I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

Active Surveillance advice please

User
Posted 21 May 2024 at 17:22

Good luck Keith. If you don't mind, keep popping in and giving us an update.

User
Posted 21 May 2024 at 17:33

Adrian,

I definitely will, whether it's good or bad news. I think it would be helpful if those people, who have been on the forum following a scary diagnosis, post positive outcomes if they've had such outcomes.

Best wishes,

Keith 

User
Posted 03 Jun 2024 at 17:17

Just got my 28 core biopsy feedback today. Big C in 5 cores, worst case 6mm (45%) in one of the cores. Gleason 3+3. Had sort of convinced myself I had Prostatitis, as had a few symptoms and have taken Tamulosin for about 7 years (I'm 64), for nocturia. PSA has gone from 5.2 to 5.45 in about a month. MRI showed x1 PIRADS 4 and x1 PIRADS 3. Turns out the PIRADS 4 is the problem area. Wasn't offered a copy of my Histology Report today, but will follow up. I'd already decided to go (initially at least) AS route. Next PSA test in 3 months, also further discussions with Surgeon and Radiographer to come. Specialist Nurse who gave me today's news suggested that Brachytherapy a non-starter as Gland is 66cc?? A bit dismissive when I raised subject of Hormone Therapy to reduce Gland size and said, would only be done if Urinary Issues got worse??. This is something else for me to research/get another view on I think. Also told AS is regular PSA, and furthe Biopsies in circa 18 months, if PSA dictates. I was told further MRIs weren't their policy?? Again, I need to follow this up, as it's contradictory to what I've read elsewhere. Touchwood, I'm reasonably healthy and hoping to ride the storm till focal therapies such as HIFU etc become more common place. Finally, for now, good luck to all our readers, wherever you are on the journey.

User
Posted 03 Jun 2024 at 17:30

Best Wishes.

Keep us posted.

Keith 

User
Posted 09 Nov 2024 at 15:42

I am recently diagnosed with prostate cancer and am going to be on AS somebody at Prostate Cancer UK said there was a page on here where you could be part of a online zoom cll specifically for people on AS does nyone know where I can find it ?

User
Posted 09 Nov 2024 at 18:28

I'm on AS. I'm not aware of such a group but if there is one I'd like to join it.

Best wishes,

Keith

User
Posted 09 Nov 2024 at 18:58

Originally Posted by: Online Community Member

I am recently diagnosed with prostate cancer and am going to be on AS somebody at Prostate Cancer UK said there was a page on here where you could be part of a online zoom cll specifically for people on AS does nyone know where I can find it ?

https://prostatecanceruk.org/form-pages/active-surveillance-group

I have been on here for years and never seen this before. I assume it is still active.

Thanks Chris 

 

User
Posted 13 Nov 2024 at 17:45

Thank you that still works

 
Forum Jump  
<12
©2025 Prostate Cancer UK