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PSA of 45.7

User
Posted 23 Apr 2025 at 23:22

All sounds positive,  I finished my radiotherapy about 7 weeks  ago , luckily no issues,  20 sessions soon passed    . My psa has dropped  from 30.4 to 0.054 .

I was too large for removal weighing it at 20st, hence radiotherapy path. The only issue was the amount of water prior to the treatment. 

I found a pint of water at night,  one as soon as I woke up and then one before I left for 09.00 rt session.  Still had to have an enema,  then 4 cups of water but I found if I needed  a pee before  treatment  I was fine. The only aftet effects  were fatigue.  It was explained to me, imagine  you are a battery,  use it in one go  done for the day or bits at a time  to last lo get.

Hope it helps good luck

 

User
Posted 23 Apr 2025 at 23:47

Thanks for sharing your experience. How about your hormone treatment schedule ? Short or long term??

I’m a bit techie so forgive me for asking, but do you know what type of machines you were on for your Radiotherapy?

My friend went on the previous older linac machines and he got nipped and has a few side effects but I’m told the new technologies go a long way to preventing that 🀞🏻

The whole water routine is a bit of a pain. I drink throughout the day then I have to pee on arrival and then 6 cups in 10 minutes before the procedure…. that seems to provide repeatable deterministic results for the Radiographers although it’s difficult to get home without a pit stopπŸ˜‰

 

 

User
Posted 24 Apr 2025 at 04:45

I went to bham QE I think it's the old linex, I had seen a private consultant  about the spacer to protect the bowel but he said save the money. I met a lovely bunch of lads there intotal six of us formed a what's app group, all ages 75- 50, all different  psa readings etc. Some had side effects,  dioahrea, dribbling  etc but nothing  too bad, all suffering  from fatigue,  worse for agood 2 months after treatment,  but now improving. Everyone is now having post treatment psa readings .some are now 0.02 undetectable. 

I agree a Pitstone is needed afterwards,  the only advice I can give is just drink plenty  of water threw out the day. I think post treatment I was going out and could ladt a good few hours. Only get up once a night now for a pee, same with the other lads.

Prostrate  cancer UK do a urgent toilet pass card, which shops and restaurants  accept , great safety  net. ( free)

I do believe  a posatitive our luck is needed...

Lastly I've lost a lot of strength  but it's comming back slowly,  I still have 18 months of HT to do.

Hope it helps please ask as much as you like good luck

User
Posted 24 Apr 2025 at 20:15

Thank you again, good information is priceless when on this journey. 

Best wishes and all the best for the future. 

User
Posted 24 Apr 2025 at 21:25

It's not an issue. I never really  got into all the technical names and bits, etc  some people  do, once i knew i wasn't  going  to be pushing  up the daisys, i just accepted it. I do believe  staying positive is the best thing , the only other thing is do not worry  about feeling tired an not being 100% socialable,  your true friends will understand.  It just takes time, to adjust to nor be9ng able to do what you use to, but post treatment you will start yo get your strength  back.

Keep me updated on  your progress,  you will be fine I'm sure 

User
Posted 22 May 2025 at 16:46

I’ve now finished my 21 sessions of RT and don’t seem to have any aggressive side effects. Toilet troubles of course, but nothing more for now 🀞🏻

My biopsy showed Gleason 8, Cambridge 5 and presence of PNI which I’ve tried to get good info on, but nothing i found is very clear. 

Firstly it’s not a good condition and seems to go hand in hand with aggressive cancer and secondly it may be difficult to treat with EBRT?

That makes me think that maybe I should now elect for HD Brachytherapy…. But I’ve seen no information or studies linking the two??

Any wise words of wisdom out there for advise??

 

Many thanks 

User
Posted 22 May 2025 at 18:02

Here's a short video by Dr Scholz in which he seems to dismiss PNI as having virtually no prognostic significance one way or the other, once you have taken factors like Gleason score and PSA into account.

https://www.youtube.com/watch?v=UYaIiqYDsYg

 

User
Posted 22 May 2025 at 18:25

I had PNI and worried about it. However, after much research, I came to the conclusion that PNI meant Perhaps Not Influential. πŸ™‚

 
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