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20mg Tadalafil

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User
Posted 16 Dec 2022 at 22:47

Hi all,

My RALP was on 14.09.22, the surgeon spared both nerve bundles (god bless him). No movements ‘down there’ as yet (not surprised).

I’ve just collected 14 x 20mg Tadalafil tablets to be taken every other day - with repeat prescription - and have a few questions:

1. will I be exempt from prescription charges?

2. Is it better to take them in the evenings, due to possible side effects?

3. What effects can I expect on my penis and sexual activity? 

4. what side effects are common?

Thanks everyone. Grateful for responses as always,

Nick

User
Posted 17 Dec 2022 at 08:20
As above with extras :-

20mg doses are quite severe. They can cause indigestion , watering eyes , headache , and in some men lots of back and joint pain. They will only give you an erection if you are fully into what you are doing. That is , you have to be turned on properly. I had to wait a year before they prescribed me the gold standard of 5mg Tadalafil daily. I took it at night to reduce side effects. They gave me a PPI ant-acid to sort the indigestion out. Within 2 weeks little Chris was warm again and waking up with semi wood. Over my second and third years I returned to full penetrative function albeit using a simple cock ring and the daily meds. I used a pump 3 or 4 times a week for rehab. Good luck

User
Posted 16 Dec 2022 at 23:41

You are exempt prescription charges but need to apply for exemption. Get the form from GP. It lasts 5 years then need to reply. As you have had a cancer diagnosis this qualifies you for the exemption on all medication not just cancer medication. Form is FP92A.

 

Best to read the leaflet that comes with the medication regarding common side effects.

 

Good Luck 

User
Posted 17 Dec 2022 at 03:44

Just adding to Jason's comment. The exemption lasts for five years and covers all medicine prescriptions whether related to cancer or not. However it will only be renewed if you need medication for cancer treatment, or to cope with the side effects of that treatment (tadadafil is to cope with the side effects of your treatment). 

I am on repeat Avanafil, my medical exemption runs out in April 23 (can't believe it's nearly five years since diagnosis). I am not expecting any problems getting it renewed, but I shall report here if there are any problems.

I wouldn't be surprised if pensioners lose the free prescriptions in the next few years, but I don't think it would look good for a politician to take that benefit away from cancer patients. I know a lot of people on this forum are pensioners, so just a heads up, if the rules do change.

Dave

User
Posted 17 Dec 2022 at 08:40

I had RALP in March (full nerve sparing on one side, partial on the other) and have been on daily 5mg Tadalafil since May. Do read the leaflet, but I seem to remember it saying try to be consistent in the time of day you take them. Initially I had some muscle aches and a headache (which I think are common side effects), but that soon faded and now I have no side effects.

My wife and I are now able to have full penetrative sex without injections, rings or other artificial aids at the time. I would say my erection has now recovered to about 70% of what it was pre-operation. 

I have been using a vacuum pump pretty much daily and would recommend that as part of penile rehabilitation. Even a cheap pump from someone like Love Honey will do the trick.

To be honest, my position 9 months post-operation is much better than I expected it to be, but it's clear this varies a lot between individuals and I count myself as one of the lucky ones.

User
Posted 17 Dec 2022 at 10:34

Just reading this post , I'm 2 weeks behind Nick with op and I've just received my pump and 8 20mg tadalafil tablets to take 2 a week . Took my first tablet on Wednesday evening,went out for a few pints on Thursday afternoon got home at 8pm then started with cold sweats and shakes was up all night rough yesterday managed to walk the dog then spent the rest of the day in bed with the shakes and headache, I know I should have read about the side effects anyone had something similar or I'm hoping I've caught a bug , taking my next tablet tomorrow so hoping it doesn't happen again 

Edited by member 17 Dec 2022 at 10:35  | Reason: Not specified

User
Posted 17 Dec 2022 at 10:46

I need to challenge my GP with regards to the prescription of any of the Viagra derivatives. The surgeon said they no long prescribed low dose Cialis or Tadalafil post surgery; my GP prescribed 8 Sildenafil, but not on repeat. I suspect my trust has made a decision to not fund such treatment as part of normal post-op recovery.

