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Diagnosed 15/7/2021

User
Posted 19 Jul 2021 at 18:17

Good afternoon all … the diagnosis has certainly slowed me up and I’m waiting on the bone scan results which are due weds 22nd… currently treading water not knowing what too expect. Got all sorts going through my head. So glad I have found this forum and I’m hoping I can be educated by you good people. Respect to you all 

M

User
Posted 19 Jul 2021 at 19:28

Yes, my age and diagnosis pretty similar to yours. I'm still here 3.5 years later, hoping I'll still be here in 20 or 30 years time. If your bone scan is clear (which with a psa less than 50 it probably will be) then with radical treatment you may be cured.

Quite a few people on this site 10 or 15 years down the line, and don't forget the internet has only been available to most people for 15 to 20 years. So if you took a true random sample you would find your odds are quite good. 

Dave

User
Posted 19 Jul 2021 at 19:42

Will follow your thread i know its difficult at moment but there is light at the end off the tunnel keep positive  things will get better  i am sure its a horrible desease but treatment improvements all the time 👍

User
Posted 20 Jul 2021 at 21:40

No worries were all in this together 👍

User
Posted 19 Jul 2021 at 18:17

Good afternoon all … the diagnosis has certainly slowed me up and I’m waiting on the bone scan results which are due weds 22nd… currently treading water not knowing what too expect. Got all sorts going through my head. So glad I have found this forum and I’m hoping I can be educated by you good people. Respect to you all 

M

User
Posted 19 Jul 2021 at 19:00

Keep positive hope bine scan is clear i was gleeson 9 psa 24.9 just had all clear after 37 sessions off radiotherapy hopefully you have a similar outcome gaz 61

User
Posted 19 Jul 2021 at 19:29
Thanks Martin like you i was gutted high gleeson score and psa hope your bone scan is clear too radiotherapy was ok very few effects hormone therapy bearable good luck keep positive you can do it gaz
User
Posted 19 Jul 2021 at 19:30
Ditto dave sound advice 👍👍
User
Posted 19 Jul 2021 at 19:38

Hi Dave 

I hope so ..your words are are a massive help…in 48 hours I’ll know what I’m up against

cheers

martin

User
Posted 19 Jul 2021 at 20:02
Thanks Martin 👍
User
Posted 20 Jul 2021 at 12:58

Good luck for tomorrow Martin sure you will be ok  you will learn you treatment options going forward   ðŸĪž

User
Posted 20 Jul 2021 at 19:55
Martin, I was in a very similar situation to you. Diagnosed in 2018 aged 55 with a PSA of 32. Biopsy found T2C G3+4, but a suspicion of undetectable spread to the surrounding lymph nodes because the PSA was anomalously high for what was found in the biopsy. RT in Feb/Mar 2019 with HT six months before and a year after. Now 2 years and 4 months after the end of RT and my most recent PSA was 1.2. Treatment not too bad at all.

You'll get through it.

Best wishes,

Chris

User
Posted 21 Jul 2021 at 23:47

That's poor Martin very frustrating  but hopefully  good news soon 

User
Posted 22 Jul 2021 at 18:30
Glad to hear it, Martin. I think most people (and that certainly includes me) find waiting for test results the most stressful part of the whole experience. Once you know where you stand and have definite plans, it all gets much easier to deal with.

All the best,

Chris

User
Posted 22 Jul 2021 at 21:10

Really good Martin onwards and upwards ðŸĪž

User
Posted 28 Jul 2021 at 21:30

That is sounding like good news. Usual approach now is that the multi disciplinary team (Mdt) look at all the data and then decide on the best treatment. Quite often they can rule some out but can't decide of the ones which are left, which one is best for you. This means they offer you the choice!

Dave

User
Posted 28 Jul 2021 at 22:36

Great news bone scan is clear treatment  is starting  soon full steam ahead  now for a cure 

User
Posted 31 Jul 2021 at 13:51

Gaz,

Glad to see your Bone scan was clear.  I was diagnosed at the end of May this year, my Bone scan also came back clear.

It does feel good to hear a piece of positive news.

Been on Hormones for 6 months, Radiation treatment to start early October,so I am still new to all of this.

Steve

Edited by member 31 Jul 2021 at 13:52  | Reason: Not specified

User
Posted 31 Jul 2021 at 14:05
Good news, Martin. Very best wishes for your treatment.

