemma, surely to make the best informed decision, you need all the facts.

Otherwise you're left with eeny meeny miny moe.

Edited by member 15 Jan 2024 at 20:41 | Reason: Typo

User

Posted 17 Jan 2024 at 09:57

A year ago last Dec I travelled 5 hours south to Edmonton, Alberta for a hi-rez MRI my urologist had been bugging me to get even tho lower resolution MRIs at a closer hospital, 2 hours away, didn't show anything of note other than an enlarged prostate.

At that time the size was estimated to be 64cc with a PSA test at 16.9. Just a week ago I was sent for an ultrasound by our nurse practitioner for a checkup as my urologist seems to have dropped me for refusing a biopsy multiple times. He never even called about the MRI results when usually I would hear from him just days after an MRI. Very unprofessional of him IMO.

Anyway, the ultrasound pegs the size now at only 44.8cc and the PSA is down to 14.9. Over 19cc reduction in size and a 2 point drop in my PSA.

I've been dealing with my LUTS and other issues with a variety of vitamins, minerals and herbal remedies that seem to be working for me.

Do any other of you sufferers of BPH use alternative remedies and if so which and how do you find them for treating your symptoms?

When I started this voyage of the damned 7 years ago I was getting up 7 or 8 times a night to pee with little happening but still felt like I had to go so had horrible sleep if any and constant daytime fatigue.

Now I get 7 or 8 hours sleep a night and if I have to get up to go something actually happens and I'm back to sleep in minutes with no feeling like I have to go again. At least 4 nights a week I sleep right through the night. My wife has to get up to go at least once a night and she doesn't even own a prostate.

I'm 69 now and according to all the research and books I've read about prostate issues quite likely have a very slow growing prostate cancer but by age 70 if it hasn't turned into something worse it is very unlikely to do so. So only 9 months to go to be in the safe zone! :)

User

Posted 17 Jan 2024 at 11:43

Hi Bill, nice to meet you and welcome to the forum.

Adrian.

User

Posted 18 Jan 2024 at 10:44

Breaking news

Charles has got a big 'un!

https://www-bbc-co-uk.cdn.ampproject.org/v/s/www.bbc.co.uk/news/uk-68010563.amp?amp_gsa=1&amp_js_v=a9&usqp=mq331AQIUAKwASCAAgM%3D#amp_tf=From%20%251%24s&aoh=17055712042128&csi=1&referrer=https%3A%2F%2Fwww.google.com

The King is going in for an op on his enlarged prostate. Benigh condition.

Do you think he'll join the forum?

Will we get the Royal seal of approval?

Good luck, your Majesty.

Edited by member 18 Jan 2024 at 10:52 | Reason: Addition

User

Posted 18 Jan 2024 at 12:59

Originally Posted by: Online Community Member

Breaking news

Charles has got a big 'un!

The King is going in for an op on his enlarged prostate. Benigh condition.

Do you think he'll join the forum?

Will we get the Royal seal of approval?

Good luck, your Majesty.

One has probably joined already.. under a pseudonym of course. Charlie or something.

Cheers,

Kev.

User

Posted 18 Jan 2024 at 15:27

My PSA was 29. Panic stations! My prostate was 127cc - about the size of an 8-ball in pool. This mitigated my PSA score to, pro-rata, one that just about justified taking the thing out. My NHS specialist said there was still a 50/50 chance it had spread but it was my call. Plumped for RP.

Turned out the actual tumour was 1% of the volume of the prostate.

User

Posted 18 Jan 2024 at 20:27

Why would anyone join a Cancer group that did'nt have cancer ?😎

In response to wondering if the King will become a member of our gang .

Edited by member 18 Jan 2024 at 20:30 | Reason: clarification

User

Posted 18 Jan 2024 at 20:56

Originally Posted by: Online Community Member

Why would anyone join a Cancer group that did'nt have cancer ?😎

In response to wondering if the King will become a member of our gang .

But he is King and he can go where he wants. 😄

Edited by member 19 Jan 2024 at 09:54 | Reason: Typo

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