Edited by member 17 Dec 2022 at 10:51  | Reason: Not specified

User
Posted 17 Dec 2022 at 11:24

Tadalifil, even at 5mg, gave me very sharp and  painful reflux. Nothing helped and so I gave up on it. 

User
Posted 17 Dec 2022 at 12:50

Jim, it’s the postcode lottery in action again. Good luck!

User
Posted 17 Dec 2022 at 12:53

Paul, I hope I can get to your stage by 9 months. It’s very easy to fear the worst isn’t it? I remember I couldn’t see past the incontinence immediately after the catheter came out but it improved quite quickly. Fingers crossed.

User
Posted 19 Dec 2022 at 20:14

Hi Nick. 

Yes, aching limbs are quite a common side effect of Tadalafil.  I had it for the first 4 or 5 times, but never get it now, so it might be worth persevering. 

Good luck.

Jed.

User
Posted 14 Jul 2023 at 13:47
Thanks Guys,

I have carried on with the 20mg after my follow up call from the Pharmacist. The side effects have eased somewhat. It was great to hear how other users were getting on. This forum has been really useful and is invaluable when you are unsure about something.

Thanks

Rob

Show Most Thanked Posts
User
Posted 16 Dec 2022 at 23:41

You are exempt prescription charges but need to apply for exemption. Get the form from GP. It lasts 5 years then need to reply. As you have had a cancer diagnosis this qualifies you for the exemption on all medication not just cancer medication. Form is FP92A.

 

Best to read the leaflet that comes with the medication regarding common side effects.

 

Good Luck 

User
Posted 17 Dec 2022 at 03:44

Just adding to Jason's comment. The exemption lasts for five years and covers all medicine prescriptions whether related to cancer or not. However it will only be renewed if you need medication for cancer treatment, or to cope with the side effects of that treatment (tadadafil is to cope with the side effects of your treatment). 

I am on repeat Avanafil, my medical exemption runs out in April 23 (can't believe it's nearly five years since diagnosis). I am not expecting any problems getting it renewed, but I shall report here if there are any problems.

I wouldn't be surprised if pensioners lose the free prescriptions in the next few years, but I don't think it would look good for a politician to take that benefit away from cancer patients. I know a lot of people on this forum are pensioners, so just a heads up, if the rules do change.

Dave

User
Posted 17 Dec 2022 at 08:20
As above with extras :-

20mg doses are quite severe. They can cause indigestion , watering eyes , headache , and in some men lots of back and joint pain. They will only give you an erection if you are fully into what you are doing. That is , you have to be turned on properly. I had to wait a year before they prescribed me the gold standard of 5mg Tadalafil daily. I took it at night to reduce side effects. They gave me a PPI ant-acid to sort the indigestion out. Within 2 weeks little Chris was warm again and waking up with semi wood. Over my second and third years I returned to full penetrative function albeit using a simple cock ring and the daily meds. I used a pump 3 or 4 times a week for rehab. Good luck

User
Posted 17 Dec 2022 at 08:40

I had RALP in March (full nerve sparing on one side, partial on the other) and have been on daily 5mg Tadalafil since May. Do read the leaflet, but I seem to remember it saying try to be consistent in the time of day you take them. Initially I had some muscle aches and a headache (which I think are common side effects), but that soon faded and now I have no side effects.

My wife and I are now able to have full penetrative sex without injections, rings or other artificial aids at the time. I would say my erection has now recovered to about 70% of what it was pre-operation. 

I have been using a vacuum pump pretty much daily and would recommend that as part of penile rehabilitation. Even a cheap pump from someone like Love Honey will do the trick.

To be honest, my position 9 months post-operation is much better than I expected it to be, but it's clear this varies a lot between individuals and I count myself as one of the lucky ones.

