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Exercise post RALP

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User

Posted 09 Nov 2022 at 15:32

Yes my aches and pains disappeared too while I was off work, sitting around with the catheter in and then -lo and behold - they came back when I returned to work! It’s not good for you!!

I was thinking Pilates or yoga too, in combination with some back strengthening exercises.

Cheers

User

Posted 09 Nov 2022 at 17:30

Does your local council sports centre not have any classes. My one does low impact special “cancer” classes and Tai Chi classes with instructors trained by Macmillan. I have not been to any yet however I am planning to go in January and build up slowly. The ironic thing is I initially failed the sports centre assessment ( high b.p ) and I had to get a note from a GP saying it was okay for me to do exercise!🤪

Rgds

Dave

User

Posted 09 Nov 2022 at 22:37

Hi Dave,

I’ve never heard of cancer exercise classes, I’ll have a look around. I’ve never asked about that sort of thing but maybe they exist in Plymouth.

Cheers

Nick

User

Posted 09 Nov 2022 at 23:39

Originally Posted by: Online Community Member

Chris thanks, another good tip. I’ll try Sainsburys. Pads aren’t cheap!

If you weren’t around 250 miles away from Nottingham, I could have offered you a box and a half of Tena. My local continence team sent me two boxes, but I’m fortunate to have regained virtually full bladder control seven weeks after my RALP, so have stopped wearing them.

User

Posted 10 Nov 2022 at 07:45

First of all congratulations Robin on your speedy leak recovery! Excellent news. And maybe there’s someone reading this from your neck of the woods who might be able to make use of the spares…

Cheers

Nick

User

Posted 10 Nov 2022 at 08:42

Nick in our area they have a swim to beat cancer at our local authority pool. Other areas, and hopefully one near you, do the same.

User

Posted 10 Nov 2022 at 09:29

Thanks Jim, I’ll investigate. How’s recovery for you?

User

Posted 10 Nov 2022 at 09:38

I am doing good thank you for asking. I've been increasing my exercise since week 4, but still some way to go to where I was. It all takes time.

User

Posted 10 Nov 2022 at 18:49

Hi Nick ,

I am two weeks ahead of you, 10 weeks ago tomorrow . I started building up by walking about increasing step count day on day, and playing third round of golf in just over a week(not risking it for 8 weeks) tomorrow still holding back a little. Did have lots of lower back pain from beginning to about week 7/8, just do what excercise you feel is enough for you (without overdoing it) mostly important , hope your back pain eases off.

Still get aches and random pains sometimes but had them before so nothing new there .

good luck with managing your back pain .

colin

User

Posted 10 Nov 2022 at 19:06

Jim and Colin thanks, glad to hear you’re both doing well. I feel like I could up my exercise, finding the time is the next thing.

Cheers

Nick

User

Posted 23 Nov 2022 at 18:51

Hi Nick, how is the exercise going? I am 2 weeks behind you and have made the effort to start the gym again from yesterday. All I am starting with is 30mins on cross trainer and 15mins on the recumbent bike not even looking at any weights.

I am a keen cyclist but have decided to keep of the bike for at least another 2 months to give the part nerves sparing time to recover

Hope all is going well

User

Posted 23 Nov 2022 at 19:13

Hi Biggy,

Glad to hear you’re getting back in the gym. Sounds like a sensible level to get going with too. I’ve definite put on a few pounds sat around doing not much, looking forward to shifting them!

I did a 2 mile run a couple of weeks ago which was fine when I did it but bloody hurt the legs for a few days after! Just totally unfit and unused to that sort of exercise. So I’ve decided to start with stretching and some home style Pilates. It’s like Pilates but a bit rubbish. But it seems to be working.

I had my first post op results meeting with the surgeon today. Expect the unexpected!! Again. Apparently he found a nodule full of cancer at the base of the prostate that they weren’t expecting to find. Positive margins all round and a 50% chance of cancer returning. So I’m going to carry on with exercise and living normally until the next test at 3 months. On the plus side he said I can get back surfing. I’ve been stood on the cliffs filming my boy for the last two months so am looking forward to getting back in on Saturday. Although will definitely ache in every single muscle and bone after, for sure.

Take care and enjoy(!) the gym

Nick

User

Posted 23 Nov 2022 at 19:43

Cheers Nick,

Sorry to hear your news, I've got mine on Monday I'm having a phone consultation with uclh, so getting a bit twitchy, maybe I will relax a bit once I've had my results but it does sound like everyone gets anxious waiting for the psa results every 3 months.

Did try a couple of stretches today but didn't feel comfortable so stopped them, I'm hoping to get back kitesurfing after the new year we just need some normality back into our lives !!!

User

Posted 23 Nov 2022 at 21:09

Thanks Biggy. Yeah I think you’re right. I’m going to try and forget about the results as much as I can, not let them dominate my life. Fingers crossed you get some positive news on Monday.

Never tried kitesurfing, seen guys getting massive airs at Bigbury Bay, and Hawkers cove nr Padstow. Mad stuff!

User

Posted 23 Nov 2022 at 21:53

Nick , post op investigations and treatments have improved since I had my RP five years ago, I had positive margins etc. Looking at your bio, did you get the gallbladder looked at. I have sludge in my gallbladder , which apparently was visible on my pre surgery CT ,but nobody mentioned it.

Just keep going.

Thanks Chris

User

Posted 23 Nov 2022 at 22:22

Thanks Chris, I’m certainly not downhearted and am usually quite positive minded. So will crack on.

They were supposed to get me back in for a gallbladder scan 3 months after the first ultrasound which was in Jan or Feb! My GP has just got onto it so am waiting for a test. I don’t think it’s anything to worry about. (I’ve said that before!)

Cheers

Nick

User

Posted 23 Nov 2022 at 22:46

Nick , I refused the gallbladder removal, I had been back into theatre numerous times already with my stricture. I cut out rich creamy foods and I have been fine. M&S does some really rich food.☹️.

Thanks Chris

User

Posted 23 Nov 2022 at 23:15

Chris, sounds like you made the right choice. I hope it was a straightforward decision for you to make. M&S’s loss, your gain.

Cheers

User

Posted 23 Nov 2022 at 23:31

Nick, yes good advice 'expect the unexpected'. Sorry the results were not as hoped.

Still waiting for my post operative meeting 10 weeks post surgery. Told to ring back first or second week in December... Who knows what this will reveal when it eventually happens.

User

Posted 23 Nov 2022 at 23:46

Jim, I was quite ambivalent going into this meeting and abiding by my other favourite phrase ‘hope for the best, prepare for the worst’. Obvs it’s neither the best nor the worst but not getting my hopes up too much was wise in the circs.

Even so, I had to bin work this afternoon and hand off meetings to a colleague. It turned out that it was quite a big deal for me to process.

it might be time to dust off the third of my phrases, borrowed from the Royal Marines:

‘Cheerfulness in the face of adversity’

Good luck with yours, I hope it’s straightforward and positive.

Nick

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