Prostatectomy scheduling

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User

Posted 17 Jan 2025 at 10:12

Hello Fragen,
yes my RPx was on 17 June 2024.
I'm doing quite well, incontinence is solved - I used EMS (Electrical Muscle Stimulation) extensively.
You can search the German forum for a detailled report.

ED wise - It could be better, but a Vaccum Erection Device (VED) works quite well for us. Also a detailled report is available on the German forum.

Onwards and upwards!
Very best regards,

Henrik

User

Posted 18 Jan 2025 at 02:02

Glad to hear it is going quite well. All the very best for a continued recovery!

Which German forum?

I guess the medical team can tell us the most but so far we only had one meeting and getting the news - even though we had been expecting it since August - was a lot to take in.

I did ask what some of the terms used meant, largely because I had already read about them here in this forum.

He had his scan today and I suppose we should prepare for the meeting on January 31, ask all our questions then.

User

Posted 18 Jan 2025 at 10:30

Hello Fragen, the German forum can be found here:

https://forum.prostatakrebs-bps.de/forum

Good luck!

User

Posted 19 Jan 2025 at 07:34

With any signs of type 4 cells I wouldn’t hang about too long. I got diagnosed sept 2019 (Gleason 6 (3+3)). My local team were fairly relaxed and said there was no urgency. I had a gut feeling and isn’t share this view. I engaged for a second opinion with a top leading professor who pioneers laparoscopic and robotic surgery. Had surgery end of November 2019 and histology came back Gleason 7 (4+3) and extremely close to breaking out of the prostate.

I’d been tempted to wait too or go on AS but having seen quite a few do the same and end up T3 with post surgery histology.

My surgeons words immediately after surgery were along the lines of..it was quite fortunate you acted when you did.

Just be aware that post surgery it’s fairly common for the cancer to be upgraded ~44%

In terms of teaching etc. obviously everyone is different and you need to take it easy for 3 months post op but I was walking 2-3km, without issue, day 3 of surgery and driving after 2 weeks.

With any cancer speed is of the essence in my view as faster it’s out the less time there is for METs to become a factor.

Btw I kept radiotherapy as a backup after surgery should the cancer return and I need salvage radiotherapy.

Edited by member 19 Jan 2025 at 07:38 | Reason: Not specified

User

Posted 19 Mar 2025 at 16:14

Finally an update. We have been waiting to get an op date and today it finally came. On 31 January they said it would be in about 6 weeks but in fact it is 8 May so rather longer.

He is relieved to have it since PSA was 54 in August, biopsy was in December (Gleason 7 (4+3)).

User

Posted 20 Mar 2025 at 05:21

Fragen

I am pleased that you now have a surgery date to focus on , I had my RP on 25 th January .

It is now 7 weeks on from the operation and I feel great .

My advice would be to use the time from now in a positive way , get your husband as fit physically and mentally as possible , start the pelvic floor exercises ,make sure he does them correctly, there are lots of you tube videos that help.

You are aware I am sure of the side effects of surgery , incontinence and ED , it is important to be aware of these but don’t worry too much about them, the main thing is to get rid of the cancer and prevent it spreading .

We are all different but 7 weeks post op I am managing the incontinence (with the use of pads).

I have started to use a vacuum pump as part of my Penile Rehab and already achieving Dry Orgasms

So stay positive and Good Luck 👍

User

Posted 21 Mar 2025 at 00:39

THank you so much Swannie. Really good to hear you are feeling well and I hope the side effects clear up.

Yes, I will have a look at pelvic floor exercises with him.

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