I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<123>

RARP tomorrow

User
Posted 08 Apr 2025 at 09:46

The relief is amazing

User
Posted 09 Apr 2025 at 09:06

Originally Posted by: Online Community Member
No one mentioned the first poo...Christ on a bike!!!

 

An eagerly anticipated event, that didn't disappoint 😂

User
Posted 13 Apr 2025 at 07:25
Catheter comes out tomorrow, really looking forward to that. Gradually over the last few days the bag has been getting clearer and clearer. What started as a Ribena colour has moved to like a chardonnay. I cannot believe how much comes out!!.

The night bag gets really full by 5am..that's a full 2 litres!!

User
Posted 13 Apr 2025 at 09:02

Arthur 

I have had around 12 trial without catheter and never failed. Mine usually took around three hours. I usually drank plenty of water before getting to the hospital, I find that if i am well hydrated before getting to the hospital the water they give me to drink at the TWOC passes through me far quicker. It is better to leak a bit than have a catheter put back in because you failed the TWOC. The removal is frequently described as weird, it should be pain free. If it gets stuck on the way out ask for a urologist to attend, my surgeon is convinced a swift removal after getting stuck caused my post op stricture issues.

 

Make sure you have some pads, the hospital will normally give you some, but as a work colleague used to say better to be looking at some than looking for some. I took a towel and cover for the car seat in case of a "major" leak but it never happened. I also had a urine bottle in the car in case of an emergency. The towel is useful if stuck in a traffic jam with a coachload of people at the side of you😀. You could take a spare pair of trousers and pants, again i never needed them. Elasticated waist trousers make it very easy to change the pad in a hurry. 

 

Once the catheter is removed remember to contract those pelvic muscles as you are going from sitting to standing up, this is when lots of us experienced a leak.

 

Thanks Chris 

User
Posted 13 Apr 2025 at 09:10

Thanks.

I had the op on 3rd April, so will be in for 11 days.

When I get up in a morning I usually drink a pint of water. Whilst catheter has been in I've followed the "drink loads of water" mantra and drunk probably 6 pints per day.

As part of my recovery, having this catheter out will give me a bit of freedom to get some more walking done etc.

Let's see if all the pelvic floor excercises I did over the last 2 months have paid off.

User
Posted 15 Apr 2025 at 03:01

Catheter came out. Wow that was very uncomfortable.
Now in pads. So much better, hospital only gave me one pad so will be using the ones from Prostate cancer uk in their surgical pack.
So far walked 6700 steps, went to pub for tea, no booze... got through zero pads...Still got the one from hospital.
This first night isn't great. Up every other hour to pee. I presume this settles down

Edited by member 15 Apr 2025 at 03:02  | Reason: Not specified

User
Posted 15 Apr 2025 at 07:29

It just goes to show that everyone is different. My catheter was removal was completely painless. For weeks I peed uncontrollably during the day whilst awake, yet weirdly was dry all night. It took me six months to be back to full bladder control.

You seem to be doing fine, mate. 👍

Edited by member 15 Apr 2025 at 07:31  | Reason: Additional text

User
Posted 15 Apr 2025 at 07:51

Arthur, I have seen guys say they had a urine bottle next to the bed in the early stages. The idea was  so they could have a pee then go back to sleep rather than getting up and going to the toilet. 

Remember not to over do it , take it easy but keep mobile. That new joint is still healing. Did the catheter get stuck or was it difficult to remove. 

Thanks Chris 

User
Posted 15 Apr 2025 at 07:59

It came out in one movement, felt like it scratched everything on way out. Made me yelp a bit!

I can still feel it now if I do a pelvic floor exercise. However having the catheter in was horrible, my penis was so sore at the tip.

User
Posted 15 Apr 2025 at 11:32

Arthur, looks like I didn't post my pre op advice on your conversation, there are gels that would have helped with the sore penis.

