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Why am I here?

User
Posted 07 Dec 2024 at 11:11

Thank you guys. The relief is enormous with all the mental preparations I had made to deal with what I thought would be the worst news. With the two areas on my prostate and a Lickert score of 4         I was settled on hearing a bad outcome of the biopsy.

It's easy to say don't worry now that I have a hell of a lot less to worry about. But the advice I was given here to try not to worry about things that may never happen was the best advice I could have received. 

The possibility of a cancer diagnosis is a truly terrifying prospect. But letting your fears get out of control won't help you deal with the process of tests and waiting involved.

I purposely tried not to read too far ahead into possible outcomes and treatments, but its very hard not to pick up negative information which deeply affects your mood etc. 

I received so much support from friends and family and people on this forum during the few months it has taken to arrive at the negative diagnosis. I know this support would only have strengthened had it gone the other way and it is truly amazing how much that support improves your mood and ability to cope with the pressure that going through this horrible process involves.

I have yet to receive my discharge letter but I assume it will tell me a bit more detail about what was found, or rather not found. And hopefully advice about what I need to do in the future regarding PSA testing or whatever. 

I can't imagine how I and my wife would have coped with the results if it had have been cancer, I know we would have, but it would have been a completely different life to the one we can now look forward to. My thoughts are with all those who have not been fortunate enough to get the same outcome as me. And for those who will get the bad news in future. 

I will remain a member of the forum and hopefully provide the kind of sage advice to men and their partners who are forced to board the Prostate roller coaster ride that was given freely to me by this wonderful group of people.

Let's hope testing becomes better and treatment can be improved to make all forms of cancer a thing of history. 

Happy Christmas to one and all and thank you again for the kind support and patience you show to everyone who visits this site.

Best regards always,  Mick. 

User
Posted 10 Dec 2024 at 12:34

Just a quick question about my being discharged back to.my GP. 

The nurse said that my GP would be given a new baseline for my PSA level based on the results of my MRI.  My prostate volume was 65ml apparently,  whatever that indicates.

But the letter from the urology consultant simply said no sign of cancer,  if the patient still has concerns about his prostate he can ask for a repeat PSA test in a year. No mention of any new PSA threshold or anything. 

It just seems a little bit vague to say I fully expected to be told I had cancer based on the Lickert score of 4 on the two areas of concern on my prostate. 

When I rang to ask if someone could explain I was told the nurses were busy ringing all the people who really did have cancer. 

If I'm honest it's left me feeling like a bit of a fraud and that I was the one whining about prostate symptoms,  when it was just their protocols that put me here. 

The whole scoring system looks wrong to me; expressing PSA to two decimal places but then not considering jumpsto be significant,  having a 1 to 5 scoring system for the lickert scale with the top two just separated by the single word VERY, and no explanation afterwards.

I'm very happy to have got the fantastic news that I'm cancer free, but as it says here, they cannot tell you that you don't have cancer, just that they didn't find it in the biopsy samples. They only took three from each area so six samples seems quite minimal?

Any thoughts gratefully received. 

Mick

User
Posted 10 Dec 2024 at 12:49

Hi Mick.

I'm not medically qualified, but I believe a 65 ml prostate is almost double the norm. I think a larger prostate can cause a higher PSA.

As your biopsy was negative I can only assume that the suspicious areas detected by the MRI were inflammation or similar.

User
Posted 10 Dec 2024 at 12:53

Thanks Adrian,   I thought the volume was a bit big, that's why the nurse said they would give me a new baseline PSA level.

I'll see what my GP recommends for the future, hopefully just a yearly PSA test will be enough. 

Mick 

 
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