User
Posted 17 Dec 2022 at 10:34

Just reading this post , I'm 2 weeks behind Nick with op and I've just received my pump and 8 20mg tadalafil tablets to take 2 a week . Took my first tablet on Wednesday evening,went out for a few pints on Thursday afternoon got home at 8pm then started with cold sweats and shakes was up all night rough yesterday managed to walk the dog then spent the rest of the day in bed with the shakes and headache, I know I should have read about the side effects anyone had something similar or I'm hoping I've caught a bug , taking my next tablet tomorrow so hoping it doesn't happen again 

Edited by member 17 Dec 2022 at 10:35  | Reason: Not specified

User
Posted 17 Dec 2022 at 10:46

I need to challenge my GP with regards to the prescription of any of the Viagra derivatives. The surgeon said they no long prescribed low dose Cialis or Tadalafil post surgery; my GP prescribed 8 Sildenafil, but not on repeat. I suspect my trust has made a decision to not fund such treatment as part of normal post-op recovery.

Edited by member 17 Dec 2022 at 10:51  | Reason: Not specified

User
Posted 17 Dec 2022 at 11:24

Tadalifil, even at 5mg, gave me very sharp and  painful reflux. Nothing helped and so I gave up on it. 

User
Posted 17 Dec 2022 at 12:48

Biggy, in the nicest possible way I hope you got the flu. There’s a lot of it about. I had the first tablet last night, nothing to report this morning but I guess the effect is cumulative? 

User
Posted 17 Dec 2022 at 12:50

Jim, it’s the postcode lottery in action again. Good luck!

User
Posted 17 Dec 2022 at 12:53

Paul, I hope I can get to your stage by 9 months. It’s very easy to fear the worst isn’t it? I remember I couldn’t see past the incontinence immediately after the catheter came out but it improved quite quickly. Fingers crossed.

User
Posted 19 Dec 2022 at 15:38

Well I took the second of my 20mg tablets last night about 10pm and was awake from 0130 to 0400 with aching legs. It wore off after a couple of ibuprofen. Anyone else had that? 

Nick

User
Posted 19 Dec 2022 at 18:10

Was about to reply to your post earlier, I'm on 10mg not 20mg also took my 2nd last night I  had a dull ache in left leg also my whole body felt itchy and bed was soaked with sweat. Don't think it was still flu symptoms but will wait until I take next tablet to see how I react if no different I will contact my urology nurse 

User
Posted 19 Dec 2022 at 18:51

Hi Biggy, sounds like a plan. I didn’t have the sweats or shakes but the aches are coming back now. Waiting for dinner to have a couple more ibuprofen. Can’t wait till they wear off…!

User
Posted 19 Dec 2022 at 19:04

Nick, I'm going to take my next tablet in the morning rather than night. Nothing is going to happen on the erectile side so if I get side effects might aswell have them in the daytime. 

I was also wondering how each region work out medication 

I'm on 10mg twice a week and you say you are on 20mg every other day 

User
Posted 19 Dec 2022 at 19:08

That’s what I thought but I take mine at 10pm and the aches are coming on strong again now, 6pm, 20 hrs later. Also work/driving might be tricky. Let us know how it goes.

I wonder about the dosage too. 20mg every other day does sound more than others but I think it’s still within the limits on the instructions.

 

 

User
Posted 19 Dec 2022 at 20:14

Hi Nick. 

Yes, aching limbs are quite a common side effect of Tadalafil.  I had it for the first 4 or 5 times, but never get it now, so it might be worth persevering. 

Good luck.

Jed.

User
Posted 19 Dec 2022 at 20:55

Thanks Jed, that’s good to know. I’ll stick with it.

Cheers

User
Posted 07 Feb 2023 at 23:12

Well the aches cleared up pretty quickly but I now get diarrhoea quite regularly in the late afternoon. It’s not listed as a side effect on the info sheet so I wondered if anyone else gets it?

User
Posted 08 Feb 2023 at 01:08
Never heard of diarrhoea linked to tadalafil - have you ever had irritable bowel syndrome/ upset stomach when anxious? Are you feeling worried / sad / under pressure?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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