My Story aged 47

User

Posted 03 Feb 2024 at 01:33

Glad you managed to get an earlier appointment Rich. It really is the worst part the waiting isn’t it.

It was very strange that even though my husband was diagnosed, and with some spread it was still a little relief as I had imagined all sorts 🤦🏻‍♀️

Sounds good that they’re happy to watch and wait, it’s hopefully one of those very slow growing cancers that you can live happily with for many years….as many do without even knowing.

It’s difficult to get your head around the diagnosis especially being so young but definitely not the worst news you could have had. Can sometimes be a blessing in disguise to make sure you get on and live every minute the best way possible.

Take care

Elaine

User

Posted 03 Feb 2024 at 01:36

Your results sound very good Rich. I think you'll be fine mate.

Adrian

User

Posted 03 Feb 2024 at 10:36

Thanks Elaine - the waiting and uncertainty are certainly the worst part of it. But as you say i feel lucky to now know and all being well nothing well ever be needed.

I hope your husband is doing well.

Thanks Adrian.

User

Posted 03 Feb 2024 at 10:45

Hi RichCrow,

Glad you results were encouraging, always nice to hear good news. The waiting on results is definitely the worst part, PSA anxiety every 3 months. If your GP is holding up results (I usually have to wait at least a week😟), give your CNS a phone and get the results a lot sooner. I only realised this recently and now get my results 2 days after the test

All the best,

Derek

User

Posted 03 Feb 2024 at 17:19

Originally Posted by: Online Community Member

If your GP is holding up results (I usually have to wait at least a week😟), give your CNS a phone and get the results a lot sooner. I only realised this recently and now get my results 2 days after the test

This is one of the things that I appreciate about the French health system. I phone up the day before for a blood test appointment, go in at 10am for it and the results are emailed back to me (cc the doctor) by 3pm. It may just be the region I live in, but when I phone the doctor for an appointment, the secretary asks me what day and time I would like. My SiL had to wait 3 weeks for a 10 minute appointment in Scotland.

It's certainly helped on the PCa pathway.

User

Posted 03 Feb 2024 at 17:51

Thanks Derek - great bit of info 👍🏼

Forgive my ignorance. What is CNS?

User

Posted 03 Feb 2024 at 18:40

Originally Posted by: Online Community Member

Forgive my ignorance. What is CNS?

Clinical nurse specialist.

You should have one allocated to you.

Edited by member 03 Feb 2024 at 18:42 | Reason: Not specified

User

Posted 05 Feb 2024 at 07:59

Great, and thanks 👍🏼

User

Posted 02 May 2024 at 13:26

Originally Posted by: Online Community Member

Hi Omar - it’s always a bit worrying especially when it is higher than you expect. Having read your story it looks like you have a solid plan in place.

I’ll try and answer as best I can.

- Have you taken COVID vaccine or tested positive for COVID in the 6-12 months prior to PSA test? No

- How's your bowel movement, ie, any constipation before PSA test? Normal

- Have you noticed any changes in urine flow: No

-- frequency of urination especially at night? No - I have never had to get up at night to pee. Even now.

-- quality of urination: lacks force/interrupted/hesitancy when starting urination? No

-- any pain (burn sensation) during or after urination? No

From your original post I'm assuming your 1st PSA test was at the age of 47, correct? Yes

Hi, could I ask what relevance your question re COVID has? And could it really impact up to 12 months prior to a PSA test?

User

Posted 04 May 2024 at 07:04

I'm relatively new to both this forum and the PSA business too 😅,

but somebody on a different post had shared an article/news that both COVID and its vaccination can cause a temporary rise/spike in PSA level, but I'm not sure about the duration of impact.

I'm 49 of age with a total PSA level 1.30, may I know what brought you here?

Thanks,

Omar

Edited by member 04 May 2024 at 07:11 | Reason: Not specified

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