Chris

User
Posted 31 Jul 2021 at 15:46

Doing ok on hormone treatment odd hot flush bit off weight gain but generally ok  had 3 now less problems the longer you are on them body gets used to them 👍

User
Posted 31 Jul 2021 at 15:49

Doing ok few hot flushes bit off weight gain but generally ok had 3 now and I have been generally ok 👍

User
Posted 13 Aug 2021 at 10:39

Hi gaz yeah definitely

User
Posted 28 Nov 2021 at 16:14

good to hear things are starting soon keep moving forward 👍

User
Posted 04 Jan 2022 at 19:36

I am sure you will get some good feedback 👍

User
Posted 08 Jan 2022 at 17:39
Possibly degarelix, which stops testosterone production immediately.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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User
Posted 19 Jul 2021 at 19:00

Keep positive hope bine scan is clear i was gleeson 9 psa 24.9 just had all clear after 37 sessions off radiotherapy hopefully you have a similar outcome gaz 61

User
Posted 19 Jul 2021 at 19:20

Hi Gaz … I appreciate your reply and  many congratulations , well done… right now this is what I need. Best of luck for the future. Weds can’t come soon enough for me

Martin 

User
Posted 19 Jul 2021 at 19:28

Yes, my age and diagnosis pretty similar to yours. I'm still here 3.5 years later, hoping I'll still be here in 20 or 30 years time. If your bone scan is clear (which with a psa less than 50 it probably will be) then with radical treatment you may be cured.

Quite a few people on this site 10 or 15 years down the line, and don't forget the internet has only been available to most people for 15 to 20 years. So if you took a true random sample you would find your odds are quite good. 

Dave

User
Posted 19 Jul 2021 at 19:29
Thanks Martin like you i was gutted high gleeson score and psa hope your bone scan is clear too radiotherapy was ok very few effects hormone therapy bearable good luck keep positive you can do it gaz
User
Posted 19 Jul 2021 at 19:30
Ditto dave sound advice 👍👍
User
Posted 19 Jul 2021 at 19:38

Hi Dave 

I hope so ..your words are are a massive help…in 48 hours I’ll know what I’m up against

cheers

martin

User
Posted 19 Jul 2021 at 19:42

Will follow your thread i know its difficult at moment but there is light at the end off the tunnel keep positive  things will get better  i am sure its a horrible desease but treatment improvements all the time 👍

User
Posted 19 Jul 2021 at 19:43

Cheers Gaz
Much Appreciated 👍🏞I’ll update as soon as get the call

Martin

User
Posted 19 Jul 2021 at 20:02
Thanks Martin 👍
User
Posted 20 Jul 2021 at 12:58

Good luck for tomorrow Martin sure you will be ok  you will learn you treatment options going forward   ðŸĪž

User
Posted 20 Jul 2021 at 18:45

Cheers gaz… nice to have someone who has experienced this looking out for me…will post the results as soon as I get em

Martin

User
Posted 20 Jul 2021 at 19:55
Martin, I was in a very similar situation to you. Diagnosed in 2018 aged 55 with a PSA of 32. Biopsy found T2C G3+4, but a suspicion of undetectable spread to the surrounding lymph nodes because the PSA was anomalously high for what was found in the biopsy. RT in Feb/Mar 2019 with HT six months before and a year after. Now 2 years and 4 months after the end of RT and my most recent PSA was 1.2. Treatment not too bad at all.

You'll get through it.

Best wishes,

Chris

User
Posted 20 Jul 2021 at 21:40

No worries were all in this together 👍

User
Posted 20 Jul 2021 at 21:49

Hi Chris 

Thanks for the reassurance much appreciated. I’m really not sure what to expect tomorrow…. I’m going with ‘what will be , will be’.

martin

User
Posted 21 Jul 2021 at 19:37

Well today’s call with the results of my bone scan were disappointing.. apparently new software installed and Sheffield isn’t compatible with Doncaster’s and the scans were unreadable………. They will call me back next weds and in the meantime start taking the bicalutamide…… so I don’t know where it’s spread and no idea of possible treatment plans…… not one of my best days…. Angry, frustrated and disappointed….we go again next week… hopefully 

User
Posted 21 Jul 2021 at 20:33

That is annoying. Can they get the computers sorted or will you need to repeat the scan? If they need to re do the scan, get advice on whether to start the bicalutamide. 

Dave

User
Posted 21 Jul 2021 at 23:47

That's poor Martin very frustrating  but hopefully  good news soon 

User
Posted 22 Jul 2021 at 17:38

evening gaz and gents. Had a call from my consultant this pm. He was very apologetic and had asked the senior radiologist to check my bone scan… all he could see was some inflammation around my lower back and no spread. I know it’s not official but I’ll take it as a win… fingers crossed I get the same from Sheffield oncology next weds…. Also said to carry on taking the hormone tablets and will book me in for injection in a fortnight

its been a better day

martIn

User
Posted 22 Jul 2021 at 18:30
Glad to hear it, Martin. I think most people (and that certainly includes me) find waiting for test results the most stressful part of the whole experience. Once you know where you stand and have definite plans, it all gets much easier to deal with.

All the best,

Chris

 
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