The scratching on the way out doesn't sound good, did you see the removed catheter? Mention it to your consultant at your next meeting. I had issues with hem o lok clips migrating into the water works. You may have a small kidney stone that has got trapped. Sometimes the balloons don't fully deflate ,they can also get calcified but not usually in a couple of weeks. Perhaps go steady with the pelvic floor exercises for a few days.

If in doubt get in touch with your medical team.

Thanks Chris 

User
Posted 18 Apr 2025 at 13:12
Update for you guys.

Catheter has been out for 5 days. No leaks as yet,. Trips to bathroom at night have slowed a little, just 3 last night.

At what point do I go...sod it, and go without the pads?

Ive read that its a good idea to fiddle with it to maintain blood flow. When do I start doing that?. It's all a bit tender still

User
Posted 18 Apr 2025 at 13:23

Originally Posted by: Online Community Member
Ive read that its a good idea to fiddle with it to maintain blood flow. When do I start doing that?.

ASAP Arthur. But NOT while you're doing the Easter shopping at Tesco. 😄

Joking apart, mate, it's great to hear that you're making such a good and speedy recovery. 👍

 

Edited by member 18 Apr 2025 at 17:34  | Reason: Typo

User
Posted 18 Apr 2025 at 13:31

Good tip...

I'm reading the leaflet Penile Rehabilitation. 

This was a different word when I was younger.

"The referee's a Penile Rehabilitationer'!!!

Doesn't seem to have the same ring to it

User
Posted 18 Apr 2025 at 16:24

Arthur, even better if you can get someone else to fiddle with it. I would not advise asking complete strangers to help , especially in Tesco.

We mastered the technique of flaccid insertion, I always say ,never give up, take anything on offer and have fun finding a solution.

Thanks Chris 

 

User
Posted 20 Apr 2025 at 09:39

Update.

Ive ditched the pads for during the day. Wife insists that I keep the pad on at night. Am I finding out the hard way that my wife has a deep down nappy fetish?

User
Posted 20 Apr 2025 at 10:06

Originally Posted by: Online Community Member
 Am I finding out the hard way that my wife has a deep down nappy fetish?

😂 Brilliant, mate. 😂

Have you tried breast feeding? 🤔

Edited by member 20 Apr 2025 at 10:11  | Reason: Emoji

User
Posted 25 Apr 2025 at 06:44

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
 Am I finding out the hard way that my wife has a deep down nappy fetish?

😂 Brilliant, mate. 😂

Have you tried breast feeding? 🤔

I had a quick go at the breast feeding suggestion. Pulled a muscle in my neck trying to "latch onto" my own left nipple. It hurts when I laugh now.

Update.

I'm back at work!.cannot believe 3 weeks ago the hospital were still cleaning down the robot after my full prostate removal. I'm on a phased return, so working from home. I'm lucky in that my job is very flexible. 

One issue you might help me with. When out walking or shopping, I'm finding that I need to pee very often. When I do go, it doesn't feel like I'm emptying a full bladder. Also the feeling that I need to pee comes on quite quickly. Does this settle back down? Yesterday I emptied my bladder, went for a walk then after about a mile felt that I needed the loo. Is this normal?

 

User
Posted 25 Apr 2025 at 10:03

Hello again mate.

It does take time for things to get back to normal. I can remember thinking how few public toilets there now are. From what you've said, I think you're doing very well on the incontinence front. 

User
Posted 19 May 2025 at 21:08

Update time.

Still dry day and night. I'm able to do more without suddenly wanting the loo.

Much anticipated first PSA... result < 0.04

User
Posted 19 May 2025 at 21:51

Fantastic result, mate! Plus you're still making an excellent recovery. Long may it continue. 👍

I shall have a whisky to celebrate your good news.🥃

Edited by member 19 May 2025 at 22:12  | Reason: Typo

 
Forum Jump  
<123>
©2025 Prostate Cancer UK