EBRT planning conundrum

The one time I had to do the walk of shame round the hospital gardens trying to fart with a full bladder, it just wasn’t going to happen without peeing myself. So they gave me another enema to use and off to the loo I went. The moment the nozzle hit my back passage was enough to let a huge one go….along with the contents of my bladder. So, another 3 cups of water and another 30 minutes waiting. Sometimes you’ve just got to laugh🤣🤣🤣

Thanks Decho. Really funny the whole bladder and bowel prep looking back and all of our efforts to get the radiotherapy at the allotted time!! 

In my cancer centre we all got given a unique looking water bottle to use by the nurses to keep for bladder prep so we could all identify each other amongst the other patients. 

A bit like running race T-shirts it actually helped to strike up conversation with people going through the same thing. 

Hoping the Prostap works as long as possible. I’ve been told it’s life long treatment. Onwards and upwards!

Well after 14 months on Prostap I think on balance the side effects are manageable. Not perfect but it’s extending my life no doubt. Fitness wise I lift less heavy weights and running is harder especially hills. I just keep at it. Hot flushes are improved by reducing coffee but I can’t resist coffee at times! Just love a flat white and accept that night I’ll have some hot flushes. Finger joints are a bit stiff and achey and the Achilles. All manageable really. Not desirable definitely but ok.

Onco said at the 3 year point I could try a hormone holiday but I don’t know if I’d dare! He said it with great reservation even though lymph nodes and prostate Ca can’t be seen on imaging. 2 tiny bone nets still there but stable. You’re very brave allowing testosterone to return. I know our diagnosis are different. How often are you having PSA checks now? Orchidectomy sounds so drastic but I do understand where you’re coming from if the side effects from hormone therapy are really bad.