Bazza Update - The road of certain uncertainty

Bazza
You involuntarily became my role model a while back , and now I have read this post I'm going to have to go on Amazon later and order some vaping stuff too !!
Seriously I'm sorry to hear your news. It's such a s**t isn't it. Not ever really knowing. Let us know how Guys goes ok , and my fingers will be crossed for you.
I've been following your advice exactly , and I too am piling on the pounds what with HT , plenty of steak , rioja/shiraz and a blob of Stilton every night.
Best wishes
Chris

Good to get an update from you Bazza - I wonder whether they will suggest adding Casodex to get a bit of a boost. Have you had your testosterone measured recently to make sure you are below castrate-level?

We are going through the trauma of discovering that our daughter's lovely guy was actually a bell-end ..... I wish it was the other way round.

Let us know what happens next week.

Sorry to see things going the wrong way and hope you and your Onco can formulate a plan. As for the vaping make sure you get a good mod and chase that cloud, it makes all the difference as the ones off the shelf aren't up to the job.

Roy

you know from our historical conversations that I have total respect and admiration for your abiity to tell your story as it is, no pussy footing about just told with beautiful literary skills and straight from the heart.

Your blog is still a wonderful source of information and guidance interspersed with great tales of your travels, love of food and wine and very much the love you have for your family. It is awful when your much beloved child partners up with a "bell end" as you call him, standing back and hoping to God they see the light without divine intervention. Looks like you caught a break on that front.

I think I may have given Chris the link to your blog, the two of you are probably completely different characters but your fears and anxieties relate very closely.

Chris if I didn't I wish I had !!

So Bazza you are taking up vaping, I can see you with your nice Jeeves like housecoat,PJs, slippers, glass of finest red wine in one hand and the vape gadget in the other. Looking like you stepped straight off the set of The Great Gatsby. As you say if it is what floats your boat you go right ahead and enjoy it, hardly going to do you any harm is it?

The past 9 months or so seem to have been good for you in terms of travel and enjoyment. I am sure Guys will come up with a cunning plan that will keep that PSA down and those other bits under control so that you can continue to enjoy your life to the maximum.

It is lovely to see you post and sounding very upbeat if I may say so.

Loads of best wishes and a big virtual hug

xx

Mo

Bazza, keep your mind open just in case the onco proposes chemo as one of the options, to knock the cancer back and make it more vulnerable to the other treatments.

Might it be worth asking whether you could have a new biopsy? Your disease often seems atypical; i just wonder whether it could possibly have morphed into one of the less common types.

Good luck x

The plan is to do a fresh lot of scans (last lot were done a year ago - I have been offered them in the interim but have refused because of the anxiety they cause.) To date, I remain completely asymptomatic and as fit as a butcher's dog albeit the weight is still too high and the tiredness gets to me. I have been left shellshocked by these most recent PSA readings and have no clue why there should be such a dramatic rise in such a short time when on the Prostap, although the PSA was rising, it was doing so much more slowly and I was coping emotionally.

Now, I am beside myself with worry and with all the talk of the next inevitable step being chemo, know that I am perhaps just a couple of years away from meeting my maker. I have asked my onco about timescales but she seems to be much more positive and says that the fact I am feeling so well is very encouraging and I should be looking to enjoy several more years than I fear. For those that know me, I was worried when my PSA went up from 0.03 to 0.06!

Any sage advice from those in the experienced camp as to why my PSA is behaving so irrationally would be welcome. My CNS believes that my GP nurse who recently administer the Zoladex may not have done it properly. Time will tell as they say. Today is for worrying myself to death.

Thank you.

Bazza

I don't know the answer Bazza. I just wanted to say I'm thinking of you and hoping that there is a logical explanation of the doubling figures.

As Chris says, perhaps Lyn can shed some light on it for you

The CNS mentioned that the GP nurse who administered it could have easily accidentally expelled the pellet before entering the skin. Another thought is a flare although I wasn't aware that, already being on ADT, whether you could have a flare changing to another ADT. The dose rate for the Zoladex was the same as Prostap 12 weekly given at a six weekly interval. It just seems so strange as nothing in my recent history has indicated such a dramatic rise. Just in case, the CNS gave me a monthly shot of Zolly today, bloods in three weeks and then scans to confirm or otherwise. My theory is that returning to Prostap, although failing might be the lesser of two evils as my rate of PSA rise is slower on this than Zoladex.

I'm petrified of my own shadow, you know, so I'm sure you can imagine my fears about Chemo being the last stage in treatments. Once that is done, there is literally nothing left, or is there?

Thanks again Lyn. You have always managed to get me to see things more clearly.

Bazza

You are as brave as a lion sometimes, my friend and have already coped with more than you could have imagined possible, so you would cope with chemo as well. You only have to look at Si_ness and irun to see that chemo is no longer the last door out of the building - in both cases, chemo has opened up a sustained period of HT control and good health.

But yes, there are some records of people being given bicalutimide to avoid tumour flare when changing from one LHRH to another.

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