Exercise post RALP

User

Posted 24 Nov 2022 at 01:51

Originally Posted by: Online Community Member

Positive margins all round and a 50% chance of cancer returning. So I’m going to carry on with exercise and living normally until the next test at 3 months.

Sorry to see this, Nick. What was your post-op PSA? That is a reliable indicator for deciding whether to go straight for adjuvant RT or wait to see if salvage RT is needed.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Nov 2022 at 09:39

Hi Lyn, thanks. Pre op was 24, post op 0.01. So that’s great news and we’re definitely waiting to see if it goes up. RT will happen if it gets to 0.2 or if the curve is heading clearly in that direction.

So there are some positives to take from this and I know I’m still maybe only on the second rung of a very tall ladder.

User

Posted 24 Nov 2022 at 15:14

I hear you Nick. All my post op margins and lymph nodes were clear and my onco and MDT were optimistic that was it. Then my post op PSA came in at 0.5 and it knocked me for six. It is very tough to go through surgery and still have all the uncertainty hanging over you.

Hopefully you get back out on the board soon. The day I got back out sailing on my laser was a happy one. One thing I have changed is that normally I was training for triathlon which is lots of cardio. But I switched over to Crossfit/personal trainer which is weights based to try to mitigate ADT impacts. If you think further treatment may be coming down the track (and hopefully it doesn't materialise) might be something to consider. I have found it extremely beneficial and hoping to keep it up through my next phase of treatment.

User

Posted 24 Nov 2022 at 20:14

Jellies, that must have been a blow, sorry to hear it. You’ve not had a huge amount of good news have you. But I hope the next phase is more successful.

Great to know you were out on the boat and have found a way of keeping fit. I’ll keep your advice up my sleeve and hope I don’t need it.

Good luck with the next stage.

Nick

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