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MRI Result Meltdown

User
Posted 15 Jan 2025 at 00:50

Thank you Adrian and Decho. All the best to you gents as well.

 

Mike

User
Posted 02 May 2025 at 02:36

It was one year ago today that I found out I had prostate cancer. What a long year it has been. I remember going for my routine physical last year figuring just one last thing to cross off my pre-summer checklist. And then on May 1st it all went to hell. From this time last year until finally undergoing RARP mid August I was a mental train wreck. Three and a half months of non-stop stress, worry and sleepless nights. Ugh...

 

Today, I received my latest PSA test result which thankfully came back < 0.02. Now I'm looking forward to making up for all the fun I missed out on last summer.  Tonight, no special plans. Just getting in bed early, relaxing and getting a good night's sleep.

User
Posted 02 May 2025 at 03:09

Great result Mike. 

Dave

User
Posted 02 May 2025 at 06:54

Originally Posted by: Online Community Member
It was one year ago today that I found out I had prostate cancer. What a long year it has been.

I've followed your journey all the way. You've done brilliantly mate, and I love happy endings. 👍

Edited by member 03 May 2025 at 09:32  | Reason: Typo

User
Posted 03 May 2025 at 04:03

Originally Posted by: Online Community Member

I've followed your journey all the. You've done brilliantly mate, and I love happy endings. 👍

 

Yes Adrian, thank you for your supportive posts along the way. And thank you to all the members on this forum for sharing your stories. The information here has been educational, inspirational and helped me through some of my darkest moments. 

 

I know I'm far from being out of the woods, but at this point I've learned to take things one step at a time and be happy to enjoy a 3 month summer break from pca before another psa test.

User
Posted 02 Aug 2025 at 01:35

Latest psa result today, Aug 1st...:

<0.02

I'm just a couple of weeks shy of my 1 year RARP anniversary (Aug 19th) so it's a bit of a milestone I guess. 

User
Posted 02 Aug 2025 at 05:20

Hello again, 

Brilliant news! Still undetectable after almost a year. I will have an extra drink today to celebrate with you. 👍

Since my RARP, now over two and a half years ago, I've been <0.02. Let's hope it remains that way for both of us for many years to come. 

Presumably you're still on 3 monthly PSA checks? They recently extended mine to every 6 months. 

Good luck, mate. 🤞

User
Posted 02 Aug 2025 at 10:44

Great news. Long may if continue (for both of you). Ironically when I went to six month testing I got a detectable reading. I went back to three month testing and after a further detectable reading it's now back to <0.01. I think I'll stick at three monthly tests.

User
Posted 06 Aug 2025 at 02:31
Thanks guys. Question for you...Is it standard in the UK for post RARP psa test to be 3 months for the first 2 years?

I could swear that's what they told me here (US) before my surgery. That is that I would have psa tests every 3 months for 2 years and then (if still undetectable) down to every 6 months. At my last visit (in May) my urologist told me that after my next test (the one I just had), they were going to drop me to every 6 months (yes, at just the 1 year mark). I'm NOT comfortable with that. I see her again in 2 weeks and am going to request remaining at 3 month intervals. I feel like from what I've read, the "hot zone" (when most folks recur) for BCR seems to be somewhere in the range of 1 to 4 years out. Why would they slow down testing during this period, especially for a t3a with a moderately aggressive cancer (4+3)??

User
Posted 06 Aug 2025 at 08:09

Hi Mike.

From NICE guidelines:

PSA levels should be measured no earlier than 6 weeks after treatment, then at least every 6 months for 2 years, and once a year thereafter.

After at least 6 months' initial follow up, consider a remote follow-up strategy for people with a stable PSA who have had no significant treatment complications, unless they are taking part in a clinical trial that needs formal clinic-based follow up.

https://cks.nice.org.uk/topics/prostate-cancer/management/management/

I had my RARP over two and a half years ago. I was T3a and Gleason 9 (4+5). Fortunately my PSA has remained undetectable. 

Basically, I organised and monitored my own PSA checks, which after the intial one, were all done at my GP's.

For the first two years I had test every 3 months and after 2 years every 6 months. So I've had more frequent tests than NICE recommend.

I don't think there's anything in their guidelines that recommend different time periods for PSA testing for higher staging or higher graded disease.

Edited by member 06 Aug 2025 at 08:15  | Reason: Additional text

 
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